Has anyone done Irinotecan/Cetuximab for Stage 4 CRC?
Community Member
a month agoHas anyone with Stage 4 CRC been on an Irinotecan/Cetuximab regimen? 2 years ago I went through 14 rounds of FLOX and almost died from 5-FU Toxicity. They said I was most likely cured. 10 months later it showed up in my liver. They said that was normal and surgery would “cure” me. Now 4 months after having that surgery I have another tumor in my liver AND a lymph node near my hepatic artery. The oncologist says they won’t operate because it wouldn’t be curative and I need to go back on chemo. They can’t give me FLOX again so they’re proposing irinotecan & cetuximab every 2 weeks. And even with the chemo they are telling me I probably only have 2 years to live. I’m 62 yo and have a husband and disabled son at home. I’m not ready to leave yet. I’ll do whatever it takes to live as long as I can but I’m afraid of the side effects. I went through so much last time. If anyone has been on either or these drugs and can tell me how they faired I’d appreciate it.
Community Member
a month agoThis treatment combination is used for stage 4 colorectal cancer, and many community members have shared their experiences with both irinotecan and cetuximab here. Each person's response to treatment can be quite different, so connecting with others who've been on similar regimens might provide valuable insights about managing side effects and what to expect. The fear about treatment effects after a previous difficult experience is completely understandable, and discussing specific concerns with the medical team can help with planning supportive care measures.
Community Member
a month agoI was that treatment but after only my first treatment with this regimen it was stopped due to the intense rash that erupted all over my body and I also formed serious breathing issues so I will be starting yet another treatment on the 21st. If you get any of these issues from the cetuximab and chemicals it's made from, be sure to let your Oncologist know IMMEDIATELY. Good luck to you and to all of us in this community 🙏
Community Member
a month agoThanks for the info William. I've read about that rash! Sorry you had such a bad time of it. Hope the new cocktail is better.
Community Member
a month agoThank you Grace. Please keep me posted and I will do the same. We shall all continue to march forward!!! 🙏💪
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