What to expect with double mastectomy for DCIS - newly diagnosed

I had ductal carcinoma in situ last year. Did not have mastectomy though. Had a lumpectomy followed by 4 weeks radiation and now am taking endocrine therapy for a total of 5 years.

I had a double mastectomy. If everything goes smooth, the procedure is tolerable. I made some hair appointments to have my hair washed and dried and it was a life saver. We bought a cheap rolling hospital table for our bedroom which was very helpful as well. Best of luck to you! 🩷

Facing a double mastectomy can feel overwhelming, and it's completely natural to want to know what lies ahead on this journey. This community has many members who have walked similar paths and can share their experiences about recovery, what helped them prepare, and how they navigated the process - their insights could be incredibly valuable as you approach your surgery date.

KB, what kind of endocrine therapy are you on?

I am on anastrozole. I am toughing out some increased joint pain right now. Saw oncology 2 weeks ago and they said if it doesn’t improve i could do a “washout” and restart with a different AI.

I had a lumpectomy and onco plastic breast reduction in both breasts on 10/28. I am astonished at how good I feel, no pain and I can move around freely. I have to really remember to honor my restrictions!!! While I didn’t have full mastectomy, I hope this can give you some hope and comfort that the process is not as scary as it seems.