Community Member
6 months agoI was just diagnosed on the 12th of Feb. I went to the oncologist yesterday and he was just matter of fact . You'll have chemotherapy and radiation therapy. I need to get a PET scan to see where I'm at then I'll see the radiation therapy doctor. In not sure I even want to go this route. I might just do this with diet and fasting and natural supplement. The thought of radiation burning me and changing my pelvic floor and vaginal area scares me. I don't want to be on pain the rest of my life. Anyone else complete the NIGRO protocol?
Community Member
6 months agoFacing a new diagnosis brings up so many overwhelming emotions and difficult decisions about treatment paths. It's completely natural to feel scared about potential side effects and want to explore all options available. The Nigro protocol is a well-established treatment that many in this community have experience with, so connecting with others who've been through it could provide valuable insights. Consider having an open conversation with your medical team about your concerns regarding side effects - they may be able to address your fears and discuss ways to manage potential complications. Whatever path feels right for you, this community is here to support you through the journey.
Community Member
5 months agoI’m not familiar with the Nigro protocol so I experienced chemo/radiation and am now undergoing immunotherapy. There have been no signs of disease progression except during a 9 month period when I didn’t get treatment (I could not afford it and was told by a business office rep that if I couldn’t pay I couldn’t have treatment…) it was during that period that cancer recurred . God is good…He’s with me! I’m blessed 🙏❤️
Community Member
a day agoI just finish this therapy 2 weeks ago. I did have a two week break and am waiting for my retest in November. The radiation was tough, I won't lie it was tough. My pain is already gone and I have started doing kagel exercises to strengthen that area. I still have some fecal discharge that I don't even feel so I just wear feminine pads to save my underwear. I know treatment for other types cancer can be way worse. I am hopeful.
Community Member
a day agoI also recommend getting a gel pad like for the car and using that in any seat when needed. It really was a life saver for comfort.
Community Member
a day agoI have also done research on the bag. The management of it isn't really that bad and your alive which is my goal as I await my first grandchild. The surgery seem like the tough part of that outcome, but once recovered your can still live.
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.