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104.1K membersHas anyone done Zometa infusions with long-term anastrozole?
Community Member
7 days agoI am on anastrozole for 10 years and my oncologist suggest zometa infusions for the next 10 years as well. Is this the case for anyone else?
Why am I having severe pain on Tamoxifen?
Community Member
9 days agoI quit taking my Tamoxifen I had small tumor hormone positive low score I had lumpectomy and radiation treatment im 44 so they want me to start menopause since thats what my cancer feeds on but I cant take the pain it just hurts so much I think im taking like 20 mg it just makes me hurt to my very bones my joints and I have never felt anything like it also my grandfather died from pulmonary embolism and that is exactly what Tamoxifen warns u for side effect that can happen as well as ovarian cancer and uterine cancer and I guess I just am wondering like I thought I got out my cancer like why do I need to continue to take this for five years it takes away my sex drive I can barely move my eye sight is getting worse my teeth are breaking like what the hell is happening to me and how come I have to take the same amount as other high risk recurrence also was wondering if there are any women who never have gotten a recurrence is there such a thing? Or is it for sure we are going to get it back once we got it . .. Thanks.
How long should you wait for breast implant surgery after mastectomy?
Community Member
12 days agoI've completed my expander fills and am ready to schedule the implant exchange surgery. I've read that it should be a minimum of three months from my bilateral mastectomy. Is that what others have been told?
How do you manage side effects from CDK4/6 inhibitors like Verzenio?
Community Member
16 days agoI'm taking Verzenio (abemaciclib) as targeted therapy for my early-stage breast cancer. My oncologist explained that it works by blocking CDK4/6 proteins that cancer cells need to divide. I'm using it after surgery to help reduce the risk of cancer returning. I've been dealing with some challenging side effects lately, including severe back pain, diarrhea, and significant hair loss. I have an appointment with my oncology team tomorrow to discuss these symptoms. I'd love to connect with others who have experience with this treatment approach and hear about your journey. • How did you manage side effects while on CDK4/6 inhibitors? • What was your overall experience with this type of targeted therapy for early-stage breast cancer?
What does bolus do during radiation and will it cause skin damage?
Community Member
21 days agoA bolus with radiation?? I've had radiation twice before on the right side and of course it returned on the left side! I just started radiation on the left and they used a bolus?? Nobody told me ahead of time they were going to use this and I'm furious!! I can't stand it when they just "DO" something to me without telling me!! I knew it was to make it stronger but I'm wondering how much stronger?? I've been very fortunate that the right side never got the blisters or peeling skin ...I'm guessing this is probably going to happen using bolus?? If you had a bolus used how bad was it?
What's it like living with Enhertu for HER2+ breast cancer?
Community Member
25 days agoI have advanced HER2-positive breast cancer and have been receiving trastuzumab. My doctor mentioned that Enhertu (fam-trastuzumab deruxtecan) might be considered if my current treatments aren't providing the response we're hoping for. From what I understand, it combines trastuzumab with a chemotherapy agent that's delivered directly to cancer cells. I know side effects can include fatigue, nausea, and potential lung problems that need monitoring, but I've heard many patients tolerate it well with proper supervision. I'd love to connect with others who have similar diagnoses and hear about your experiences. • If you've been on Enhertu, what was your day-to-day experience like and what helped you manage any side effects? • What do you wish you had known before starting this treatment?
Why am I getting diverticulitis during chemo?
Community Member
a month agoHello… I’m new here. I have IDC stage II, Grade 3, Oncotype score 35. DMX with reconstruction. I started the Red Devil chemo 2 weeks ago but trying to understand why I’m not on TC. Theo days after my DMX I ended up in the hospital with my first ever diverticulitis attack. I had my second attack last week and was in the ER again. I’m hoping there is someone else that can share similar experience because I’m scared to continue my chemo regime this Thursday because diverticulitis is so painful. I felt like I was in labor both times. 😢
Is Zometa infusion safe? Side effects and concerns
Community Member
4 days agoThey want me to do Zometa infusions every 6 months has anyone done this treatment I am concerned about the side effects loosing teeth holes in jaw bone loosing hair. I am up in the air about this
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