Melanoma

How do I cope with stage 4 melanoma and find support who understands?

Just wanted to introduce myself, I am Jacquie and November 20th 2025 my life changed when I was told I had a mass in my liver then December 1st of 2025 I was told I have stage 4 melanoma with spots on my lung, spine, kidney and a mass on my left eye which about three years ago I was told it was fluid buildup in my eye. I had to do three rounds of radiation and I started immunotherapy Feb 3rd, I go every three weeks to do that. I am just looking for a community who understands the side effects and the emotional ups and downs I am going through. I have a great support team, but they sometimes see my strength and I guess they forget I am dealing with this.

Can a port cause blood clots during cancer treatment?

#4 I was given a port...I decided to not look at side effects as I wanted to listen to my body and not what I read. I did have an odd symptom in my room hand so they did an ultrasound of my arm and hand. I remember the technician going back to my arm pit and takilolng a lot of pictures. I had a blood clot! In a rare place, most likely from my port. So now I'm on Eloquis. So much more to share but this is getting too long... Anyways, 6 months to live, but could be more. I am a very positive person.. Oncologist said that could help. Long story short.. after 2 immunotherapy treatments (too late for chemo or radiation). They were all gone. More to tell but I am running out of space!

What to expect when doctors find metastatic melanoma in multiple organs?

#3 the nurses came back and treated me for my pain and were "very kind to me"...( when I came in I wasn't given any pain meds and I begged for them). Then a "new Dr" stepped in my room he looked a little nervous. They found something on the scan. It was large and on the "outside" of my pancreas. (Pushing against my L4 and L 5, & causing a lot of pain.) I said that if it was pancreatic cancer just send me home. But they also gave me more scans, CAT, PET, &MRI, (with dye). It was in my lung, limphnode in groin, and my brain! And all my major organs were very healthy. So they got several biopsies and found out that it was a "veryrare form of METASTATIC MELANOMA ." Dr didn't know much about it but I could try Immunotherapy,

How do I get doctors to take my cancer concerns seriously?

#2 sorry so long of story.. I was having many premonition's that I had Melanoma and or cancer. And I couldn't afford insurance as my income would come and go. So I used government Healthcare, (sliding scale fee.) I felt that I was being treated like a hypochondriac! I have asthma too. And felt like I had arthritis but it was borderline. Well it came to a head that I was in so much pain that I went to local hospital and said my back hurts but I think it is an organ.. (I have had x-rays many times before). The doctor listened to me, but i still felt that nurses were just treating me like a drug addict, but I never have really had narcotics before. So 1st CT scan...

Can melanoma be internal without moles? My stage 4 diagnosis story

Hi community, I have a rare form of Melanoma, it was metastatic "internal" Melanoma. No moles detected. It looked like stage 4. It was found by a CT scan. I kept feeling more and more tired. I thought it was my age as all my "tests" and even blood work was off but not severe enough for medication. Symptoms: High platelet count (for many years) , pre-diabetes (borderline, for many years) high cholesterol ( borderline,for many years). Bad neck, and L4,L5 in my back. Neuropathy in feet and calves. High BP 20+ years. I did take meds for it. I also was afraid to medicate for diabetes and cholesterol ( I was trying diet and exercise.) And heard not too good things about treatment. for this

Did you get a second opinion after melanoma diagnosis?

I have just been diagnosed with superficial spreading melanoma. My question is? When you were diagnosed ? Did you get a second opinion? Also did you choose your own surgeon?

How to cope with stomach ulcer diagnosis and testing anxiety?

Anyone have a stomach ulcer they had to deal with? Getting scope tomorrow to find out if I have one.

Halfway through immunotherapy - how nervous should I be about PET scan?

I am half way through my immunotherapy!! I have a PET scan tmw. I just had a head to toe check from my surgeon and he dismissed me for 6 more months. I have a warfane(not sure) on neck mom malignant but it will have to come out eventually, but for now blood work is good and no more spots present. Still nervous for scan but I think it'll b ok. Just 6 more treatments to go!!

Has anyone experienced multiple melanoma recurrences like me?

Hey everyone! Just sharing my melanoma journey to see if anyone’s had a similar experience. I was diagnosed with acral melanoma in October 2023 on my heel and went through multiple surgeries, including a skin graft and lymph node removal. Everything came back negative at that time. In November 2024, I had a recurrence near the original skin graft site and had another surgery with lymph node removal, and again, everything was negative. Now in December 2025, I’ve had another recurrence. This time it involves three lymph nodes in my leg and one in my abdomen, and the doctors have classified it as stage 3 melanoma. I’m currently undergoing immunotherapy, with my second treatment on the 16th, and I have another surgery planned for those lymph nodes. I’d really appreciate connecting with anyone who’s been through something similar or has any advice. Thanks so much!

Anyone else awake and want to chat about cancer journey?

Hi is anyone online that would like to chat?