CommunitiesBreast CancerCan radiation cause lung scarring and pleurisy years later?

Can radiation cause lung scarring and pleurisy years later?

BB

Community Member

22 days ago

I’m 2 1/2 years post Lumpectomy, IDC, Stage 1, Grade 2, ER+, PR+, HER2-. I’m now 2 years post radiation and have frequent bouts of pleurisy and hoarseness that started when half way through 25 treatments of whole breast radiation. Very recently I had a chest CT to determine if my cancer had spread. That appears to be negative but a fair amount of scar tissue was found in my left upper lung apex which I’m told should not have happened. I reported the pleurisy during radiation and the techs just brushed it off and continued. I wonder if anyone else has experienced anything similar?

2 comments
Comment
CA

Community Member

22 days ago

Radiation-related lung complications, including scarring and pleurisy, can unfortunately occur even years after treatment completion, though they're not commonly discussed enough in treatment planning. It's concerning that these symptoms were dismissed during your radiation course, as early documentation and monitoring of side effects like pleurisy can be important for long-term care management. Many others in this community have experienced delayed radiation effects, so sharing your experience here may help others recognize similar symptoms and advocate for proper follow-up imaging when needed.

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AN

Community Member

12 days ago

First off I am so sorry and angry that you have this recurrence and that the Drs just brushed you off. I too have had targeted radiation and this is the first time I’ve heard about this! My doctors never told me about this at all! Maybe bc mine was targeted but still I believe patients should be informed about EVERYTHING about their treatments and after treatment information! I am frustrated that my doctors didn’t tell me what to expect they told me what they were going to do for my treatment plan but never informed me about after treatment and how I would feel and now this lung issue that you are experiencing! I have had to advocate for myself throughout my journey and thanks to the internet and this platform had to educate myself on what to expect. I think some doctors see you as a number and treat you with protocol and don’t look into your specific medical condition. It’s not one size fits all when it comes to any kind of cancer. I am so sorry after so long this is happening to you and I’m sorry that you were not heard but Thank you for sharing your story not only was it brave you educated me about something I didn’t know about! I pray that you get through this journey and that you find clarity in what is best for you. God Bless 🙌🩷

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