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In Treatment For Breast Cancer

Connect with others currently in treatment.

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What's it like living with Enhertu for HER2+ breast cancer?

DB

Community Member

4 days ago

I have advanced HER2-positive breast cancer and have been receiving trastuzumab. My doctor mentioned that Enhertu (fam-trastuzumab deruxtecan) might be considered if my current treatments aren't providing the response we're hoping for. From what I understand, it combines trastuzumab with a chemotherapy agent that's delivered directly to cancer cells. I know side effects can include fatigue, nausea, and potential lung problems that need monitoring, but I've heard many patients tolerate it well with proper supervision. I'd love to connect with others who have similar diagnoses and hear about your experiences. • If you've been on Enhertu, what was your day-to-day experience like and what helped you manage any side effects? • What do you wish you had known before starting this treatment?

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Why am I getting diverticulitis during chemo?

CM

Community Member

4 days ago

Hello… I’m new here. I have IDC stage II, Grade 3, Oncotype score 35. DMX with reconstruction. I started the Red Devil chemo 2 weeks ago but trying to understand why I’m not on TC. Theo days after my DMX I ended up in the hospital with my first ever diverticulitis attack. I had my second attack last week and was in the ER again. I’m hoping there is someone else that can share similar experience because I’m scared to continue my chemo regime this Thursday because diverticulitis is so painful. I felt like I was in labor both times. 😢

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Is Zometa infusion safe? Side effects and concerns

PD

Community Member

5 days ago

They want me to do Zometa infusions every 6 months has anyone done this treatment I am concerned about the side effects loosing teeth holes in jaw bone loosing hair. I am up in the air about this

2 comments
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What side effects does Kisqali cause with fatigue?

CN

Community Member

5 days ago

I am taking letrozole and kisqali. I started another 3 week round on kisqali and feel very fatigued and shaky. Anyone else have these or other symptoms?

15 comments
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Has anyone tried palliative care alongside treatment?

ME

Community Member

22 days ago

Palliative anyone?? I decided to give palliative a call and see what they can do for me. I'm curious if anyone has used/added palliative care to their treatment.

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How can I manage severe chemo side effects?

JO

Community Member

22 days ago

Hi everyone, My name is Joanne and I just joined. I was diagnosed with DCIS estrogen negative in 2023. I had a lumpectomy and did radiation. I continued to have mammograms every 6 months, and all was good until last October when they spotted what they believed was probably fat necrosis from the surgery, so they labeled it "probably benign". I had another mammogram mid April of this year and another ultrasound and again "probably benign ". I felt a good size lump in the same exact area they'd been watching on Mother's Day and it turns out it is a tumor. I really wish a biopsy was done last October but I was told they don't biopsy every suspicious spot. I say bs, I had cancer in this breast less than 2 years prior you should definitely do a biopsy. Anyway, I started chemo on July 16th and I had a horrible 9 or so days, with, pain from the shot they give the day after that heightens your white blood cells, constipation which then lead to diarrhea for almost a week straight, dehydration and I also had a mouth sore and thrush. Oh and a sinus infection! I have my next chemo scheduled for August 10th and I am so afraid to go through it all over again. After 6 treatments of chemo which are every three weeks I have to have a mastectomy then 6 more months of chemo. Thank you for letting me share this. If anyone has had any similar reactions to chemo and can offer any possible help with side effects it would be greatly appreciated. ❤️

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4 comments
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How do you manage severe hot flashes and anxiety on Arimidex?

JB

Community Member

5 days ago

I'm currently taking Arimidex (anastrozole) for breast cancer and dealing with multiple side effects. I'm having very severe hot flashes, joint and bone pain, fatigue, and severe anxiety with emotional distress. My doctor explained that these symptoms are commonly linked to this medication since it works by lowering estrogen levels. I plan to contact my oncology team to discuss these issues, but I'd love to hear from others who've been through similar experiences. • What helped you manage severe hot flashes and anxiety while on anastrozole? • What tips do you wish you'd known when dealing with these side effects?

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Why does chemo nausea get worse and how do I manage it?

TU

Community Member

22 days ago

i’m tonja. 5 weeks of chemo and the nausea was worse this time. I thought it ended. wrong but didn’t last too long as soon as I ate a yogurt. my mouth is sore so I need a super soft toothbrush. gotta snack every couple hours to avoid the nausea.

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How can I manage chemo side effects on eyes and nails?

CT

Community Member

5 days ago

Hi Everyone! I started chemo on Feb 26 (my 45th birthday) and just had my last infusion this past week. I started with 4 Red Devils every 2 weeks, then 12 weekly Taxol infusions. At this point, my eyes water constantly to the point where it looks like I’m crying. I can’t wear my contacts or any eye makeup or lashes. By the end of the day they are red, crusty and irritated from wiping them. My doctor has given me antibiotic eyedrops, but they do not help. I’m also having issues with my fingernails. They are lifting as I’ve heard can happen, but they also seem to be infected underneath. They seep a yellowish foul smelling liquid anytime I grab something or bump my nail on something. I have a taken 2 different oral antibiotics for this and neither seemed to do anything. Has anyone else experienced these symptoms, and if so, what have you found to help? I’m desperate to get both of these issues to go away!

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3 comments
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What are the side effects of Eribulin for cancer?

TS

Community Member

a month ago

I am going to start Eribulin this week anybody know what the side effects and how it works on the cancer cells

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