Should I push for stem cell transplant with TP53 mutation MDS?
Community Member
22 days agoI am 71 and diagnosed with MDS inJan of 26. Bone Marrow biopsy positive for TP53; ETV6. Placed on Inwovi which in 2 sessions has my platelets normal and HGB up to over 10. White blood cell down. Doctor is very happy. Does anyone have experience with long term Inqovi. I am thinking with the genetic mutations I should push for stem cell. Any input?
Community Member
22 days agoTreatment decisions for MDS with genetic mutations can be complex, and it's encouraging to hear that the current treatment is showing positive results. Many community members have found it helpful to discuss all available options thoroughly with their oncologist, including the timing and benefits of different approaches. Others in similar situations may be able to share their experiences with various treatment paths, which could provide valuable perspective as these important decisions are considered.
Community Member
11 days agoAfter several trmts none of which worked I tried Imetelstat which didn't work felt rotten with trmts stopped in Dec now having a lot of extreme bone pain why?
Community Member
16 hours agoMDS w/5q deletion......Lenalidomide for 5 years, now chemo with Decitabine.....having transfusions every week.
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