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How to cope with Stage 4 pancreatic NET and find support?

Community Member

10 months ago

Hello everyone I’m Lyn Im new here I’m 59 & recently been diagnosed with Stage 4 Pancreatic Neuroendocrine Tumor that has metastasis to the liver. I’m currently receiving the monthly Octreotide Injections the tumors are small & slow growing for now but the injections have me winded all the time. I’m in treatment at MD Anderson and I’m looking for someone to chat with who unfortunately shares a similar diagnosis.

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Community Member

10 months ago

Finding connection with others who truly understand what you're going through can make such a difference during this journey. The Black and Brown Thrivers community is a wonderful place to connect with people who share similar experiences, and many members here have found meaningful support through conversations with others facing comparable challenges. Consider sharing more about how the treatment side effects are affecting your daily life - others may have helpful strategies for managing fatigue and staying active during treatment.

Community Member

11 days ago

Hello I'm Elizabeth and I have the same diagnosis but at stage 2. Receiving monthly Octreotide. Stay fatigued all of the time. Low appetite. The shot is keeping tumors under control. Looking forward to sharing experience with someone going through similar diagnosis. It's really scary!

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How to cope with Stage 4 pancreatic NET and find support?

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