Living with Metastatic Breast Cancer

Has anyone had a high SUV reading near sigmoid colon on PET scan?

Just had my third PET scan. Everything was stable but. My Bowel report showed a very high SUV on small focal Near the sigmoid colon. Has anyone experienced something like this?

Is it safe to travel to Thailand or Vietnam during cancer treatment?

Hi Everyone, Wishing you all a very happy and healthy New Year. I have a question about travel. I would love to go to Thailand or Vietnam but I’m really worried about anything happening while I’m there. I’m doing well right now but concerned that a strange bite or vaccinations needed might affect me. Does anyone have experience traveling that might help? Thanks in advance xxx

Is it safe to take Ozempic or Zepbound with letrozole hormone therapy?

Hi everyone Does anyone know if it’s ok to take ozempia or zepbpond or will it interact with treatment or hormone blockers pill like letrozole ?

Anyone else dealing with brain metastasis or leptomeningeal disease?

Does anyone have brain metastasis or LMD?

Has anyone experienced shortness of breath from Faslodex treatment?

Hi everyone hope you had a wonderful Christmas. I was diagnosed in 2011 I had bilateral mastectomy then for 7 years I was on Aromisin….fast forward to 9/23 started with inflammation back pain. I was diagnosed with mBC in my spine and most of my bones also it in my appendix (removed) on my omentum and my stomach. I’ve been on Ibrance, Fasledex, and Xgevia. I have a lot of shortness of breath and knee pain nausea.. but I think it’s the Fasledex causing the shortness of breath. Has anyone else noticed that. I tell all the doctors but no one seems concerned. I have had som radiation on my tibia and fibia for pain it helped some.

How do you stay positive and faithful during cancer treatment?

Merry Christmas Stay in faith stay positive live your best life . God bless us all ,,

How long do neutrophils take to recover after stopping Kisqali?

hi everyone hoping christmas will bring heath and happiness for you all. i have a question please i began the kisqali on 06/12 for 7 days only, i had to stop it when i started the cipro for 1 week and supposed to take it back after finishing the AB, but my neutrophils went down 0.67 then 0,74 one week after, is it normal that it takes a longtime to go up , and what might decrease it since i didn’t take the medication for a long period also, if it increases and i took the kisqali again, what might happen, will it decrease the white blood cells again i’m asking to know if this happened with you before thanks for your support, i appreciate

Should I stop Kisqali after injection side effects or continue treatment?

for me i was diagnosed with stade4 breast cancer, spread to the bones and the lungs, i was put on kisqali, letrozol, zometa and zoladex it has been 6 days only that i began the kisqali but on the fifth day i had two injections ( zometa and zoladex) then the next day i had a rash, fever, nausea ,bone pain, headache, i got to the hospital and they said that i had a uti, my wbc are at the normal ( so no neutropenia) then they prescribed me un antibiotic my oncologist wants me to stop the kisqali for the period while i’m on the AB, but for me i’m not convinced that it’s the one that caused me this symptoms, i think it was because of the zometa is anyone passed the same thing to help with the decision??

How is life one year after Stage 4 breast cancer diagnosis?

I’m Pat, 78, diagnosed with Stage 4 MBC one year ago. The cancer had spread to the pleural fluid around my lung partially collapsing it. I also had “too many lesions on my spine to count.” I was told I’m not curable, but am treatable. My cancer was so advanced that the doctor didn’t recommend IV Chemo or surgery. Instead, I was put on palliative care, Arimidex, and 600mg Kisqali daily. Now one year has passed and I’ve been unbelievably blessed. I’m out driving, shopping, exercising and feeling almost normal! I’ve had some side effects of a rash and hair thinning, but I’m here one year later able to enjoy another Christmas with my family. I want others to know that this diagnosis is not always hopeless. Be faithful and hopeful.

How do you cope with bone mets and spine surgery while staying strong?

I also have the same diagnosis but 2 vertebrae dissolved. Prior to that I had no clue I had cancer - just thought it was arthritis in my back. I had surgery in my back to add two 10” rods, 2” screw, 2” spacer, multiple bolts cemented to my spine. But I can walk on my own. I get monthly infusions for my bones and take Letrozole and Ibrance. Ibrance causes my white platelets to really drop. My oncologist put me on Verzinio but I had a bad reaction so he put me back on Ibrance. I have to have labs every 2 weeks. I also feel like I’m walking alone. I have great faith in my Lord and that’s gotten me this far. Also, I am a Realtor and have had the best year in my 24 years as a Realtor and that’s because of my Lord.