Seeking honest opinions about Tamoxifen: Should I take it?

I never started Letrozole. I feel 100% strong in my decision. I talked with 2 oncologists and neither one wanted to answer any of the questions that I had. If the Drs. can’t be truthful, I figured that’s really saying something. My gut was telling me not to take it. Best of luck to you!

I’m taking it and so far I have terrible hot flashes and some moods.

Ladies thanks I am a very active person on fact off to walk the Camino in a month. Taking Tamoxifin scares the heck out of me and no one I mean no one says” I felt great on it “ If I have another DCIS or worse at my 6 month mamogram then it’s off with them !! Wondering if you all agree . I am really on a ban the poison mantra lol ( ps I work on a breast cancer ward as a volunteer at the infusion center so see and hear a lot !)

Hi All, I just went through a masectomy on June 12th. This is what I wanted the first time around, but I was talked out of it by my oncologist. Unfortunately, I didn't know anything about anything, so I trusted them. Now, almost 4 years later, I get diagnosed again. Now, I got a masectomy. The surgeon said I may have to go on the "chemo pill," but not much else was said. I haven't seen my medical oncologist yet because I'm not sure if they are the ones for me this time around. But, I have been thinking about these meds and leaning towards NO. I read so many bad things about them. We've already been through enough crap. I just don't know 😕 😞

I just got diagnosed with DCIS and my lumpectomy is scheduled for July 11,2025. What is the recovery time and is it difficult

Hi Gail, I'm sorry to hear that. I had a lumpectomy 4 years ago, and it was definitely an easier recovery than what I'm going through now. I remember going to work while recovering. I was able to do so. You will be in some pain and uncomfortable for sure. If they give you pain meds, take them for a few if you need to do so. Everyone heals differently, and the pain level is also different. But it will be ok. You will be ok. I will keep you in my prayers 🙏 ❤️

Thanks for your prayers it’s a scary feeling

It's absolutely 100% a scary feeling. All of it is scary. It's a lot.

You are very welcome 🙏 🤗

Nil T Hope your recovery goes well. Prayers 🙏 when you had your lumpectomy did you take hormones?

I did not take anything after the lumpectomy. Once chemo, lumpectomy, and 30 days of radiation were done, that was it. Other than other meds to help with long-lasting pain, I was left with. But eventually, I got off all meds.

I was told I would only need hormone therapy since my DCIS was noninvasive. I’m worried about side effects as I have already gone through menopause without any hot flashes mood swings nothing that normally happens.

Totally understand. That makes sense. On top of the cancer, 4 hears ago, I was fully pushed into menopause. So I did experience hot flashes big time. But I was also told that my chemo induced neuropathy doesn't allow your body to regulate your body temperature as it should. So it was a combo of things. Go figure, on top of everything else. Mood swings, idk. I was already mad at the world and snapped at everyone. Except for my granddaughter and grandson, who are now 8 and 9. They always made me 😊 happy.

Thank you for helping me understand some options. I wish you all the best in your journey to recovery. I appreciate your time. Sending prayers 🙏

Of course. Likewise!

I had a lumpectomy for DCIS in April Zero pain- did not have to take even one pill. 20 rounds of radiation. With minimal itching, burning, and a rash which with the right cream got me through it it’s now two weeks. Since my last session and everything is cleared up, I have a dent in my left breast where the surgery was and it is still slightly pink, but apart from that, no side effects, no pain. I hope this helps someone as hearing the word cancer is a scary part. The rest of it was not.

My only side effects are thinning hair and dry skin. I lost 11lbs the first 3 weeks on and never gained it back. I know some women do suffer on it but my Dr said most don’t, you only hear of those that do. Good luck

Also Gail if menopause was a breeze for you Tam might be too. Hormonal wise, pregnancy was a breeze, my periods weren’t bad at all and this is easy. Im 51 not in menopause yet

I appreciate all the positive feedback it makes it a bit easier to navigate my journey. I’m glad I joined this group you all have been very informative and sharing your journeys. Thank you 🙏

I don’t know why the medical oncologists are prescribing tamoxifen, that’s one of the first drugs to come out for breast cancer patients, my oncologist prescribed exemestane 25 mg- for 5-10 years and the main side effects are hot flashes (which I have anyway ) and joint pain. I have no problem with it

I started Tamoxifen on 4/21 and I also lost weight and continue to lose weight. Tam didn’t cause me any nausea but I can’t be sure because I take it at bedtime. It did cause me to have massive hot flashes and vaginal discharge is quite a bit. My oncologist referred me to a gynecologist that specializes in post menopause and has a menopause clinic. She initially put me on Effexor to help with flashes in January and after I had started Tamoxifen she added Venozah. It has been a Godsend for me.

I stopped it after a few months

Making treatment decisions can feel overwhelming, and it's completely understandable to want to hear from others who have walked this path. The experiences with tamoxifen vary widely among patients - some find it manageable while others face challenges with side effects. Consider discussing your specific concerns with your oncology team, as they can help weigh the potential benefits against risks based on your individual situation and explore alternative options if needed.