Community Member
6 months agoHow many of us complete the years they’re recommend to be on a hormone blocker succeed? I find these side effects are horrific at times.
Accepted Answer
Treatment completion rates for hormone blockers vary widely among patients, and the decision to continue or modify treatment is deeply personal and should always be discussed with your medical team. The side effects can indeed be challenging, and many community members share similar experiences - connecting with others who understand what you're going through can provide valuable support and practical tips for managing difficulties during treatment.
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Community Member
6 months agoHi, I did first time around for 7 years. It returned 5 years after I stopped it.
Community Member
6 months agoLynette may I ask if it came back the same cancer or more aggressive? Carol I know of 2 women who never had their cancer return 40+ years on. They were both on chemo though. I’m just tamoxifen so I def worry
Community Member
6 months agoJennifer as far as I know it’s the same.
Community Member
6 months agoDo you think it came back because you stopped it?
Community Member
6 months agoI also Just consume tamox without chemo or radiation, after 2,5 years mastectomy and tamox it came back again, so I did my surgery again. I asked my doctor why I didnt have chemo or radiation like others, my doc said because of my type is hormonal. Still confuse...any suggestion about this..thank you
Community Member
6 months agoHi Alexa, Hormonal cancers still get chemo if they are aggressive. Mine is not (Ki67 of 2). Chemo will only benefit fast growing cancers. My Oncotype was also 15 so fell below the threshold. If you have a mastectomy you usually don’t get radiation bc the surrounding tissue has been removed. I’m sorry it returned. I’m almost 1 year out post surgery and always nervous of a return.
Community Member
6 months agoI had the hormonal kind of cancer and had breasts removed and radiation. Carol, I wonder if you have the Triple Negative Breast Cancer? Because it’s harder to treat, has been tested less, because it’s more uncommon.
Community Member
6 months agoHi Jeniffer you also got only tamoxifen without Chemo like me?
Community Member
6 months agoI also did not get chemo because my type wouldn’t benefit from it: Mucinous Carcenoma
Community Member
5 months agoI was told i’d be on tamoxifen for 5 years. This is my 3rd year in October, but now they say I will be on it for 10 years. The side effects are definitely real. I have taken a couple “breaks” from tamoxifen, only to go back on because I get scared.
Community Member
5 months agoMy daughter had triple negative. I had estrogen positive. She is well after 7 years but went to hell and back as a 49 year old but today works out 5 days a week and is just fine. With triple negative the ONLY answer is MD Anderson or the Mayo. Per my daughter’s research.
Community Member
2 months agoTreatment completion rates for hormone blockers vary widely among patients, and the decision to continue or modify treatment is deeply personal and should always be discussed with your medical team. The side effects can indeed be challenging, and many community members share similar experiences - connecting with others who understand what you're going through can provide valuable support and practical tips for managing difficulties during treatment.
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