Living with Metastatic Breast Cancer

What's it like after CDK4/6 inhibitors for stage IV breast cancer?

I have hormone receptor-positive, stage IV breast cancer with bone metastases. I've already been through treatment with Ibrance (palbociclib) and Kisqali (ribociclib), so I'm now looking at third-line therapy options or beyond. My oncologist mentioned several possible treatment paths, including chemotherapy with targeted therapies, hormone therapy with newer targeted drugs, or chemotherapy alone - all with bone-strengthening medications for the bone metastases. I'd love to connect with others who have a similar diagnosis and treatment history. Your experiences and any day-to-day tips would mean a lot to me. • What has your experience been like with third-line treatments after CDK4/6 inhibitors? • What helped you navigate the different treatment combinations available at this stage?

How can I get support when facing cancer?

HAPPY LABOR DAY EVERYONE!! Hope everyone is having g a awesome day ❤️

How long can NED last before cancer returns?

To those of you who are or have been NED how long have you been NED or were before it coming back?

How Can I Track My Advanced Breast Cancer Treatment?

The shift from passive patient to active data manager Advanced breast cancer treatment tracking is no longer optional. It's the difference between reacting to your condition and actively managing it.... https://outcomes4me.com/cancer-topic/living-with-metastatic-breast-cancer/why-your-advanced-breast-cancer-treatment-needs-a-data-driven-tracking-system/

Outcomes4Me

Why your advanced breast cancer treatment needs a data-driven tracking system

The shift from passive patient to active data manager Advanced breast cancer treatment tracking is no longer optional. It’s the difference between reacting to your condition and actively managing it. A metastatic breast cancer diagnosis doesn’t just bring fear and uncertainty. It brings an avalanche of appointments, lab results, imaging reports, medication schedules, and side […]

How can I manage severe fatigue after reaching remission?

Hello everyone. I am stage 4 and did chemo for about a year until I reached NED about a month ago..I've been struggling with severe fatigue all through chemo that hasn't gotten much better now that I'm only on keyruda. I just got in with palliative care and at my first appointment she brought up the possibility of treating the fatigue with medication and we are going to discuss it next visit. Do any of you dealt with severe fatigue even in remission and if so did you take meds. Which k es helped or didn't help? I've take iron,B1 B6 ginseng B12 shots..but so far nothing has really helped..

How do I manage hip pain from sacral metastasis?

Grand rise to everyone today! We have risen! Got this hip pain since June it's because of my metastasis on my sacrum and my L2. My liver numbers also went up in the one week that I had to stop my treatment because it wasn't working anymore. My oncologist said it's not subtle. I'm scared. However I stay in thriving mode that's the only thing I have to hold on to. Today I will do the best that I can dealing with this chronic illness. Stay positive stay hydrated. Stay working on self. All is well to all of us! 🦋🩷🌷

Has anyone tried oral SERDs like Oslerdu or Imlunestrant?

Does anyone have experience with oral SERDs Osrerdu or Imlunestrant? Have you been taking it by itself or in combination with a CDK drug? Tell me your experiences, side effects, success the treatment had. I have a big choice to make…

My liver tumor markers went up—what now?

Grand Rising everyone! I'm on the check-in. I just found out on my pet scan that my liver tumor markers have went up to 183. Whoa! I've seen my images and it's lighting up. I feel so discouraged especially with my hip pain as well. My treatment remedy has stopped working. And we are going with something else which I will be educated on. But I haven't made a choice yet. Decisions decisions. We all hope we make the right one. I'm standing tall in all that I am in the woman that I've became and the woman that I'm becoming. Life changes and things happen to us. But we have to stay strong guys! We have to trust ourselves and our choices. I get tired of these doctors though. Sometimes I feel that I know more than them. Obviously it's not them going through it it's us going through it. And they have to put that in the perspective. Sometimes you have to snap your doctor out of the tunnel vision of dealing with so many people with so many issues of Cancer. Sometimes I think we know too much we learn too much and we start to think too much. Well it comes with the territory I tell you. Stay hydrated stay positive all is well to all of us!🌷🦋🩷

Can metastatic breast cancer be managed as a chronic condition?

Discover how the shift toward precision medicine and new treatments is turning metastatic breast cancer into a manageable, long-term chronic condition. https://outcomes4me.com/cancer-topic/living-with-metastatic-breast-cancer/living-with-metastatic-breast-cancer-why-the-chronic-disease-shift-is-real/

How do I talk to my doctor about stopping treatment?

I've decided to stop treatment. I'm going to talk to my doctor tomorrow. Since May 28th, I stopped Truqap, spent 10 days in the hospital recovering from side effects. Then, I was home for 8 days. Then, back in the hospital for COVID and orthostatic BP for another 15 days. Last week I restarted Truqap (4 days on and 3 days off) on Wed the diarrhea started and it hasn't stopped yet. I've taken Imodium and a prescription med. This is not a QOL. I've been on this journey for 10 years 8 months. I believe that Jesus is calling me home.