In Treatment For Prostate Cancer

How long does severe incontinence last after prostate cancer surgery?

I am 68, active, still working. Diagnosed with prostate cancer with a PSA of 28 in May of 24. Biopsies showed 3s, 4s, and 5s in the right globe of the prostate, but appeared to be contained in the prostate. Surgery in September, ‘24, and immediately after, doctor tells me it was not contained, he had to take more tissue, and mentions Gleason scores of 8’s, 9’s, and 10’s. Followed by 39 radiation treatments in February and March. I have done exercises, worked with physical therapists, etc, but my incontinence has been horrible (3-4 pads filled during a 6 hour span). I have used a condom catheter, but if it gets crimped, it leaks or comes off. During the process, I have had reactions to meds including elevated blood pressure, elevated blood sugar readings, sensitivity to sun, failure to tan, Mersa, and horrible hot flashes ( soaks my t-shirt to my waist, and my pants from my waist to my knees). My next step is an artificial sphincter installation. Hopefully that will let me feel like I have some normalcy in my life. I will complete my HRT therapy in October. So, 2 years of HRT therapy. I was on Lupron until it caused dangerous high blood pressure. Now I’m on Orgovix, and exemplify every symptom listed, including vision problems, weakness, fatigue …. I was ver healthy prior to the prostate cancer.

How do you manage fatigue while on Abiraterone and Lupron for prostate cancer?

Diagnosis of prostate cancer in Oct. 2014, Gleason score 7, removed Jan. 2015, 36 radiation treatments in Nov. 2015. Remission and undetectable til Jul. 2020, radiation 5 treatments, 2 years later 5 more. Been on hormone therapy, Abiraterone and Lupron shots since Dec 2023, PSA undetectable with mild fatigue. Walk and exercise every day, a nap here and there.

Has anyone tried Enzalutamide for stage 4 prostate cancer?

Stage 4 Metastatic Prostate Cancer. Year four of a 5-10 diagnosis. I’m doing ADT and Leuprolide quarterly infusions. Pretty darn successful!! Smile. I’ve read about Enzalutamide. My Oncologist said his recommendation is to continue present treatment, because it’s working. Anybody have personally experience with this? So curious…..

What to expect during prostate cancer monitoring after recurrence?

I have prostate cancer that has recurred after radiation treatment. My doctor explained that I'll be on a monitoring plan that includes regular PSA blood tests, physical exams, and possibly imaging scans to track my condition and help decide when additional treatment might be needed. I'm trying to understand what this monitoring phase looks like day-to-day and would love to hear from others who have been in a similar situation after radiation treatment. • What has your monitoring schedule been like, and how do you handle the waiting between appointments? • What helped you mentally prepare for PSA test results and follow-up visits? If you've navigated monitoring after prostate cancer recurrence, I'd appreciate hearing about your experience and any tips that helped you through this phase.

What's it like being on watchful waiting for recurrent prostate cancer?

I have recurrent prostate cancer after radiation therapy, and my doctor has recommended observation (also called watchful waiting). This means regular check-ups and monitoring instead of starting active treatment right now. The idea is to watch for any symptoms or signs of progression while avoiding more intensive treatments unless they become necessary. I'm trying to understand what this approach looks like in real life and would love to hear from others who have been in a similar situation. • If you've been on observation for recurrent prostate cancer, what has your monitoring schedule been like? • What signs or changes did you and your care team watch for, and how did you manage the uncertainty of waiting?

What's it like being on watchful waiting for recurrent prostate cancer?

I have recurrent prostate cancer after radiation therapy, and my doctor has recommended observation (also called watchful waiting). This means regular check-ups and monitoring instead of starting active treatment right now. The idea is to watch for any symptoms or signs of progression while avoiding more intensive treatments unless they become necessary. I'm trying to understand what this approach looks like in real life and would love to hear from others who have been in a similar situation. • If you've been on observation for recurrent prostate cancer, what has your monitoring schedule been like? • What signs or changes did you and your care team watch for, and how did you manage the uncertainty of waiting?

Should I consider watchful waiting for recurrent prostate cancer?

