CommunitiesJust Diagnosed With Non-Small Cell Lung Cancer

Just Diagnosed With Non-Small Cell Lung Cancer

Just received a diagnosis? You're not alone.

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What supplements help stage 3 lung cancer?

KF

Community Member

4 days ago

Hi, I have stage three metastatic lung cancer, diagnosed April 2026. Im a strong believer in Christ and relying heavily on Him, I see myself completely healed. I’m taking ivermectin with mebendazole since June 1. I have not started treatment, and I’m undecided if I’ll agree to chemotherapy. I don’t want chemo. I’m doing a lot of fasting, no sugar or processed foods. I’m taking soursop, curcumin, ubiquinol and other vitamins and supplements. Are there any other supplements I should be taking? Also, what should I know about mitochondria?

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6 comments
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How do I connect with others managing EGFR-positive lung cancer?

PH

Community Member

a month ago

I have EGFR-positive lung cancer and am currently taking Tagrisso (osimertinib). I came across an article about promising results for lorlatinib in ALK-positive lung cancer, but I learned this treatment is for a different genetic mutation than mine. It made me realize how important it is to focus on research and treatments specific to EGFR-positive lung cancer like what I have. I'd love to connect with others who have EGFR-positive lung cancer to hear about your experiences. • What has your journey with EGFR-positive lung cancer been like? • Are there any tips or resources that have been helpful for you along the way? Link: https://www.lungcancerresearchfoundation.org/crown-trial-7-year-update/

CROWN Trial: 7-year update - Lung Cancer Research Foundation

Lung Cancer Research Foundation

CROWN Trial: 7-year update - Lung Cancer Research Foundation

The good newsThe 7-year outcomes of the CROWN Trial were presented at the annual American Society of Clinical Oncology (ASCO) meeting. Why it’s importantLorlatinib is a third generation ALK-tyrosine kinase […]

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What should I ask my doctor about EGFR-positive lung cancer treatment?

JH

Community Member

2 months ago

I have stage IV lung adenocarcinoma with an EGFR L858R mutation and haven't started treatment yet. I just read about some promising research from ASCO 2026 discussing new treatment combinations and first-line options for EGFR-positive lung cancer. The article mentions developments in personalized biomarker-driven therapy and new approaches that could be relevant for patients like me who are just beginning their treatment journey. I'd love to connect with others who have a similar diagnosis and hear about your experiences. • What was it like making treatment decisions when you were first diagnosed with EGFR-positive lung cancer? • Are there any questions you wish you had asked your oncology team early on? Link: https://outcomes4me.com/cancer-topic/lung-cancer-research/nsclc-studies-patients-should-be-paying-attention-to-at-asco-2026/

NSCLC studies patients should be paying attention to at ASCO 2026

Outcomes4Me

NSCLC studies patients should be paying attention to at ASCO 2026

Discover short summaries of the exciting new non-small cell lung cancer research presented at the 2026 ASCO Annual Meeting.

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Has anyone dealt with delays in cancer tissue testing due to the 14-day rule?

LR

Community Member

3 months ago

Seeking advice from other cancer caregivers: My husband was recently diagnosed with cancer. On Friday, his oncologist told us we have to wait 14 days to get his tissue sample from the hospital because of the “14-day rule.” After researching, it appears this rule mainly applies to Medicare/Medicaid billing. My husband has private insurance, and there was a 2018 exemption for molecular/next-generation sequencing tests on outpatient procedures. It’s a long holiday weekend, so I’m waiting until tomorrow to follow up. I’ve already emailed the oncologist asking her to immediately request the tissue be transferred to their lab for testing — or, if that’s not possible, to switch his care to Duke University. Has anyone else dealt with this kind of delay around tissue/molecular testing after a cancer diagnosis? How did you handle it? Any advice on pushing for faster processing would be greatly appreciated. Thank you ❤️

1 comment
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Is remission possible with stage 4 non-small cell lung cancer?

MH

Community Member

4 months ago

Just diagnosed with stage 4 non small cell lung cancer. I have to get mri of my brain and then have an appointment with radiation therapy to see if that is possible for treatment. I am so scared. I don’t know if it’s possible to go into remission at this stage.

2 comments
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Are there paid research opportunities for NSCLC patients to share experiences?

•O

Community Member

5 months ago

We’re inviting a small group of NSCLC patients to join a professionally moderated virtual focus group focused on patient experiences, decision making, and access to care. Details: • Monday, March 9 • 5:30–8:30 pm ET • Virtual (Zoom) • $300 thank-you for participants who complete the session If you’re interested, please complete this short questionnaire to see if you’re eligible: https://docs.google.com/forms/d/e/1FAIpQLSfTf8dftF7CV3PaXe-Ca47svV7Nzk6oR2FcHYD6D9KlituQ3A/viewform All information is kept confidential. Your voice helps move lung cancer care forward, and we’d be honored to have you participate.

NSCLC Focus Group

Google Docs

NSCLC Focus Group

Every story has the power to change what comes next. By sharing your experience with NSCLC, you’ll help researchers and clinicians better understand what patients need most and create a future where care feels more personal and effective. If you meet certain stage and treatment criteria, you may be eligible to participate in a virtual focus group. The session will be professionally moderated and conducted over the virtual platform Zoom. It will last approximately 3 hours. If selected to participate, you will receive $300 as a thank you for your time and insights. Please complete the short...

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What should I expect at my cancer center treatment planning meeting?

CM

Community Member

8 months ago

I’m meeting with the Cancer Center tomorrow with multi disciplinary team for treatment plan.

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4 comments
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Can I share my lung cancer story in a paid research study?

•O

Community Member

5 months ago

Hello everyone! 💙 If you’re living with non–small cell lung cancer, there’s a really meaningful opportunity to share your story and help improve care for others. It’s a small virtual focus group (about 3 hours on Zoom), and those who qualify will receive $300 as a thank-you. If you meet certain stage and treatment criteria, you may be eligible. Here’s the quick form to check: https://forms.gle/c8b3BiKSX8MkRKFp9 Thank you for being here. Your voice matters more than you know. 💛 Suzanne (Community Moderator)

NSCLC Focus Group

Google Docs

NSCLC Focus Group

Every story has the power to change what comes next. By sharing your experience with NSCLC, you’ll help researchers and clinicians better understand what patients need most and create a future where care feels more personal and effective. If you meet certain stage and treatment criteria, you may be eligible to participate in a virtual focus group. The session will be professionally moderated and conducted over the virtual platform Zoom. It will last approximately 3 hours. If selected to participate, you will receive $300 as a thank you for your time and insights. Please complete the short...

2 comments
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Lung Lobe Removal Recommended After Test Results

TD

Community Member

5 months ago

Stage 1. They want to remove a lobe after getting results from a lung function test due to the fact that I also have COPD.

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8 comments
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