CommunitiesBreast CancerFrustrated by dangerous misinformation in breast cancer support groups?

Frustrated by dangerous misinformation in breast cancer support groups?

AE

Community Member

12 days ago

The amount of nonsense I see posted on breast cancer treatment and support groups is beginning to make me angry and depressed. Women advocating women with breast cancer to forego treatment, relying on religion for a cure and foregoing allopathic medicine approaches. I have nothing against religion, but it cannot, under any circumstances, cure cancer. Go ahead, ask your rabbi, pastor, priest, imam or other leaders. All the honest ones will reinforce my statement. I know someone who went to Mexico for 'holistic' cures. She was dead in 6 months. There is NO reasonable evidence based to support soursop or bitter apricot seeds, or any of the other crap I've seen recommended here, and on other social media sites. I beg you all. Stop posting unfounded nonsense. You will only hurt the women you purport to want to help.

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4 comments
Comment
MZ

Community Member

12 days ago

I’m with u . I know medicine. I was raised in a Dr.’s family and my brother just retired. He too was a Dr. and I’ve worked in a hospital. U are correct. Fortunately they’ve been working on cures for different types of cancer and they been making progress. Anyway anytime u want to have a discussion about this I’m here. Mary

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CA

Community Member

12 days ago

Your concerns about evidence-based treatment information are completely valid and come from a place of caring deeply about fellow patients' wellbeing. It can be emotionally draining to see potentially harmful misinformation shared in spaces where people are seeking hope and guidance during such a vulnerable time. Many community members share this frustration about unproven treatments being promoted without scientific backing. Finding the balance between supporting each other's journey while encouraging informed medical decisions is one of the ongoing challenges in cancer support communities, and your voice advocating for evidence-based care is valuable to this discussion.

JM

Community Member

11 days ago

You know people have the right to do what feels right to them. I personally understand that allopathic medicine has one lane. And one lane doesn't handle all issues. So yes I had surgery because I was comfortable that that was the right thing for me. But I will not do radiation or tamoxifen. Those things don't kill cancer they kill much more than the cancer. So if one were to look at a holistic view which is your lifestyle, your diet, your supplementation, You're stress factors and actually address those issues, in many cases the body can heal itself. Let's not judge each other for the choices that we make. It's actually nobody's business but the person who's dealing with the illness and choosing how they want to live. Dogma is not attractive especially here. And the whole religion thing is a dogma and a paradigm that is illusory in my opinion. Again this is not really the place for that in my opinion. But we know about opinions right...

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IR

Community Member

8 days ago

Amy, I definitely believe in God and my faith, and praying and support groups are definitely helpful, the power of prayer is divine, but as an RN, I definitely believe in accepting expert Oncology help and treatments as advised. I witnessed patients who opted for herbal and other non medical care, and they did not have good outcomes. I believe that God gives us wisdom and experts are thus guided by His care, protection, and support. Best wishes.

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