Leukemia

Why is knowing my leukemia subtype so important?

Confused by your leukemia diagnosis? Learn why identifying your specific subtype is the vital first step toward personalized care and effective treatment plans. https://outcomes4me.com/cancer-topic/leukemia/what-type-of-leukemia-do-i-have-why-your-specific-subtype-is-the-key-to-personalized-care/

Outcomes4Me

What type of leukemia do I have? Why your specific subtype is the key to personalized care

Confused by your leukemia diagnosis? Learn why identifying your specific subtype is the vital first step toward personalized care and effective treatment plans.

Are my cancer numbers going down after diagnosis?

Was diagnosed in 2017 and think my numbers are starting to go down.

How can I support my husband with newly diagnosed AML?

My husband was diagnosed on 8/31…4 days ago. He has AML from MDS with PT53 mutation. He is 77. I’m looking for some hope. He is my life and I’m so scared.

How do I cope with CLL anxiety while on watch and wait?

I was diagnosed with CLL 2 years ago November and am on watch and wait with no treatment. I would have preferred not to have been diagnosed until I became sick because having this hanging over your head when you're feeling normal is very anxiety producing. I wish I had not been diagnosed until I had some symptoms but it was discovered in a routine blood test. Knowing what's coming but taking no actions to avoid it makes me crazy! watch and wait should be called watch and dread!

How do I manage Burkinsa side effects and what are my options?

I was diagnosed with leukemia CLL in November 2025 and started on Burkinsa. Side effects were not very good and the doctor has removed me from taking it. So right now I’m not on anything. Had blood work done on Friday for the first time after stopping and I see her this next week. I’m concerned with how the blood work has turned out because I was diagnosis stage 3/4 and was told I was high risk. Anybody else having side effects with this drug? And what did your doctor do about it?

How do you manage targeted therapy side effects and medication schedules?

My oncologist is starting me on targeted therapy on July 27th. Does anyone have suggestions about dealing with side effects and managing when to take all of my meds?

CMML progressed to AML - what treatment options should I expect?

I was diagnosed in Dec 2024 with CMML. Started VIDAZA Oct 2025. Did well for 8 months. Now, my platelets aren’t rebounding and WBC@64… I had a bone biopsy June 16th2026 & now blasts at 20.8%. CMML now progressed to AML. Anyone out there with AML…. What is protocol. My oncologist is referring me to someone who specializes in AML. Seeing dr on Monday. I read Venetoclax along with VIDAZA can help but hard on kidneys.

Can low hemoglobin with CML be treated with iron infusions?

Hello. I have CML for 1 & 1/2 years. My weight blood cells are normal. However, my hemoglobin is low. I'm waiting on a prior authorization for an iron infusion. The original prior authorization was submitted wrong.

What's it like living with CMML-1 without treatment?

Hello - I was diagnosed in August of 2023 with Chronic Myelomonocytic Leukemia CMML-1 Low Risk. I have blood work every 2 months and am not receiving treatment.

Does fatigue from Vidaza treatment for MDS get better over time?

Was diagnosed with MDS high risk about a month. Have had one treatment cycle of Vidaza. Getting ready for my second cycle. Experiencing fatigue and some full head aches. I am 79. Does the fatigue get better as you complete more treatment cycles. Any thoughts or suggestions would be appreciated.