Gastrointestinal Stromal Tumors

Anyone else had GIST tumor surgery after Gleevec treatment?

Hello I am new to this sight, was diagnosed on 12/23/23 6cm tumor where small intestine meets my stomach started taking Gleevec on 1/6/24 tumor shrunk in half by May and had surgery to remove the tumor been clean since still take 400 MG Gleevec every day and have a scan and bloodwork every 4 to 6 months. Anyone else have a similar experience?

How do others cope with GIST treatment fears and side effects?

Hi I was diagnosed in July 2015 with rectal GIST. They thought it was a fatty benign tumor and because of the large size they left some tumor behind. At pathology it was GIST exon 11 very high risk. I received 400mg of Gleevec every day until now and I have to take it for life I am complete response and never had a recurrance I have developed a liver and pancreatic problem, had to stop Gleevec for one month while undergoing many scans, procedures and blood tests. My liver enzyme are back to normal for now, I am back on Gleevec. The outcome of all the scans are inconclusive Common bileduxt 16 mm and pankreatic duct in head 6 mm. On my EUS there was nothing found, but because of the enlarged ducts I have to be observed with a scan every 6 month. I also have a tongue displasia that is treated for years with many biopsies and surgery. This is my Story. I am always very scared and thankful at the same time that I have life to this day and hopefully more in the future. I am also happy to have found this place where I can share my cancer. I am very thankful Manuela

How Do You Combat Your Gist?

Good morning and let's stand strong! What are some of your methods to combat your gist?