Leukemia

CMML progressed to AML - what treatment options should I expect?

I was diagnosed in Dec 2024 with CMML. Started VIDAZA Oct 2025. Did well for 8 months. Now, my platelets aren’t rebounding and WBC@64… I had a bone biopsy June 16th2026 & now blasts at 20.8%. CMML now progressed to AML. Anyone out there with AML…. What is protocol. My oncologist is referring me to someone who specializes in AML. Seeing dr on Monday. I read Venetoclax along with VIDAZA can help but hard on kidneys.

Can low hemoglobin with CML be treated with iron infusions?

Hello. I have CML for 1 & 1/2 years. My weight blood cells are normal. However, my hemoglobin is low. I'm waiting on a prior authorization for an iron infusion. The original prior authorization was submitted wrong.

What's it like living with CMML-1 without treatment?

Hello - I was diagnosed in August of 2023 with Chronic Myelomonocytic Leukemia CMML-1 Low Risk. I have blood work every 2 months and am not receiving treatment.

Does fatigue from Vidaza treatment for MDS get better over time?

Was diagnosed with MDS high risk about a month. Have had one treatment cycle of Vidaza. Getting ready for my second cycle. Experiencing fatigue and some full head aches. I am 79. Does the fatigue get better as you complete more treatment cycles. Any thoughts or suggestions would be appreciated.

What to expect with dasatinib for leukemia? Daily life tips needed

I've been prescribed dasatinib for my leukemia. My doctor explained it's a targeted therapy that blocks specific proteins that help leukemia cells grow. They mentioned I'll need regular blood tests and check-ups to monitor for side effects like fluid retention, bleeding, infections, and heart or lung issues. I'm looking to connect with others who have experience with this medication or similar targeted therapies for leukemia. It would be helpful to hear about your day-to-day experiences and any tips you might have. • What was your experience with dasatinib, and what helped you manage daily life while on this treatment? • What do you wish you had known before starting targeted therapy for leukemia?

Do I need a platelet transfusion with low platelet count?

Need a platelet transfusion. First time since Oct Platelets at 13

How can bone marrow transplant survivors join support meetings?

Zoom meeting for bone marrow transplant survivors this upcoming Wednesday 5pm PST send email to 4Zpeople@comcast.net and I'll forward u the link

How do I share a Zoom meeting link with someone?

Email link to Zoom meeting for Mike 4Zpeople@comcast.net

Is my white blood cell drop from 174,000 to 30,000 on Brukinsa too much?

I was diagnosed with CLL back in 2023 , started on brukinsa on April 22/26 my white cell dropped from 174,000 to 30,000 is it too much.

Should I start decitabine for CMML? Looking for patient experiences

I was diagnosed with CMML in August of 2025 after having a bone marrow biopsy due to my low platelet count that is currently 46. My oncologist has recommended that I begin treatment with decitabine, but I am reluctant to do so. Other than a bit of tiredness, I feel fine and we have agreed to watch for a while longer (3 month checkups). If anyone has taken, or is currently taking decitabine and would be willing to share their experience with me, I would be very interested and appreciative.