Living with Metastatic Breast Cancer

What's your experience with Lynparza after Ibrance and Kisqali?

Hello everyone! Has anyone been on Lynparna and If so what has your experience been like? I'll be starting on it next week. 1st was on Ibrance for 2 years and then Kisqali 2 years.

Has anyone experienced a bad rash or DRESS syndrome from chemo?

Has anyone had a bad rash or DRESS syndrome from chemo meds? I’m on Truqap and went to ER with fever and bad rash all over. Some labs were really high including liver and eosinophils so ER doc diagnosed DRESS syndrome. My oncologist is ok with restarting Truqap but I’m worried it will happen again. Rash is gone now after a week on prednisone.

Will my PET scan show cancer spread if I'm having torso pain?

Thank you all for your comments. UPDATE: scan came back w/possible mets to spleen. Long story short, increasing oral chemo & rescan in 3 months. I'm sad & scared. Scanxiety. Stage 4 MBC gal here. PET/CT tmrw, Wednesday. I've been praying hard to our Lord, all the angels & saints that my results finally come back as NED. I'm stressed cause I've had pain on my right side of my torso. 🙏🏼

Has anyone taken Verzenio? What side effects should I expect?

I'm back again! I wish these forums had a search feature so we could type the name of a topic (for example, the name of a medication) to bring up previous threads. My oncologist is switching me to Verzenio. Anyone been on this medication? I was lucky to experience only mild side effects with Kisqali. Verzenio seems like I'm in for some GI issues ahead... :(

What are the side effects of Trodelvy infusion treatment?

I’ll be starting Trodelvy soon checking to see if anyone started this infusion if so what are your side effects

Should I add Ibrance to my current breast cancer treatment plan?

Hi, I was diagnosed with ER+ Her2+ January 2024 after being cancer free for 11 years. Found in my lungs..very small recurrence .. had first line treatment and currently get the Phesgo shot (every 3 weeks) and take Exemestane 25mg Get scans every 3 months ..shows No Evidence of active disease. Also get Zometa twice a year to protect my bones. They want me to consider adding Ibrance Any thoughts anyone..of course I always hate to add more meds I feel good 68yrs and feel very blessed …praying for all of you🩷

How has cancer changed your perspective and patience with others?

Hi I am just curious to know if your prospective has changed toward life I find I have less patience and more appreciation for the small things .. but I find myself having little patience for nonsense even from my husband,, I have triple mbc her 2 positive I get treatment a shot phesgo every three weeks and my routine test s which seem like they come often a scare here and there but thank God I’m doing well,, I have positive outlook and lots of faith. I have adapted to my new norm but find it changed me I would say for the better for the most part, I just don’t think people get it that your life is completely different and don’t have much tolerance for stupidity and nonsense, I’m just curious if others feel the same way

Newly diagnosed with metastatic breast cancer at 44 - are there success stories beyond the statistics?

Hello, I’m new to this app and was just diagnosed with de novo MBC that is in my lymph nodes, bones & liver. I’m only 44 years old and I have been researching and many resources state a 6 year survival rate. Could I hear some success stories that prove this is not always the case?

What line of treatment are you on and how long did it work?

Hello, All. I would love to know what line of treatment everyone in this community is on? (1st line, 2nd line, etc.) I was NED for just under a year. Petscan revealed a recurrence. Going through testing at the moment to see if a mutation may be involved. I'm headed toward a 2nd line of treatment, so I'm still processing this news, with an attempt to keep the faith, stay hopeful, and amp up any efforts that are within my control to help my overall health. Will find out shortly what treatment changes are ahead for me. How long did each line of treatment work for you, and where are you now?

Are GLP-1 medications safe during cancer treatment for weight gain?

Are GPL-1s safe to take? I’ve gained so much weight in treatment I have stage 4 with Metz to my spine. The research is inconclusive Thanks