Where can I find support from other stage 3 colorectal cancer survivors?

Connecting with others who truly understand this journey can be incredibly meaningful and healing. There are several wonderful places to find community with fellow stage 3 colorectal cancer survivors, including online support groups through organizations like the Colorectal Cancer Alliance, Fight Colorectal Cancer, and local cancer centers that often host survivor meetups. Many survivors also find valuable connections right here in communities like this one, where sharing experiences and supporting each other becomes a source of strength and hope.

I am going through it right now.

I was diagnosed with stage 3 in July 2024. Went through surgery and 14 rounds of FLOX chemo (I wasn’t able to do FOLFLOX). I finished chemo Feb 2025 and was NED until Nov when the signateta text came back positive. After several different scan they found omit had spread to my liver. I just had a partial hepectomy and hope to test clear again for awhile.

Hi. I was diagnosed with Stage 4 MSI High Colon Cancer on March 20, 2024. They told me I had 6 months but they would try and buy me some time. Because of the tumor type (MSI High) I was given Keytruda (immunotherapy) and I immediately became a vegan to lower the toxicity I was putting in my body. Within 6 months my scans were clean and I am no evidence of disease. My oncologist said I needed to continue the Keytruda for two years to make sure the cancer would not return so I am still on Keytruda every three weeks until April 1st 2026 when I will ring the bell.

I wish I had the same luck with Keytruda. It didn't work for me. Im now heading for radiation and chemo next week. Very scared.

Try not to be to afraid Sandra. I can't tell you everything is going to be alright, but everything's going to be alright. I know that doesn't make sense to most people but to people fighting cancer maybe it does. For me anyway!

And maybe you!

Have you been thru the same?

Hi Grace you had a partial hysterectomy? I hope your next tests come back clear as well.

Hi Sandra sorry to hear that. I’ve been through chemo, radiation, I had a colon resection and an Ostomy bag for 7 months, then an Ostomy reversal. I get blood work every six months and ct scans once a year. I’ve never had a Signatera test but will ask my oncologist about having one.

Hi Marcia that is great you are NED. April 1st will be here before you know it! Please share a picture of you ringing the bell, I’d love to see it.

I don't know exactly your journey Sandra but I'm stage four colon cancer with surgeries and different chemotherapy treatments and the whole nightmare show, so all that being said yea, sometimes I'm mad, sometimes I'm scared shitless but I truly believe it's all going to be alright!

Im trying my best to stay positive. Some days are easier than others for sure.

Hi Christina. I had a partial hepectomy which means they cut a tumor out of my liver. I just found out liver resection is only possible in about 50% of cases so I count myself lucky.

You are lucky Grace, they told me I couldn't have it cut out of my liver. It's in too many places. They put me on maintenance chemo about 3 months ago because my treatment had stopped the cancer in its tracks this time. They told me yesterday after my scan I had to go back on full dosage and radiation would be reaching out to me, it seems the main tumer in my liver has grown by 20% in the last 2 months. Also did another gaurdiant 360 test, which I am happy about. So all that being said, man I'm scared again. There don't seem to be no way to get on top of this crap!!! But I do know one thing, it's going to be alright!

James, I am so sorry to here that. They found my matasticy early using ctDTN testing. My insurance continues to refuse to pay for the testing saying it's not medically significant. But it's medically significant to me! It's $4900 every 3 months but the testing lab says they won't charge me (thank God). I don't think I could go on chemo again given how sick I got the first time round. I wish you luck in your journey.

@grace, I am still learning all the new medical cancer terminology, what does NED mean,?

@Rochelle NED = No evidence of disease 😊 So many terms to learn. I just got diagnosed with breast cancer (yes 2 different cancers in 2 years) and am learning a whole new set of terms! Good luck to you.