Community Member
a year agoHello fellow BC Warriors!! I am 55 years old and was diagnosed with HR+/HER2- Invasive Lobular Carcinoma in September. I’ve had two lumpectomy surgeries to include 5 lymph nodes. Cancer is stage 1 and lymph nodes were clear. I am post menopause. I am scheduled to start radiation treatments tomorrow but due to an error at my oncologist’s office, we do not have my Oncotype DX results. Initially, he wanted me to hold off on treatment until we received this score but now, he wants me to proceed without it. I’m confused by this sudden change. I know he’s experienced in this field but I can’t help but to be reluctant to begin radiation without knowing what my score is. Also, because the cancer was in my left breast (about 10 o’clock), I am concerned about the long term affects of this treatment to my heart. Am I being overly dramatic by wanting a cardiologist to also monitor me during and after treatment? Do any of you have any thoughts or advice you could provide me? Thank you!!!!
Accepted Answer
This is such an understandable concern, and many patients face similar decisions about treatment timing and coordination. Having missing test results when treatment is scheduled to begin can feel really unsettling. Consider asking the oncologist to clearly explain the reasoning behind the change in approach and whether waiting a bit longer for the Oncotype DX results would significantly impact treatment effectiveness. Regarding heart monitoring during left-sided radiation, this is a legitimate consideration that many patients discuss with their care teams - bringing up the cardiology question with the radiation oncologist could help clarify whether additional monitoring would be beneficial in this specific situation.
3+ patients found this helpful
Community Member
5 months agoI had radiation on the left side, 20 treatments. They had me do breathing techniques to keep the affected area away from my heart. It was 2 years ago and I have no side effects. I do high intensity exercise frequently and have no issues with my heart.
Community Member
5 months agoHi had radiation 5 yrs ago left side with breathing technique. I would agree to have follow up with cardiology. I'm glad Julia is doing well. However, I do indeed have cardiac issues related to the radiation and I am followed by Cardiology you are advocating for yourself NOT being overly dramatic. Good luck take care
Community Member
5 months agoMy left breast also had the cancer. I hadn’t thought bought being followed by cardiology. I did know about the breathing technique. I meet with my oncologist Tuesday so will bring it up with her.
Community Member
5 months agoSo they aren’t doing the breathing technique on me. I’ve had 4 treatments so far and they told me that they wouldn’t need to do that for whatever reason and they won’t be consulting with a cardiologist. I don’t understand but I will be speaking with my oncologist about my concerns. Laurie, you are right! I guess we do need to advocate for ourselves because who else will?
Community Member
5 months agoMy radiologist said no damage to heart and mine was on left side. They zoom in to the breast . I asked my cardiologist and he agreed.
Community Member
5 months agoI had a cardiac stent just before my diagnosis. I did the breathing technique and had ultrasound before and a few months after. No cardiac issues from radiation but did develop a little pulmonary fibrosis
Community Member
5 months agoDrs are weird
Community Member
5 months agoI am currently doing radiation on the left side and hold my breath (not more than 20 seconds each time) during the actual treatment to move my heart out of the way. The radiation techs are quick to tell me to take a deeper breath if my heart needs moving out of the way. In addition, my radiation oncologist made a special plate that they put on the machine to keep my heart from being affected. I guess time will only tell whether I will have any impacts to the heart. However, never feel that you are being dramatic or overly cautious in advocating for your health. Mental health is as important as physical health, and part of mental health is feeling comfortable with your treatment plan. Gentle hugs!!
Community Member
5 months agoI just had an echo on my heart yesterday and will have one every 3 months to monitor my heart due to chemo. I’ll bring this up to my radiation oncologist once I get there but absolutely! Advocate for yourself! There is no stupid question and honestly there’s no question they haven’t heard before so ask away. You are the project manager of this cancer and the doctors and nurses are members of your team. You make the decisions that are best for you.
Community Member
24 days agoThis is such an understandable concern, and many patients face similar decisions about treatment timing and coordination. Having missing test results when treatment is scheduled to begin can feel really unsettling. Consider asking the oncologist to clearly explain the reasoning behind the change in approach and whether waiting a bit longer for the Oncotype DX results would significantly impact treatment effectiveness. Regarding heart monitoring during left-sided radiation, this is a legitimate consideration that many patients discuss with their care teams - bringing up the cardiology question with the radiation oncologist could help clarify whether additional monitoring would be beneficial in this specific situation.
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