Has anyone else been diagnosed with stage 4 alveolar soft part sarcoma?

Hello Everyone, I am a 56 year old male, diagnosed November 2024 with an Ultra rare form of Soft Tissue Cancer called, Alveolar Soft Part Sarcoma, (ASPS). At the time of biopsy 12/14 the disease had Metastatic (spread from my left buttock to my Iliac crest, both lungs, and later my brain and right forearm). I underwent High dose, targeted Stereotactic Radiation on the brain, and hip. Followed by Immunotherapy, via Keytruda. I am currently still under the care of an amazing Oncology Team at TN Oncology, in the city of Murfreesboro and still fighting strong, with mild side effects and showing durable health. I would love to know if anyone out there is facing my same stage IV challenge??