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6.8K membersWhat are real-world side effects of Xtandi vs Nubeqa?
Community Member
a day agoHello everyone. I've asked a question here in this forum before. I have a new one. I'm trying get some feedback on Xtandi and Nubeqa. Has anybody here been prescribed one of these drugs and what, if any, symptoms have you encountered?. Also how long have you been on the drug. I know it's typically used with Orgorvyx or other testosterone reducing drug or shot. I am presently on orgorvyx and wil start radiation treatment in a week. Following radiation, the medical oncologist has prescribed Xtandi. From what I've been able to see, while both are very effective, there seems to be more symptoms associated with Xtandi, in particular brain fog because of crossing the blood-brain barrier, fatigue, and possibility of seizures particularly for those who are prone to them. Nubeqa seems to have less or more moderate side effects from the papers I've read. Looking for some real-world feedback. Thank you Mike
Why the long wait for radiation treatment start?
Community Member
9 days agoIm Ed 79 yr old from Sw Florida. I was diagnosed with stage 1 cancer Gleason score 4-3 in April 4 2026. Reviewed it with my urologist and oncologist during April. I decided to put off radiation treatment until I returned from vacation July 3rd. Had another PSA review July 13. Met with oncologist Aug. 5. I was surprised now that my radiation wont start till Sept. 11 Also that the urologist didnt ask for gel spacers to be done when the seeded marker were inserted. Any similar experiences with lengthy waits for start times or gel markers not being used. I was told that there wasn't enough time to do the gel spacers.
Has Anyone Used Hyperbaric Oxygen for Radiation Cystitis?
Community Member
2 days agoHas anyone had hypaberrick oxygen? I had prostate removal May/24, radiation Jan/Feb 2025 and orgovyx June/24 thru Jul/26. Urinated blood a couple times, then totally unable to urinate. Admitted into hospital with scope procedure after 2 days of bladder irrigation. Diagnosis was radiation cystitis 18 months after radiation, thankfully not bladder cancer. Still in hospital with catheter, hopefully coming off today, and hopfully going home today. Dr. is subscribing hypaberrick oxygen. Has anyone had this? It's supposed to rebuild bladder/colon tissue after radition. Was it helpful, what else does it cause, good or bad?
Why Do Prostate Cancer Patients Get 28 Radiation Sessions?
Community Member
22 days agoLearn why 28 sessions of radiation is the new standard for prostate cancer care. Understand this moderate hypofractionation protocol, side effects, and benefits. https://outcomes4me.com/cancer-topic/prostate-cancer-treatment-and-side-effects/why-most-prostate-cancer-patients-have-28-sessions-of-radiation/

Outcomes4Me
Why most prostate cancer patients have 28 sessions of radiation
Learn why 28 sessions of radiation is the new standard for prostate cancer care. Understand this moderate hypofractionation protocol, side effects, and benefits.
How long does anxiety last after cancer treatment ends?
Community Member
13 days agoI had surgery two years ago, radiation early this year and finished ADT. Side effects continue in abundance. Second post radiation test PSA undetectable. I feel like I am now waiting for the other shoe to drop.
Is There a Free Genetic Test for My Prostate Cancer?
Community Member
a month agoClinical trial highlight! If you were diagnosed with prostate cancer or had a recurrence within the past year and have had or are planning radiation, you may qualify for a program offering free BRCA genetic testing and personalized clinical trial support. See if you may qualify: https://landingpage.outcomes4me.com/smartmatch/prostate/?utm_source=o4m&utm_medium=reach_out&utm_campaign=advocacy_group
How does catheterization work after surgery?
Community Member
a month agoI have a way of Surgery and catheterized what an experience and it seems to work
Why do I have leg pain at night on Orgovyx and Nubeqa?
Community Member
a month agoI have been taking Orgovyx and Nubeqa for almost 2 years after PSA rose from .7 to 1.9. PET scan showed lymph node involvement in pelvis, abdomen and neck, small spots but there nonetheless. PSA now <.01 so undetectable. For the last six months I have experiencing a dull ache uncomfortable feeling in legs at night that sometimes interferes with my sleep. Has anyone else experienced this? I welcome any insight our community can provide.
How do you manage Stage IV prostate cancer hormone therapy?
Community Member
2 months agoI have Stage IVB prostate cancer and I'm on a comprehensive hormone therapy regimen. My treatment team has me on multiple medications that work together - Relugolix (Orgovyx), Degarelix (Firmagon), Goserelin (Zoladex), Leuprolide (Lupron), and Triptorelin to reduce testosterone levels, plus Apalutamide (Erleada) to block testosterone from reaching cancer cells. My doctors explained this multi-medication approach provides maximum hormone suppression to help control disease progression. I'd love to connect with others who have similar advanced prostate cancer and hear about your treatment experiences. • If you're on a similar hormone therapy combination, what has your day-to-day experience been like? • What tips or strategies have helped you manage this type of treatment regimen?
How can I manage brain fog and insomnia on prostate cancer treatment?
Community Member
16 days agoI was diagnosed last September with advanced high risk prostate cancer. I’m on Abiraterone and Prednisone daily and a Eligard shot every three months. Besides the normal side effects of fatigue, hot flashes, etc, has anyone experienced brain fog and insomnia?
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