Has Anyone Been Diagnosed with Lobular Carcinoma?

I wish I knew what it was! I volunteer in a hospital chemo clinic so am going to find out on Friday as I like to be knowledgeable. Always learning just in case ! Good luck and sending hugs

I am! I go tomorrow to the oncologist to hear their findings and suggestions for treatment. I will let you know! I had a dbl mastectomy June 20.

I had lobular cancer. The cancer is in the lobes of the breast where the milk is made. It is not as common as ductual cancer, which seems to be the more common type of breast cancer.

I had both ductal left and lobular right had double mastectomy. Currently have been receiving chemo for the past nine months for the lobular which metastasized to my liver and spine. So far it has kept it from spreading farther but has not decreased any of the tumors. So yes it can be resistant to chemo but....

I went to my oncologist and I will be doing preventative treatment to help keep the reoccurrence rate down. 8 rounds of chemo (AC/Taxol) then radiation, then hormone therapy. I did already have the dbl mastectomy, negative nodes and clear margins, tumor was 8.6cm in L breast. HR+, ER+, HER2-

I had lobular in the right breast and opted for a double mastectomy because I've had multiple biopsies in both breasts in the past. Although the mammogram didn't show it when they sent to pathology it showed I had ductile non-invasive in the other breast. Obviously I'm glad I did them both at the same time. They sent it to the oncocytype lab or analysis. If you were over 50 and your score was 0 to 25 you did not need chemo. My score was 22 so I did not mean it nor did I need radiation.

Yes I had it. I had mestomey and harmone therapy with radiation therapy. My recurring score of 21.

I had a combo of ductile and lobular. Took the aggressive route, double mastectomy, chemo and radiation. Just started anastrazole and kisqali a few days ago. I wanted to do anything that gives me the best chance of never having it again. Do your research and fo what's best for you.

I have invasive lobular in left breast. I had a lumpectomy with oncoplasty (breast reduction). They took two lymph nodes that were negative. They sent all tissue from both breasts to the lab for analysis and it showed no sign of cancer in the right breast. I had 15 radiation treatments. My Oncotype score was 16, so no chemo. Now, I am on Arimidex for 5 years.

Many people in this community have experience with lobular carcinoma and understand the unique challenges it can present. Treatment decisions are deeply personal, and it's encouraging to see you actively researching your options and seeking input from others who may have walked a similar path. Connecting with fellow community members who have faced lobular carcinoma could provide valuable insights and support as you work with your medical team to determine the best approach for your specific situation.