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6.6K membersHow does catheterization work after surgery?
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4 days agoI have a way of Surgery and catheterized what an experience and it seems to work
Why do I have leg pain at night on Orgovyx and Nubeqa?
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a day agoI have been taking Orgovyx and Nubeqa for almost 2 years after PSA rose from .7 to 1.9. PET scan showed lymph node involvement in pelvis, abdomen and neck, small spots but there nonetheless. PSA now <.01 so undetectable. For the last six months I have experiencing a dull ache uncomfortable feeling in legs at night that sometimes interferes with my sleep. Has anyone else experienced this? I welcome any insight our community can provide.
How do you manage Stage IV prostate cancer hormone therapy?
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24 days agoI have Stage IVB prostate cancer and I'm on a comprehensive hormone therapy regimen. My treatment team has me on multiple medications that work together - Relugolix (Orgovyx), Degarelix (Firmagon), Goserelin (Zoladex), Leuprolide (Lupron), and Triptorelin to reduce testosterone levels, plus Apalutamide (Erleada) to block testosterone from reaching cancer cells. My doctors explained this multi-medication approach provides maximum hormone suppression to help control disease progression. I'd love to connect with others who have similar advanced prostate cancer and hear about your treatment experiences. • If you're on a similar hormone therapy combination, what has your day-to-day experience been like? • What tips or strategies have helped you manage this type of treatment regimen?
How can I manage brain fog and insomnia on prostate cancer treatment?
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21 days agoI was diagnosed last September with advanced high risk prostate cancer. I’m on Abiraterone and Prednisone daily and a Eligard shot every three months. Besides the normal side effects of fatigue, hot flashes, etc, has anyone experienced brain fog and insomnia?
Should I wait for my next PSA test or see the oncology team now?
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19 days agoHello, I had prostate surgery in March, Gleason score 3+4. A lymph node was also affected. I had robotic surgery. On June 5th, my first PSA test came back at 0.02. The urologist suggested a multidisciplinary oncology appointment due to possible recurrence, to determine whether hormonal treatment or radiotherapy is appropriate. I have my doubts about this. I feel good; I've overcome 95% of the incontinence, but not yet the sexual aspect. I'm scheduled for another PSA test in August. Should I wait for that test or submit to the multidisciplinary team?
How long does incontinence last after prostate surgery?
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2 months agoI’m feeling ok. I’m very tired of the constant leakage. I’ve done every single exercise and program I’ve been told to do. No real effect. I have not been dry more than 30 minutes since surgery June of 2024. 4 pullups a day, 2-3 after 5 pm. Not just damp, soaked. I can on occasion during the day sit to pee and change pullups, void completely, but always still dribble when i stand up. Over-night, i dribble, or leak, or… but after about 4 hours my bladder is so full that the pain wakes me. I get up and pee, only to dribble again when i stand up. It is beyond exhausting. I’ve tried other means to prevent leakage - pacey cuff was a waste of time and money. Another clamp was successful enough to get through my 39 episodes of radiation, but not something I can wear during the day on a regular basis. I’m scheduled for a Clamp around the urethra to be installed in July. Artificial urinary sphincter. I hope this works. I’m also tired and weak, compared to before the radical prostatectomy, and ensuing hormone therapy first with Lupron, and now with Orgovix. The lupron, after about 4 months caused such high blood pressure that I had a headache and was nauseated to the point that I could not keep anything down. At that point my blood pressure was 220/119. It has been a tough journey. Before this surgery, I was one of the healthiest people I knew. Blood pressure, sugar, and other health related tests were in the normal to good range. My cholesterol was the worst thing I had, and it was in the 190-200 range. I’m hoping that after the hormone treatments end I can get back to normal. I pray each of you going through this has a great recovery.
Does Medicare cover cancer drugs like Orgovyx and Xtandi?
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2 hours agoNot sure if this is ok to ask here Does medicare cover drugs like orgovix and Xtandi. If yes, which supplemental insurance
What to expect after starting ADT treatment for prostate cancer?
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2 months agoTreatment has begun - first ADT shot on 6/8/26…
Has anyone tried Provenge? How did it work for you?
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2 months agoHas anyone tried Provenge? How did it work?
What's it like finishing 25 radiation treatments for prostate cancer?
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2 months agoRang the bell today after 25 days of radiation. What a load of my mind. My God was with me every step of the way. My wife also road along with me for support on all 25 treatments. How many wives would do that. Will meet with Doctor in three months to check PSA. Will remain on hormone therapy till then. Im happy but worried about all my brothers that are still in the process. I pray that each and every one of you make it till the end with positive results. That those that are still going through the fight to never give up. It may seem dark but I'm pulling for each one of you. God touch my brothers.
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