I have recurrent prostate cancer after radiation therapy, and my doctor has recommended observation (also called watchful waiting). This means regular check-ups and monitoring instead of starting active treatment right now. The idea is to watch for any symptoms or signs of progression while avoiding more intensive treatments unless they become necessary. I'm trying to understand what this approach looks like in real life and would love to hear from others who have been in a similar situation. • If you've been on observation for recurrent prostate cancer, what has your monitoring schedule been like? • What signs or changes did you and your care team watch for, and how did you manage the uncertainty of waiting?

How do you cope with knowing dormant cancer cells might still be there?

I have Stage IVA prostate cancer and recently read about how cancer cells can remain "dormant" or sleeping in the body after treatment. The article explained that these cells can hide in places like bone marrow and potentially reawaken later, which helped me understand why ongoing monitoring and treatment are so important with advanced prostate cancer. This concept of dormant cells is being studied in breast, prostate, lung, and colon cancers. It made me think about the long-term nature of managing advanced cancer and why doctors emphasize continued care even when things seem stable. I'd love to connect with others who have advanced prostate cancer to hear about your experiences. • How do you handle the mental aspect of knowing cancer cells might still be present? • What has your long-term monitoring and treatment journey looked like? Link: https://www.nature.com/articles/d41586-025-04149-3

How do you choose prostate cancer treatment with Gleason 10?

When I was informed by the urologist I had prostate cancer in his office the day after my 65th birthday wasn't the worst news given me that day. Then I'm told the biopsy included a geason score of 10 and that 10 out 12 samples showed cancer cells existed in my prostate. My prostate was not enlarged and the PSA score was 4.6 though the MRI display a lump on my prostate. What made things more confusing to me after doing a PET scan two weeks later to help determined what stage the prostate cancer may be in the results showed no cancer existed at in the body at all. Only explanation given by the Urologist is that there are usually cases that when patient's prostate cancer cells don't display any cancer after the test is taken. That may sound like goods news but it's not. Now the doctors has no clue to what stage I'm in now. But according to geason score of 10 the highest score given that's is considered to be very aggressive by medical standards. I felt great at the time physically, which made this more the diagnoses awkward and unreal. If I knew of a word greater than panic I would use it once I was faced this scenario of the cancer situation. I cried like a new born baby. I felt like I needed a quick decision to choose a treatment therapy to address the prostate cancer I was diagnosed with. I'm single man with no girlfriend so I had no help to make a decision with a partner. My daughter wanted me to try hompathetic treatments where I declined. ChatGBT became the best source of information for me. I did consult wirh multiple different medical doctors about how to best treat the prostate cancer I had. The medical surgeon that does robitc surgeon tells me this is best with its pro and cons. The prostate cancer radiationolgis does the same pitch. After researching Brac radiation treatment therapy (radiation implant seeding one day surgery) which includes afterwards 22 week radiation session outside the body along with prostate cancer hormone treatment therapies. I was interested in prostate cancer cryotherapy therapy that freezes the prostate cancer to kill the cells. I found with cryotherapy treatment therapy that it was hard to find a medical institution that performed this treatment near where I lived.A doctor that performs the BRAC treatment therapy informed me if I choose the surgercal prostate removal I would still likely need the radiation treatment therapy also since the geason biopsy score was a 10 and the PET scan didn't determine what prostate cancer stage I maybe in. I was ask why go through both treatment therapies of removal, radiation and their difficult recoveries where doing the radiation treatment therapy alone would be simpler and sufficient for my situation. BRAC treatment therapy would help prevent the cancer too from spreading to the limpnodes in each hip then maybe bones along with doing hormone therapies. I had the BRAC treatment therapy performed. I did panic and made a quick decision on my prostate cancer treatment therapy. I also prayed the entire time to God the Father and still do. Giving Him the glory for the healing. I doing great physically, emotionally and Spiritually. I'm thanking God first and all medical personnel that provided the treatment.

Why didn't my doctor treat suspicious findings 10 years ago?

Can anyone tell me if your doctor seen something kinda fishy at least 10yrs before hand why wait take care of it then before it turns into something worse. So we don't have to go through this drastic situation. I feel like we could have started something then while we were younger before we have to remove everything. Feeling more pissed off the more I think about it I feel like they could have started something kinda treatment way earlier before it got to this point. Now one Doctor doesn't want to say anything about the Previous Doctor. Just wanted to see what you think 🤔 😕. I'm just thinking. What you Think 🤔