CommunitiesJust Diagnosed With Colorectal CancerDelays in Cancer Treatment Follow-up and Appointments

Delays in Cancer Treatment Follow-up and Appointments

DA

Community Member

6 months ago

I was diagnosed in June stage 3, crc Idk why I haven't had any apt. Since... I was told that I will do radiation/ chemo treatment to shrink cancer b4 surgery. I also have a mass located on my uterus, I had received 3 phone calls to tell me a referral Dr. ( obgyn) to get sonogram of said mass. and have a call back for apt time & date. This was 2 weeks ago!

6 comments
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accepted answer

Accepted Answer

Treatment delays can feel incredibly frustrating and scary, especially when waiting for important appointments and referrals. It's completely understandable to feel anxious when communication breaks down between medical offices. Consider calling your oncology team directly to ask about the timeline for starting treatment, and don't hesitate to follow up with the referral office about scheduling - sometimes being a bit persistent helps move things along faster.

3+ patients found this helpful

RO

Community Member

5 months ago

You should call to get that appt TODAY ! With our medical field what it is , you need to be your own advocate. You can’t wait for them to call you . Ever hear the expression that the squeaky wheel gets the attention (or something like that) Good Luck !

1
DR

Community Member

5 months ago

Send them messages and call. Stand up for yourself. Call your nurse navigator, social worker, any person if you're not getting help. Change docs if you're not happy.

1
DA

Community Member

5 months ago

Aug. 12 I had a chemo port put in, same day appt. With oncologist tells me I am at stage 4 cancer . I have 2 tumors in a lung and 3 in my liver. Does not want to do chemo bc it will kill me faster than the cancer. He gave me 3-6 months life expectancy. Suggest I go on hospice care. I have 2 pre-existing conditions which is playing a key role in treatment. 1 is hepatitis C and the other is a staghorn kidney stone which is large, needing surgery to remove...

DA

Community Member

5 months ago

This explains all the additional testing & delays for treatment.-- I guess

DA

Community Member

5 months ago

I thought I had everything lined up to have the kidney. Stone surgery done in July but I find out Meridian insurance thru the state of Illinois does not cover out of state procedures. I had to find new sources for treatment within the state of Illinois. So now, kidney surgery is set for September 15...

CA

Community Member

3 months ago

Treatment delays can feel incredibly frustrating and scary, especially when waiting for important appointments and referrals. It's completely understandable to feel anxious when communication breaks down between medical offices. Consider calling your oncology team directly to ask about the timeline for starting treatment, and don't hesitate to follow up with the referral office about scheduling - sometimes being a bit persistent helps move things along faster.

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