Seeking advice on breast cancer treatment options

I just saw an updated pathology report. Initially, it said no lymphovascular involvement, but it looks like Mayo re-examined the slides and now says lymphovascular present on one of the slides. 😒

Hello, I was diagnosed with DCIS stg 2 was told very small, negative BRCA, positive ER AND PR. My doctor said I was a good candidate for a lumpectomy but decided to have a double mastectomy. I had a sentinel lymph node biopsy- metastatic in one of 3 nodes. Follow your instincts, it’s better to be safe than sorry.

I agree with Mery, trust your instincts. I was diagnosed 01-23-2025 with DCIS stage 1, I chose double mastectomy. The anxiety of a future recurrence is something I didn’t want to go through. I’m 44 years old, I can’t imagine a recurrence when I’m older and trying to fight that diagnoses and treatment. Do what you feel is best for you. My cancer was 2mm, I do not need further treatments at this time. I’m very happy with my decision, I have no regrets.

Hello, I have DCIS so it noninvasive but my first recommendation was a lumpectomy. During my second opinion, the doctor recommended a trial for using medication first before surgery. I’ve never had surgery and was reluctant to do so now even. So the trial fits me. Take a deep breath and do what gives you peace. The trial was exactly correct for me but not for everyone. Hope you find your way to peace.

Mine was the same, took 3 surgeries to get it all , but stage 1. I opted fir radiation 25? Days. You will tired but need to push yourself.i was put on tamixufen for 5 years. A yesr later i had a different cancer in my left breast DCIS NEGATIVE. . THEN THEY SAW SOMETHING AGAIN IN MY RIGHT BREASTI wasn’t going thru it again. If thry dobt kill the master cell it will come back. I called on God he healed me. He was my master cell! I will never take chemo or radiation again. I will not die of cancer. My faith is suffucient in God. Uf ut us caught early , you may not have to radiate. But start yoursekf in black seed oil capsules and sour sop oil capsules. They are cancer fighters along with foods that are alkaline cabbage , just plain lettuce is alkaline . good for your ph. Celery, seeds strawberries, watermelon nuts, tomatoes, look in the internet for alkaline foods. I put a pinch of baking soda in my coffee every morning to start my day in alkalinity. No processed foods, they are known for colon cancer. It’s stretch, but our foods have been changed so much, by the socialist. I truly believe it. Red grapes abd their seeds are so good for you. You cant buy any fruit hardly with seeds anymore. The healing is in the seeds also. Flax , is so good for you, especially the flax lignan . I better get off, i could talk forever with what i have learned in the last 5 years. But it is my regime. Start your own get in the internet and research. Best if luck with your healing! God Bless!

Lymphovascular invasion is present on my pathology but it doesn't say the extent

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The pathologist added an addendum recommending a PET scan prior to surgery to evaluate for any metastasis. That sure would help when making decisions. I appreciate all of you sharing and your feedback. This is all so nerve-racking. Prayers for all of you ❤️

VS sounds like you’re in good hands at the mayo clinic. Yours sounds a lot like mine. I had my surgery in May 2024 a year later. I’ve just had my mammogram which was normal. I was lucky just to have radiation and the hormone pill after a lumpectomy I am 67 years old.  just curious as to how old you are because my doctor told me there was no need for genetic testing. They did onco test  only that number was 14 I don’t know if the genetic testing is done if you’re younger, but my breast doctor said there was no need for that

My initial biopsy also said no lymphatic vascular invasion, but when the final report came after lumpectomy there was vascular invasion my Dr says it’s just a different sample so strange

Hi Maureen. Thanks for sharing. I'm 56 and my surgeon said she isn't worried about it saying lymphovascular because same thing, different sample. Which seemed a little strange to me as well. I was pretty much told the same thing which is I really only need a lumpectomy, radiation, and hormone suppression. However, I'm still considering a double mastectomy because this is too stressful. I will know for sure after my last consultations with the radiation oncologist, the reconstructive surgeon, and have the PET scan.

