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1.8K membersHow do I manage severe side effects from Axitinib and Keytruda?
Community Member
6 hours agoHi, my husband has kidney cancer and it has spread to his lungs and liver. Since three monts he is on treatment with Axitinib and Keytruda. He has a lot of side-effects wich made him completely waisted. He has no energy, has a sore mouth and tongue and therefore difficulties eating and is very, very tired. Is here someone with the same things? We are thinking about to stop the Axitinib for a while so that his body can take a rest. We live in the Netherlands.
What should I expect from palliative care services?
Community Member
6 hours agoIs anyone using, or have used, palliative care services? If so, what was your experience? Was it worth it? What goals did you have and did you achieve them? I am going to meet with a palliative care provider and am curious what others got from the service.
Why hasn't my medical records request been fulfilled?
Community Member
7 hours agoQuestion I put in medical records and it has been longer than 3 weeks? Anyone else have any experience with this?
What should I expect when nodules grow during treatment pause?
Community Member
3 days agoI was diagnosed with a tumor on my kidney in April 2024. My right kidney was removed and showed no signs of cancer outside the kidney. I December 2024 a CT scan discovered multiple nodules on my lungs. Too small to biopsy so I began treatment with Keytruda and Lenvima oral medication. Due to extreme side effects I was put on a treatment pause in July 2025. At that time the only remaining nodules was 6mm. A CT scan done October 15th showed an increase in the size of the nodules to 1.1 x1.0 cm. I meet with my oncologist next week and hoping that it is not as bad as I think.
How can an oncology nutritionist help with treatment side effects?
Community Member
3 months agoI have Stage IV renal cell carcinoma and am looking into treatment options that might affect my appetite and how food tastes. I came across some helpful information about oncology nutritionists - registered dietitians who specialize in working with cancer patients. They can help with side effects like taste changes, nausea, or appetite loss that can come with treatments like immunotherapy or targeted therapy. I'm thinking about asking my care team if there's a nutritionist available at my cancer center, but I'd love to hear from others who've been through this. • Did you work with an oncology nutritionist during your treatment, and how did it help? • What eating challenges did you face with your treatment, and what strategies worked for you? Link: https://outcomes4me.com/cancer-topic/nutrition/nutrition-support-after-a-cancer-diagnosis/

Outcomes4Me
Nutrition support after a cancer diagnosis
What's the role of an oncology dietitian? Whether you're newly diagnosed, in treatment, or in survivorship, here's how you can get nutrition help.
Community Member
2 months agoI was diagnosed with Stage 4 RCC with mets to the liver and right lower lobe lung, in Oct of 2023. I've been on 5/6 different treatments. The first was Opdivo and a pill, worked really well for close to a year and then just stopped. I have been on four different medications, all gave me major issues. Then my oncologist decided to go into research and then switched me to Dr Reddy. One of the last things he commented on was how there was nothing for him to treat me with and that was because he didn't think I would still be alive. That was really hard to hear, left me speechless and he said I was free to go, and walked out. My current oncologist is much more friendly and concerned for me. I am currently on Votrient that isn't giving me hardly any issues. I will be getting new scans in the next couple of weeks and hopefully things will be better.
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