Multiple myeloma is a type of blood cancer that begins in plasma cells, a kind of white blood cell found in the bone marrow. About 36,000 new cases are diagnosed each year, making up roughly 2% of all cancers. Multiple myeloma can affect bones, kidneys, and the immune system, so the disease and its treatments will look different for each person.

Hearing the words “you have multiple myeloma” can bring waves of emotions. You may have questions about what this diagnosis means, how it will affect your health, and what treatment options are available. Preparing questions for your doctor before your appointment can help you better understand your diagnosis and feel more confident about your care plan.

Here are some questions you may want to ask your care team:

• What stage is my multiple myeloma, and what does that mean for my health outlook?
• How is my type of myeloma different from other cases?
• What treatment options are available to me, and which do you recommend?
• Will I need a stem cell transplant, and if so, what does the process involve?
• How can biomarker testing be used to guide my treatment plan?
• What are the possible side effects of treatment, and how can they be managed?
• How will treatment affect my daily life, including work, travel, or physical activity?
• Are there clinical trials I should consider?
• How will my response to treatment be monitored over time?
• What supportive resources are available through the cancer center, such as palliative care, nutrition services, financial assistance, or mental health support?

Because multiple myeloma can be treated in several different ways, understanding your options is important. Treatment may include targeted therapy, chemotherapy, stem cell transplantation, immunotherapy, or radiation for bone pain or damage. The right plan often depends on your age, overall health, stage of disease, and results of genetic or biomarker testing.

Biomarker testing in multiple myeloma can help identify specific changes in your cancer cells. These tests may guide your doctor in recommending targeted therapies or determining if you may benefit from newer treatments available through clinical trials. Asking about biomarker testing is a key step in making sure your care is as personalized as possible.

Supportive care is also an essential part of living with multiple myeloma. Palliative care specialists can help manage pain, fatigue, or nerve problems that sometimes come with both the disease and its treatments. Nutritionists can offer guidance on eating well to maintain strength, while social workers and patient navigators can connect you to resources for financial assistance, transportation, or support groups. Mental health services, such as counseling, may also be available to help you and your loved ones cope with the emotional impact of a diagnosis.

Finally, remember that it’s okay to ask the same question more than once. Appointments can feel overwhelming, and having a family member or friend with you to take notes can be helpful. Writing your questions down ahead of time ensures you get the answers you need to make informed decisions about your care. Don’t forget to bring a notepad and a pen to jot down the answers, so you can refer to them whenever you need.

Asking questions is an important part of your partnership with your healthcare team. By staying engaged and informed, you can take an active role in your care and feel more supported as you navigate multiple myeloma.

You’re not alone. Join the Outcomes4Me Community for a safe space to share your story and connect with others who share your diagnosis.