VS  good luck with your surgery and your PET scan. I think you’re doing all the right things. I never had any scans. That was the other thing. My breast surgeon told me that going by what I had I didn’t seem to need any scans she said sometimes scans show a lot of false positive of different things and you end up looking for stuff that’s not there and she didn’t wanna put me through that to be honest with you. I didn’t wanna be put through that. I sort if just kind of went along with whatever the doctor said. I had my breast surgery a year ago and I’m still in a tizzy. I feel like it really never goes away. You go through every day life but in the back of your mind, you’re always worrying if there’s another cell somewhere in your body.

I had the same done; and ended up with a double mastectomy because of radiation necrosis. My DNA wasn’t or didn’t do well in the healing phase of my radiation therapy. I was the same diagnosis as yourself. I also was seen at the Mayo Clinic in Phoenix, Arizona, and I do not regret having to double mastectomy at all.

I was diagnosed with DCIS Feb 28 I had two lumpectomies each time finding more extensive than they thought as well as pagetoid spread toward the nipple. I am now awaiting double mastectomy, it is needed in the right breast where the cancer is and I am opting to do the left. This has been a rollercoaster wouldnt want to go through it again. I dont think I would be ok with the mastectomy though if I hadnt tried twice first. Everyones journey is individual and have to do what is best for YOU

Michelle; that is exactly what I went through; the cancer was more than they saw in the ultrasound and I had opted to have the left side removed as well. I don’t want to have to go through that again. So I don’t regret that the decision was made wrongly

U can't worry ur life away ! Just take it a day at a time . Worry is only gonna make u feel worse and life is too short . I've just fi ushed my 4 week radiation treatment and feel good bit I myself am thinking just have ur yearly mammogram and go fro. There it could backbto me too but I'm going to keep on everyday like it's my last ! That's what I would do .

Sally, me too, but i now refuse mamograms. .im 77 im not doing it anymore. Igave had 4 surgeries 2 different kinds of breast cancers, 40 days of radiation. 5 years of tamoxifen, i am over it. Itold my incologist in April , no more , she said ok, thry took my blood she said i will let you know if there is a problem. No call yet! Praise God!

Diana H I don’t blame you you’ve been through enough I pray all is well for you! I’m 67 and had lumpectomy at 66 I am on Leterzole and only had radiation When I had my yearly mammogram it’s nerve racking!

They put me on Letrozole after my pathology was completed. They said to slow things down while waiting for my surgery. I'm scheduled for June 18th lumpectomy with radiation. However, if anything comes back on that PET scan, then they can take them both.

I like their way of doing things I didn’t go  on letrozole until about a month and a half after my radiation was ended. My oncologist said something about he would rather me take the radiation without the hormone drug because something to do with the hormones. I don’t know what he was talking about seems like all the doctors have different ideas of what to do. I felt like it was a long time waiting to go on Leterzole result. Good luck being on it it does cause aches and pains, but it beats the alternative

Only you can make such a major decision, but I was told that cancer does spread from one breast to another. My cancer was invasive, stage 2a and in the lymph nodes. My on oncologist said cancer that spreads usually goes to the bones and vital organs. I asked what my was my chance of recurrence. I am on a hormone blocker. She said I have a low rate of recurrence, less than 20%. I went for a unilateral mastectomy.

Correction: Breast cancer does not spread from one breast to the other

My PET scan came back and showed nothing on the other breast 🙏. My surgery is scheduled for June 18th. I'm so excited to have this cancer removed from my body that I haven't had time to be scared. It's like I'm having an unwanted visitor removed from my house. 🖕 U cancer!

I was diagnosed with ER positive PR positive her2 positive DCIS. I also have invasive carcinoma stage 1. In April 2025 I had my first lumpectomy and the doctor could not get a clear margin. I had my second lumpectomy in May and they got a clear margin. I have to take an estrogen lowering medication and I have to have radiation. I don’t feel that I’ll ever be free from this mentally it’s typing its toll.

I had stage 0 DCIS diagnosed 3/25 and have had a lumpectomy and now on 20 Radiations,( had 5) I did genetic testing and it came back negative.( whew) My Oncologist is trying to push Tamoxifen on to me and I am kicking and screaming. Willing to try ANYTHING except that. Thoughts and support please !!