CommunitiesBreast CancerLiving with Terminal Cancer: Thoughts and Experiences

Living with Terminal Cancer: Thoughts and Experiences

KB

Community Member

a year ago

Well. I've been on Ibrance and Letrizol. There was a lump in my left breast. It has metasticized into my bones. Doing quite well for 4 years. Side effects of rx ..diarrhea use ammonium ad and Anti reflex med for irritated stomach..both otc. At first I just could not believe my always reliable body had turned against me. I've modified that to be an alien invasion in my body. I live alone and am retired (73). I was a flight attendant for 40 years. Not a healthy job. I don't know where this came from but it could be a million sources during my lifetime. The med industry has been doing a great job giving us more time. Personally I think they will find the switch that causes our cells to consume our bodies. But it sure seems an awful lot of people have some form of cancer. I'm actually shocked at the thousands of people at my cancer treatment here in Seattle. It seems more like a raging virus to me. So, I know I am going to die from this. I'm in a clinical study..I asked for that because I do not have the funds to pay for treatment. So I'm lucky and thankful for that. We are all gonna die from something so death is a common denominator of life. I am not afraid of death ..at all...it's the process I object to. It's been said, "I don't have a problem with death...I just don't want to be there when it happens." I just feel like I am in limbo. I'm procrastinating "getting my affairs in order". Slowly but surely. It sure affects things you do. I did get a dog but I already have a home for her. (Good friends that really want her...they can hardly wait...said in a joking way". The only thing is..i will not suffer. There is just no way to just let it go with terrible pain and becoming disabled as the body shuts down. I would never let my animals suffer like that. I have talked to my Dr about physician assisted death. I think the European clinics are wonderful in the way they do it. I believe it's a basic human right to live a quality life. I've kind of lost my drive. I am noticing more fatigue. I guess I'm just kind of waiting to die. I find it difficult to share this with my friends. It's not something you can empathize with if you haven't been through it. I mean, they all know but I don't like to go into detail. Besides I cry if it becomes a big discussion and I just believe that is grief. I am not dying of cancer...I am living with cancer..it will kill me..Just not today. How do you all deal with this?

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accepted answer

Accepted Answer

Living with advanced cancer brings unique challenges that many people find difficult to put into words, and this honest reflection captures the complex emotions of finding meaning and purpose while facing an uncertain future. The feelings described here - the procrastination, fatigue, and sense of being in limbo - are incredibly common among people navigating terminal diagnoses, and finding ways to continue living fully rather than just waiting can make a meaningful difference in quality of life and emotional wellbeing.

3+ patients found this helpful

LA

Community Member

6 months ago

Sending you heartfelt prayers 🙏🙏🩷🩷 I have read a lot of stories since my diagnosis over the past year probably about over 200 stories. Some of the stories include survivorship with metastasis going on many years using the medicine as treatment. Have you spoken to your CANCER CENTER for advice? You may be expecting the worst when the treatment can continue for you much longer. I’m just saying as I’ve read a lot of stories where people are surviving much longer than expected. Many blessings to you🙏🙏🫶🏼❤️

KB

Community Member

6 months ago

Thank you for your thoughts. I have spoken to my team. I'd love to have a community to talk to. But it doesn't seem to exist...or be organized. I'm in a strange place mentally and I do not know how to change it. I actually think I am somewhat exhausted from the Covid plague, Trump, California burning up... I think i have to turn off the news and walk my dog more. I don't know.

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LA

Community Member

6 months ago

I relied on my breast cancer support groups when I was first diagnosed. I joined two. I also made contact with phone support help lines. I found them to be most helpful and provided resources in my area and took the time to discuss my concerns. It’s a free service and the two that I used are excellent. Americancancersociety.org SusanGkomen.org (counselors are available) We don’t need to figure this out on our own. There is a lot of help out there. Many blessings to you 🙏

1
CA

Community Member

2 months ago

Living with advanced cancer brings unique challenges that many people find difficult to put into words, and this honest reflection captures the complex emotions of finding meaning and purpose while facing an uncertain future. The feelings described here - the procrastination, fatigue, and sense of being in limbo - are incredibly common among people navigating terminal diagnoses, and finding ways to continue living fully rather than just waiting can make a meaningful difference in quality of life and emotional wellbeing.

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