Can Optivo cause heart attacks and what are my options?
Community Member
8 days agoI was diagnosed with stage 3 melanoma last Oct. Started Optivo infusions but had a heart attack in June and all the Doctors think the Optivo was the cause. I’ve been off the drug since then but am so worried, since I’ve been told that I needed to be on immunotherapy for a year, at least. Having a PET scan this week.
Pregnant, Diagnosed with Stage 4 Melanoma—Any Hope?
Community Member
12 days agoJuly 18,2026 I was recently diagnosed with metastic melanoma, I found I was pregnant at the end of April found a mass at 6 week scan had a surgery in June to remove mass as well as both my ovaries and right fallopian tube as well as peritoneum biopsy and lymph nodes removed. Had a brain mri and chest ct yesterday which showed small lesions on my all under 6mm largest being 6mm starting radiation Monday and have already had first dual immunotherapy treatment. I also have masses on both adrenal glands and swollen lymph nodes in chest/ armpits. Looking for hope stage 4 metastatic melanoma
How long can you stay on Opdualag? Anyone downgraded from stage 4?
Community Member
a month agoQuestion: Is there a limit to how long you can be on Opdualog? It’s been 4 years for me and I am clear at this point? Also, is anyone with stage 4 completely cured or downgraded?
How are you coping while waiting for your PET scan results?
Community Member
3 months agoHow is everyone doing? I’m waiting for my 6/1 PET scan 🙏🍀
How do you cope with unexpected stage 4 melanoma diagnosis and side effects?
Community Member
a month agoHi. I’m Marko and I have a stage 4 melanoma in my lung. I had no symptoms. I was getting an X-ray of my shoulder and got a call that I had a spot on my lung. Surprise! I had one infusion of immunotherapy and had a bunch of horrific side effects including
How is chemotherapy working for melanoma after organ transplants?
Community Member
5 months agoI was diagnosed in early January 2026 with Melanoma. I had an issue two years before in which the melanoma was diagnosed, and removed from my shoulder and the lymph nodes were biopsy and cleared. I now received Chemotherapy, immunotherapy was not an option due to me having both liver and kidney transplants over the years. The odds were low on Chemotherapy working, but I have had 3 treatments now and thing are looking positive. I know I have a long way to go but I’m not going to give up!
How do I cope with stage 4 melanoma and find support who understands?
Community Member
3 months agoJust wanted to introduce myself, I am Jacquie and November 20th 2025 my life changed when I was told I had a mass in my liver then December 1st of 2025 I was told I have stage 4 melanoma with spots on my lung, spine, kidney and a mass on my left eye which about three years ago I was told it was fluid buildup in my eye. I had to do three rounds of radiation and I started immunotherapy Feb 3rd, I go every three weeks to do that. I am just looking for a community who understands the side effects and the emotional ups and downs I am going through. I have a great support team, but they sometimes see my strength and I guess they forget I am dealing with this.
Can a port cause blood clots during cancer treatment?
Community Member
6 months ago#4 I was given a port...I decided to not look at side effects as I wanted to listen to my body and not what I read. I did have an odd symptom in my room hand so they did an ultrasound of my arm and hand. I remember the technician going back to my arm pit and takilolng a lot of pictures. I had a blood clot! In a rare place, most likely from my port. So now I'm on Eloquis. So much more to share but this is getting too long... Anyways, 6 months to live, but could be more. I am a very positive person.. Oncologist said that could help. Long story short.. after 2 immunotherapy treatments (too late for chemo or radiation). They were all gone. More to tell but I am running out of space!
What to expect when doctors find metastatic melanoma in multiple organs?
Community Member
6 months ago#3 the nurses came back and treated me for my pain and were "very kind to me"...( when I came in I wasn't given any pain meds and I begged for them). Then a "new Dr" stepped in my room he looked a little nervous. They found something on the scan. It was large and on the "outside" of my pancreas. (Pushing against my L4 and L 5, & causing a lot of pain.) I said that if it was pancreatic cancer just send me home. But they also gave me more scans, CAT, PET, &MRI, (with dye). It was in my lung, limphnode in groin, and my brain! And all my major organs were very healthy. So they got several biopsies and found out that it was a "veryrare form of METASTATIC MELANOMA ." Dr didn't know much about it but I could try Immunotherapy,
How do I get doctors to take my cancer concerns seriously?
Community Member
6 months ago#2 sorry so long of story.. I was having many premonition's that I had Melanoma and or cancer. And I couldn't afford insurance as my income would come and go. So I used government Healthcare, (sliding scale fee.) I felt that I was being treated like a hypochondriac! I have asthma too. And felt like I had arthritis but it was borderline. Well it came to a head that I was in so much pain that I went to local hospital and said my back hurts but I think it is an organ.. (I have had x-rays many times before). The doctor listened to me, but i still felt that nurses were just treating me like a drug addict, but I never have really had narcotics before. So 1st CT scan...
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.