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Leukemia

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Could high platelets mean I have leukemia?

BG

Community Member

24 days ago

I just found out that my platelets are very high and my primary doctor said I could have leukemia so he's setting me up with a hemotologist.

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Why am I sweating so much and having numbness after chemo?

DB

Community Member

25 days ago

Was diagnosed with all with the Philadelphia positive gene… blina chemo did not work.. currently suffering from intense profuse sweating and my left hand goes numb and fingers turn purple.. what do I do

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Are my cancer numbers going down after diagnosis?

MK

Community Member

a month ago

Was diagnosed in 2017 and think my numbers are starting to go down.

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How can I support my husband with newly diagnosed AML?

VA

Community Member

2 months ago

My husband was diagnosed on 8/31…4 days ago. He has AML from MDS with PT53 mutation. He is 77. I’m looking for some hope. He is my life and I’m so scared.

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How do I cope with CLL anxiety while on watch and wait?

DC

Community Member

2 days ago

I was diagnosed with CLL 2 years ago November and am on watch and wait with no treatment. I would have preferred not to have been diagnosed until I became sick because having this hanging over your head when you're feeling normal is very anxiety producing. I wish I had not been diagnosed until I had some symptoms but it was discovered in a routine blood test. Knowing what's coming but taking no actions to avoid it makes me crazy! watch and wait should be called watch and dread!

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How do I manage Burkinsa side effects and what are my options?

PG

Community Member

24 days ago

I was diagnosed with leukemia CLL in November 2025 and started on Burkinsa. Side effects were not very good and the doctor has removed me from taking it. So right now I’m not on anything. Had blood work done on Friday for the first time after stopping and I see her this next week. I’m concerned with how the blood work has turned out because I was diagnosis stage 3/4 and was told I was high risk. Anybody else having side effects with this drug? And what did your doctor do about it?

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How do you manage targeted therapy side effects and medication schedules?

KA

Community Member

3 months ago

My oncologist is starting me on targeted therapy on July 27th. Does anyone have suggestions about dealing with side effects and managing when to take all of my meds?

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CMML progressed to AML - what treatment options should I expect?

JO

Community Member

2 months ago

I was diagnosed in Dec 2024 with CMML. Started VIDAZA Oct 2025. Did well for 8 months. Now, my platelets aren’t rebounding and WBC@64… I had a bone biopsy June 16th2026 & now blasts at 20.8%. CMML now progressed to AML. Anyone out there with AML…. What is protocol. My oncologist is referring me to someone who specializes in AML. Seeing dr on Monday. I read Venetoclax along with VIDAZA can help but hard on kidneys.

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What's it like living with CMML-1 without treatment?

LB

Community Member

3 months ago

Hello - I was diagnosed in August of 2023 with Chronic Myelomonocytic Leukemia CMML-1 Low Risk. I have blood work every 2 months and am not receiving treatment.

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