Living with Metastatic Breast Cancer

What's the highest Cancer 27-29 score you've seen?

What’s the highest anyone Cancer 27-29 score ever been i’ll start 543

How do you deal with chemo brain and memory problems?

I’m new to this and am not sure how to use.. chemo fog…

How do you balance alternative treatments with metastatic breast cancer care?

Hi. Im new to this app, have been looking for support but mainly doing it on my own (with hope and good wishes from family and friends 🧡) But they don't live daily with metastatic breast cancer. I was diagnosed @ August 31, 2020. Original oncologist & her team the whole time. I trust them. I've had various chemo treatments, starting with Ibrance in 2020 through starting injections late fall of 2025. What has changed is that I have been trying to take a special tea of 6 ounces 3 times a day every day for at least 6 months consistently. Life gets in the way. My oncologist thinks this to take for me.

How are others managing Enhertu side effects and staying strong?

Grand Rising. On my 12th and fusion of Enhertu. Started this treatment in August of 2025. Side effects, constipation, emotional distress, change of taste buds. The key is to good hydration. Don't drink too much cold things. That way you don't stop the turnaround and detoxification of your body. Eat light, boiled eggs. Toast, soups, smoothies,. Make sure you're taking the probiotic and the vitamin d. I'm tolerating this treatment well. Find your wellness. All is well. You're not alone. 🩷💪🏾

How do you stay strong with metastatic breast cancer to bones?

Hello all My wife has metastatic breast cancer ( skeletal involvement) Breast cancer 1st diagnosed in 2001, surgery, chemotherapy and radiation treatment Treatment suspended the cancer but caused a cardiomyopathy, heart failure that progressed and ultimately had a heart transplant in March 2017, diagnosed with metastatic breast cancer in Jan 2020 Undergoing treatment,several changes over the years. Ibrance, Faslodex, Xgeva , Xgeva was helpful, but caused osteonecrosis of the jaw(ONJ) tried several meds Now on Faslodex monthly and Xeloda( oral 5 FU) and many supplements So far, skeletal disease involves the entire skeleton, but had remained stable, minimal pain My wife continues to try to enjoy life and family It has been a long road, but , my wife, Evelyn is a testament to faith and spirit She will never give up Praying for all, don't give up!

Has anyone had whole brain radiation for brain mets? What side effects?

Hello! I’ve been living with MBC for 7 years. My latest MRI showed brain mets, and my oncologist is recommending whole brain radiation. Has anyone had this? What side effects did you experience? Any permanent side effects?

How often should CDK 4/6 inhibitors like Ibrance be monitored?

I'm currently taking Ibrance (palbociclib) for my metastatic breast cancer. I recently read about how doctors monitor CDK 4/6 inhibitor effectiveness through regular scans every 3-4 months and blood tests, which matches what I'm experiencing with my oncology team. The article also mentioned newer monitoring options like the DiviTum TKa biomarker, especially for situations involving treatment effectiveness concerns or potential dose adjustments. I'd love to hear from others who have experience with CDK 4/6 inhibitors. • What has your monitoring schedule looked like with CDK 4/6 inhibitors? • Have you discussed any newer biomarker testing options with your doctor, and what was that conversation like? Link: https://outcomes4me.com/article/how-effective-are-cdk-4-6-inhibitors-in-treating-metastatic-breast-cancer/

What's your experience with Lynparza after Ibrance and Kisqali?

Hello everyone! Has anyone been on Lynparna and If so what has your experience been like? I'll be starting on it next week. 1st was on Ibrance for 2 years and then Kisqali 2 years.

Has anyone experienced a bad rash or DRESS syndrome from chemo?

Has anyone had a bad rash or DRESS syndrome from chemo meds? I’m on Truqap and went to ER with fever and bad rash all over. Some labs were really high including liver and eosinophils so ER doc diagnosed DRESS syndrome. My oncologist is ok with restarting Truqap but I’m worried it will happen again. Rash is gone now after a week on prednisone.

Will my PET scan show cancer spread if I'm having torso pain?

Thank you all for your comments. UPDATE: scan came back w/possible mets to spleen. Long story short, increasing oral chemo & rescan in 3 months. I'm sad & scared. Scanxiety. Stage 4 MBC gal here. PET/CT tmrw, Wednesday. I've been praying hard to our Lord, all the angels & saints that my results finally come back as NED. I'm stressed cause I've had pain on my right side of my torso. 🙏🏼