Communities›In Treatment For Breast Cancer

In Treatment For Breast Cancer

Connect with others currently in treatment.

104.6K members

Is Tamoxifen Making My Mood and Blood Pressure Worse?

JD

Community Member

4 days ago

I started tamoxifen 29mg a few weeks ago. I was already going through perimenopause as I am 47 years old.i have a history of mental health issues along with being a recovering addict and alcoholic. Prior to starting tamoxifen I was already on an emotional rollercoaster. I am now feeling so unstable, not worrisome but much worse than before. My blood pressure has gone from 110/60's to now 150/90's range along with supercharging my perimenopausal symptoms. I had a double mastectomy Aug 5th 2026. I almost feel like I don't want to take it anymore. I will be discussing with my oncologist but just wondering if anyone else felt the same. As a reference I had IDC stage 1c.

1 comment
Comment

Should I have my ovaries removed at 74 with BRCA2 and stage 1a breast cancer?

MA

Community Member

6 days ago

I have the BRCA2 gene. My breast cancer is stage 1a . Because of the risk of ovarian cancer it is recommended that I have my ovaries and fallopian tubes removed. My CA125 and pelvic ultrasound are normal. I am 74. I would welcome advise

1 comment
Comment

Can aromatase inhibitors cause blood in urine?

MA

Community Member

2 days ago

Has anybody post menopausal on letrozole or any other aromatase inhibitor for breast cancer ever had microscopic blood in a urinalysis?

2 comments
Comment

Was your medical port defective during chemo?

DV

Community Member

10 days ago

I just found out my mammogram negative but it also... I got Smith medical port which is unresolved as a deficiency error medical part error that was put in my body 2 1/2:years ago w I took my meds thru IV port and my chemo and i had complications and there's a list of things that could happen to you so I was kind of curious yesterday so I went back online email the FDA about the the medical Port that was in my chest if I vein and the plastic was going into patients body it was mal functioning and it was supposed to be taken out February 25th and never did till 3 or 4 months ago and I found out about this via email by FDA recall so error accident that some of the smith medical ports that we use for medicine so I was curious yesterday because I'm trying to get some billing and everything together because you know how the billing is with Medicare when it comes to paying for your services and your safety while apparently they told me the port is still an unresolved problem which is me patient also and I am like I am right now I am ..baffled that no one has called me on my team my medical team that who are supposed to be taken care of me I get bounced around so much your head would spend only if you have a complication trust me I'm at practicing volunteer taking care of myself and dad LPN and I am appalled at the error when they make an error how long it takes for somebody to pick up the phone and tell you unless you do your own work and I want to thank f or even sending me this information and doing the research for me improving it was defective but I got like I said I double checked yesterday so the problem is still un resolved I'm a problem the medical part that they put my body that's no longer there and they should be paying for everything of I almost died I'm telling you when it comes out it fractured 7/2024 skull that was part of smith medical port issues a lot of complications it wasn't working correctly that they everybody want to turn the other way and if you're baffled I think one doctor told me it could have been your medicine and thank God some acknowledged me that I was even being and I want and it wasn't my fault hematoma on my eyes everything is your fault when something is not okay in the hospital including technologies a mess ..three x this week I was compromised by the health I got this for my AT&t phone. I go they should use that to pay all our bills Medicare bills that it's a good day anyway if anybody else has this give me I me email me back or text me bye-bye I got to go take care of my dad I just got the covid last week so I'm so recovering so now I'm no longer a random group cuz I'm a controlled group now because I finally got covid 19.. who Harrisburg get your story straid tech 150/2015 doc # have a gooday .. ✝️😷😘

2 comments
Comment

Would You Do Breast Implant Exchange Again?

DI

Community Member

4 days ago

I'm scheduled for breast implant exchange at a same-day surgery center. This surprised me. Has anyone else experienced this and would you do it again?

7 comments
Comment

Has anyone done Zometa infusions with long-term anastrozole?

AS

Community Member

19 days ago

I am on anastrozole for 10 years and my oncologist suggest zometa infusions for the next 10 years as well. Is this the case for anyone else?

2
5 comments
Comment

Why am I having severe pain on Tamoxifen?

AB

Community Member

a month ago

I quit taking my Tamoxifen I had small tumor hormone positive low score I had lumpectomy and radiation treatment im 44 so they want me to start menopause since thats what my cancer feeds on but I cant take the pain it just hurts so much I think im taking like 20 mg it just makes me hurt to my very bones my joints and I have never felt anything like it also my grandfather died from pulmonary embolism and that is exactly what Tamoxifen warns u for side effect that can happen as well as ovarian cancer and uterine cancer and I guess I just am wondering like I thought I got out my cancer like why do I need to continue to take this for five years it takes away my sex drive I can barely move my eye sight is getting worse my teeth are breaking like what the hell is happening to me and how come I have to take the same amount as other high risk recurrence also was wondering if there are any women who never have gotten a recurrence is there such a thing? Or is it for sure we are going to get it back once we got it . .. Thanks.

1 comment
Comment

How long should you wait for breast implant surgery after mastectomy?

DI

Community Member

a month ago

I've completed my expander fills and am ready to schedule the implant exchange surgery. I've read that it should be a minimum of three months from my bilateral mastectomy. Is that what others have been told?

2 comments
Comment

How do you manage side effects from CDK4/6 inhibitors like Verzenio?

PP

Community Member

19 days ago

I'm taking Verzenio (abemaciclib) as targeted therapy for my early-stage breast cancer. My oncologist explained that it works by blocking CDK4/6 proteins that cancer cells need to divide. I'm using it after surgery to help reduce the risk of cancer returning. I've been dealing with some challenging side effects lately, including severe back pain, diarrhea, and significant hair loss. I have an appointment with my oncology team tomorrow to discuss these symptoms. I'd love to connect with others who have experience with this treatment approach and hear about your journey. • How did you manage side effects while on CDK4/6 inhibitors? • What was your overall experience with this type of targeted therapy for early-stage breast cancer?

2 comments
Comment

What does bolus do during radiation and will it cause skin damage?

ME

Community Member

a month ago

A bolus with radiation?? I've had radiation twice before on the right side and of course it returned on the left side! I just started radiation on the left and they used a bolus?? Nobody told me ahead of time they were going to use this and I'm furious!! I can't stand it when they just "DO" something to me without telling me!! I knew it was to make it stronger but I'm wondering how much stronger?? I've been very fortunate that the right side never got the blisters or peeling skin ...I'm guessing this is probably going to happen using bolus?? If you had a bolus used how bad was it?

1 comment
Comment

New to the community?

Create an account to connect with others navigating cancer.

Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.