Has anyone used Epkinly for lymphoma?
Community Member
4 hours agoHi...anyone use epkinly for lymphoma?
How do I cope with a stage 3 DLBCL diagnosis?
Community Member
a day agoI have diffuse large B cell non hodgkins stage 3 lymphoma cancer. I was diagnosed August 1st of 2026. I have been taking a cancer mix of some herbs and I have cut my sugar intake to almost no sugar.
Where can I find clear info on B-cell lymphoma and Rituxan?
Community Member
a day agoI have B-cell lymphoma and am currently being treated with Hydrocodone/Acetaminophen for pain management and Rituxan (rituximab) as part of my cancer treatment. I recently tried to read what I thought was an article about lymphoma, but it turned out to be technical formatting data that wasn't readable at all. It got me thinking about how challenging it can be to find clear, understandable information about our conditions and treatments. I'd love to connect with others who have B-cell lymphoma and are navigating similar treatments. • What sources have you found most helpful for understanding your lymphoma and treatment options? • Have you found ways to make complex medical information easier to understand and discuss with your care team?
Has anyone dealt with mantle cell lymphoma?
Community Member
4 days agoHello all, new to the chat. Anyone experiencing Non Hoskins Mantel cell lymphoma? If so how long and how are you doing.
How can I support my son with Burkitt's lymphoma?
Community Member
14 days agoMy son is 19yrs old Burkitts lymphoma patients
How do people survive angioimmunoblastic T cell lymphoma?
Community Member
25 days agoI was diagnosed in April by accident when I had a lymph node removed I have a rare form called angioimmunblastic T cell Lymphona. It affects only 4 percent of bloody cancer patients. I have completed three infusions and will have three to go. Has anyone had this type of cancer and how you have survived?
Why is my leg bone cancer so hard to diagnose?
Community Member
25 days agoHi Everyone—-I’m new here. I have SOME sort of cancer in my right leg bones. They are having a devil of a time determining what type—-calling it a sarcoma. My hospital’s pathology lab could not decide after 2 weeks—-Mayo Clinic then took a stab at it for 2 weeks—-no determination. It is not acting like “normal” cancers—no staining, no genetic fusions, etc. It is now in the hands of a Dr. Andrew Rosenberg at the University of Miami who has had it for a week and expects to give an answer by end of today. Anyway—-I get a port tomorrow, and will start chemo soon. I’m certain you all understand the range of emotions I’ve gone through, especially in light of this elusive diagnosis. I need definitive answers, so we can fine-tune the chemo and GET ON WITH IT. Thanks for listening.
Is rituximab scary for splenic lymphoma?
Community Member
20 days agoI have splenic marginal zone lymphoma I am starting rituximab August 3 and I’m pretty nervous
Are histamine symptoms returning after lymphoma remission?
Community Member
19 days agoHi, there, I was diagnosed with NHBCL last September, went through Chemo (E-POCH) and am now in remission. My question is if anyone else experienced histamine related symptoms prior to diagnosis? I had these pretty severely before diagnosis, and now they are coming back, which I find concerning. Anyone else experience this? Thanks, Anne
What Should I Expect From My PET Scan After Lymphoma Treatment?
Community Member
a month agoI was diagnosed with MZL lymphoma nodal and extra nodal stage 4. My last chemo and immuno therapy was july 10 2026 I will get a diagnostic PET scan Sept 9. Then we have a new baseline … overwhelmed
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