Leukemia

How do you feel when you reach remission? What comes next?

Update as of November 3rd ,2025 l'm in remission and l go back in February for more test

Do cancer patients with ports find them helpful despite the scary procedure?

I have CMML and started chemo. I had 2 have 2 transfusions bc platelets dropped to 10😳. After 2 transfusions, they’re at 32. They had problems finding my veins and my dr suggested a port. It sounds very frightening. Does anyone else have a port? Was it painful to put in? Does it help?

Does chemo cause brain fog during treatment cycles?

Hi. Just wondering if anyone here has experienced brain fog during chemo? I’m experiencing it now. This is my 3rd cycle of treatment and I’ve never experienced it before.

Is anyone dealing with severe joint and nerve pain after APL chemo?

48 male APL survivor. Anyone left with severe joint and nerve pain after your 8 month chemo maintenance? I got it pretty bad and can’t work anymore. Can’t do much of anything anymore without stopping to rest to relieve pressure on my joints. Then while I’m resting the nerve pain shoots through my body at any random place.

Is my CLL doctor being too dismissive about monitoring after diagnosis?

I was diagnosed with cll this past May. I’m 53 years old. The hematologist I saw acted like it was no big deal. Told me I probably wouldn’t need treatment for 15 years. He done a ct scan and some blood work and a bone marrow biopsy. He told me I had some questionable lymph nodes but after all that he told me he didn’t need to see me anymore for a year and that he didn’t need anymore blood work till then. It worries me how dismissive he was. I’ve read most people get blood work done every 3 months after diagnosis. Has this happened to anyone else?? Maybe I should look for another doctor and get a second opinion??

What to expect at my cancer doctor's appointment tomorrow?

Another update tomorrow after my doctor's appointment 😥

How are others coping 120 days after CMML bone marrow cancer treatment?

Hello my Mike I got diagnosed in July off last your with CMML it a rare bone marrow cancer I'm now 120day out off the hospital luckily I had a great team off off doctors to help out and before that I was in the hospital for pneumonia and collapsed left lung doctor said if I didn't come in then I would be dead I had 240oz off fluid in my lung had surgery but now I'm doing ok but still struggling

How do you cope with a CML diagnosis when you're still in disbelief?

I was diagnosed with CML in March of this year. Numbers started at 29000. So far we going in right direction and now at 400. Doctors think it was from burn pits in Iraq during Desert Storm cause I have no family history. Still in disbelief.

How can leukemia survivors help others through their cancer journey?

Leukemia survivor here. It was rough for me. I didnt expect to make it. So, when I did, I knew I needed to help others. Heres how I do that - I provide Light of Hope pendants thru my nonprofit, Www.LuxSpei.org Check it out and feel free to sign up for my free, cancer-themed, monthly newsletter. James Gregware

How long does cancer treatment usually last and what should I expect?

Here's an update:got my CT scan results and my glads under my armpits are slightly swollen so are my abdomen pelvis. So l will be starting treatment in second week in October, he said that the treatments are for 2,4,6 weeks even a year . Don't know what kind of treatment yet. I just know l'm really really scared!😵‍💫😢