Living with Metastatic Breast Cancer

Should I switch from AI to tamoxifen for hormone+ MBC treatment?

I was on Ibrance and anastrazole. MBC diagnosis and I'm 46 I had hormone-positive breast cancer in 2020 and had a Double mastectomy In 2025 it spread to the liver I was put on Ibrance and astrazole I'm waiting on the kisquali now I was doing fine on Ibrance but at the end of treatment, it was suppressing my bones. I'm waiting to speak to my Breast oncologist in a few weeks in Indy but for now, I'm talking with my new oncologist until I get more specifics I haven't been happy with my oncologist since 2020 so I got a second opinion and I'm not that Im happy with this new oncologist but he still feels disconnected and not educated on some treatments. I have a Breast Oncologist in Indy but that is a drive every time, but she is there in case I have any questions come up I haven't talked with her much as I was stressed out and exhausted from treatments and just trying to figure out what is next but now I am ready to speak with her My question is this Ibrance was working wonders but the last two months the suppression of my bones was too much and my RDW and RBC were super low and neutrophils. My oncologist doesn't have many recommendations other than switching to Kisquali. Not lowering dosage again or anything so I will wait to see what the lady in Indy will say Scary switching and waiting for insurance to approve it, I've been off for about 3 weeks My question to the group AI is kicking my butt!!!! I can't function I said I had a sensitivity but he said everyone does to meds! I have tried the other ones and the same outcome He put me on tamoxifen It was just fine but I worry it's not enough Again Waiting to speak to the lady in Indy Has anyone had this and switched to tamoxifen instead of AI?

Should I work with an oncology nutritionist during cancer treatment?

I have metastatic breast cancer and I'm currently taking Kisqali (ribociclib), fulvestrant, and Truqap (capivasertib). I've been reading about how nutrition support can be really important during treatment, especially for managing side effects like nausea, taste changes, and appetite issues that can come with these medications. I'm thinking about working with an oncology nutritionist to help me stay nourished and feel better throughout my treatment. The idea of having personalized strategies sounds helpful, but I'd love to hear from others who've been in a similar situation. • Have any of you worked with an oncology nutritionist during treatment, and what was that experience like? • What nutrition tips or strategies have helped you manage treatment side effects and maintain your strength? Link: https://outcomes4me.com/cancer-topic/nutrition/nutrition-support-after-a-cancer-diagnosis/

What are the side effects of taking Ibrance for cancer?

Anyone on Ibrance? What are your side effects?

Is Ibrance gentler than Verzenio for an 80-year-old with MBC?

I have MBC- involved on both left and right. Had surgeries, 25 lymph nodes removed, two 3 week radiation sessions. Started anastrazol and preparing to add another cdk6 pill. Verzenio suggested but sounds very limiting with the side effects. Is Ibrance less harsh? Almost 80 years old. What do I need to consider for this kind of therapy. Is there another drug? Getting very fatigued and now worried about side effects. What is your real experience?

Is nausea and vomiting normal after whole brain radiation?

Is throwing up and feeling nauseous normal after whole brain radiation?

How do you cope with unpredictable symptoms from metastatic breast cancer treatment?

First time poster here… I have stg4 MBC.. I had bc 1 back in my 40s nothing to it… now Bam stg 4 no prognosis due to its all through my lymphatic system.. found out 2 years ago now.. Kisqali 400 and some kind of painful monthly shots in each cheek lolol .. I have so many bumps from these shots each month it’s getting harder to find a safe place to harpoon me lolol… I feel like I’m complaining but the hair loss the joint pains muscle pains some times exhaustion really bad. Can’t seem to find a time I can plan.. like I can’t say.. oh yeah let’s go shopping Saturday morning.. nope I can’t walk far.. and I don’t know how I will feel.. pain.. so on an

Has anyone experienced rising tumor markers when starting Truqap treatment?

Hi folks. My tumor fraction from my Guardian Reveal blood test showed an increase. My doctor just added Truqaq and my tumor markers - the 15-3 Breast assay Just went up 10 points. Nothing earth shattering but concerning. Had that happened to anyone else on a new added treatment! I take Kisquali and get the fluvestrant injections monthly. Worried because my PET scan is Scheduled early June.

Has anyone tried Enhertu for stage 4 metastatic breast cancer?

Hi All I have stage 4 Metastatic Her2+ Her2- I have started my second level treatment, which is Enhertu IV targeted Chemo. Just checking to see if anybody else has been on this treatment. +

Are Kisqali side effects causing muscle loss and body changes?

Hi, ladies I am stage IV lobular HR*/ HER2 low (+1) patient since May 2024. Original dx was May 2008, had DMX, AC/T chemo and radiation. Now on Kisqali and Letrozole. Looks like I am losing my body fat and muscles even though I am active, eat well (including proteins) and walking as much as I can. My tests including Signatera are good and stables. But my body shrinks, my hair (whatever left of it) changed structure, my blood pressure jumps up and down despite Amlodipine and I have problem falling asleep. Is that Kisqali?

Why do I sleep so much after chemo infusions for metastatic breast cancer?

I have been fighting MBC4 now for five years been doing well considering. It’s been over a year that I started chemo infusions. My story involves sleep. The day after the infusion I feel pretty darn good . By evening of the second day I start sleeping. This last time 12 hours then potty break then another 5/6 hours. It was such a strange feeling. Usually I just nap my way thru these days. Anyone else doing this?