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Has anyone refused rectal cancer surgery due to concerns about getting a stoma bag?

KA

Community Member

3 days ago

Hi, I everyone! So sorry to hear about what you all are going through. Apologies for the length of this!Just diagnosed with rectal cancer after a colonoscopy (& concurrent polypectomy of the huge polyp/tumor found, shown to be cancerous with unclear margins ) which I chose to do on my own, but took a month to schedule with a gastroenterologist! Anyway, I immediately switched to a top surgeon at MSK. After MRI & CT there showed Stage 3, however, (fortunately, CT scans were clear!) the entire team met and offered me 2 options; immediate surgery to remove most of rectum, etc., or waiting 6 weeks for a second MRI to see how much of what was shown could actually be inflammation from the polypectomy. I quickly chose Option 2, which they recommended. Here is my question for all of you: Has anyone refused surgery because they just could not live with an ostomy/illeosomy/etc. involving a bag? This top surgeon says he never does surgery without putting in at least a temporary stoma (and not to trust any surgeon who says he can do this surgery without one.) While that can often be reversed months later, my research shows that's not always the case. If the second MRI does still show the cancer, I am willing to go through chemo, radiation, etc. Not a candidate for immunotherapy, unfortunately. The doctor says they will still treat me even if I refuse surgery. Has anyone else out there chosen this path? Thank you so much for all your help!

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