CommunitiesNeuroendocrine and Adrenal Tumors

Neuroendocrine and Adrenal Tumors

Join others facing Neuroendocrine and Adrenal Tumors

725 members

How do I cope with neuroendocrine carcinoid tumor?

IW

Community Member

a day ago

Hi, I was diagnosed in October of 2025 with Neuroendocrine Carcinoid Tumor. I was told it started in my small bowel and is now in my liver. Anyone else?

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4 comments
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Are ivermectin or fenbendazole safe with cancer treatment?

PS

Community Member

2 months ago

Anyone taking ivermectin or fenbendazole along with the traditional treatments?

2 comments
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Has anyone with adrenocortical carcinoma been helped by Mitotane?

ES

Community Member

2 months ago

Has anyone on here with Adrenocorticol Carsinoma been helped by Mitotane?

4 comments
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CT

Community Member

3 months ago

Any one have experiance with temozolomide??

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Is it normal to still be alive with stage 4 cancer after a year?

JA

Community Member

6 days ago

Interesting remarks I was diagnosed in 2023 with stage 4indctrin cancer that was inoperable very crazy I am still alive crazy yes? Now my cancer is growing and moving to some organs and som bones so I am waiting for Fred hutch to determine if there treatments can prolong my life which would be nice s as all of u know more waiting and waitin

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4 comments
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What to expect from first Lutetium treatment for neuroendocrine tumors?

MK

Community Member

11 days ago

Monday is my first treatment with Lutheran? I have neuroendocrine nets in my liver and bone and pancreas did chemo radiation and injections in the butt hurt like crazy. Now radiation in the arm heavy dose and Iv in the other arm also. CT says tumor have grown

6 comments
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Anyone taking lanreotide shots every 3 weeks instead of monthly?

PS

Community Member

5 months ago

Anyone taking lanreotide shots every 3 weeks as opposed to 28 days? Positive outcomes?

1 comment
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Can adrenal cancer ever be cured or go into long remission?

CT

Community Member

5 months ago

Adrenal cure??? Anyone feel they have had a cure? How about long remission? I just feel this just keeps coming

1 comment
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Anyone taking Cabometyx for pancreatic neuroendocrine tumors?

PS

Community Member

6 months ago

Anyone taking Cabometxy for pancreatic neuroendocrine tumors? What was your outcome and success rate?

1 comment
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Has anyone had success with Lutathera injections for NET treatment?

PS

Community Member

11 days ago

Has anyone shown positive success with Lutathera injections since many of you received them?

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