Share experiences and tips for navigating prostate cancer clinical trial participation.
13.0K membersWhat is the prognosis for stage 4 small cell prostate cancer?
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15 days agoWhat results do you know about stage 4 small cell prostate cancer?
What should I expect from my PSMA PET scan for prostate cancer?
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8 days agoHi everyone, I just joined. I was diagnosed with prostate cancer last month but I haven't had a PSMA PET scan yet but it's scheduled for next Thursday. I had a biopsy last month that shows a Gleason 8 on the left side and Gleason 9 on the right and my PSA was at 17 when I had it checked last, which was a little over a month ago. As much as I don't want to do the PET scan, I'm looking forward to it because I want to know if the cancer has spread, or is still contained in the prostate. Should I be worried?
What is the Tulsa procedure for cancer treatment?
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4 days agoWhat do ya'll think about the Tulsa procedure
Is Zitiga resistance possible with rising PSA levels?
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18 days agoHi everybody I was diagnosed with prostate cancer in 2012. I had a radical robotic prostatectomy my PSA went down to zero 2015. I had a recurrence I had 40 treatments of radiation and went on Eligayrd for a year horrible experience than a 2017 came back. I had 25 treatments and it seemed to be OK within a 2019 another reoccurrence I had 10 treatments of radiation and it spread to my back my PC gun to 26 and then after radiation came back to about seven caused me to be urinating blood over 2000. I was in the hospital for three days and they had a to be cauterized to stop the bleeding and it made me incontinent. Then I change doctors and he put me on Zitiga and Orgovoyx which, after a couple years, raised my creatinine, so I had to get off the Orgovoyx now about six years later my PSA had gone down as low as 0.023 and it just recently went up to 0.045 0.07 I’m doing a PSMA scan on Monday and seeing my doctors on Friday and doing another blood drop worried again I hope that I’m not becoming resistant to Zitiga. Any suggestions? After 2019
Does laser treatment really work for prostate issues?
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24 days agoI recently underwent a laser treatment for my prostate, and it appears to be working effectively.
What to expect from PSMA-PET scans after prostate cancer returns?
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24 days agoMy prostate cancer has come back after surgery, and my oncologist is recommending advanced scans like PSMA-PET/CT or PSMA-PET/MRI to see where the cancer might be now and help plan my next treatment steps. I'm trying to understand what to expect with these scans and how they helped others in similar situations. I'd love to hear from others who have been through this process and can share what it was like for you. • What was your experience with PSMA-PET scans after cancer recurrence? • How did the scan results help guide your treatment decisions?
What treatment options did you choose for very-high-risk prostate cancer?
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16 days agoI was recently diagnosed with very-high-risk prostate cancer and learning about my treatment options. My doctor explained that I have several approaches to consider, including different types of radiation therapy (some combined with hormone therapy), surgery to remove the prostate, or in some cases, careful observation depending on overall health and life expectancy. I'm trying to understand what each path might look like and would love to hear from others who've been in a similar situation. • If you had very-high-risk prostate cancer, what treatment approach did you choose and how did you make that decision? • What do you wish you had known about the different options when you were first diagnosed?
Is active surveillance for Stage I prostate cancer the right choice?
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24 days agoI have low-risk, Stage I prostate cancer and my doctor mentioned active surveillance as an option. From what I understand, this means regular monitoring with PSA tests, physical exams, and periodic biopsies instead of immediate treatment like surgery or radiation. The idea is to watch for any changes while avoiding potential side effects from treatment unless the cancer shows signs of getting worse. I'm trying to learn more about what this experience is really like from people who've been through it. If you've chosen active surveillance for similar prostate cancer: • What has the monitoring process been like for you day to day? • How do you manage any anxiety or concerns between check-ups? I'd appreciate hearing about your experiences or any insights that helped you along the way.
What factors helped you choose between prostate cancer treatments?
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2 months agoI was recently diagnosed with unfavorable intermediate-risk prostate cancer and my doctor explained six different initial treatment approaches. Some involve radiation therapy using high-energy beams or radioactive seeds, often combined with hormone therapy. Another option is surgery to remove the entire prostate gland. My doctor mentioned that the choice depends on my overall health, preferences, and specific cancer characteristics. I'd love to connect with others who have been in a similar situation and hear about your experiences with these treatment decisions. • What factors were most important to you when choosing between radiation and surgery options? • Looking back, what do you wish you had known when making your treatment decision?
What tests and decisions did you face when cancer returned after radiation?
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3 months agoMy cancer has returned after radiation therapy, and my oncology team is discussing several diagnostic tests to figure out the extent of the recurrence and plan next steps. They mentioned tests like PSMA-PET scans to check if it has spread, risk assessment to see how quickly it might progress, and possibly a biopsy. They also brought up watchful waiting as an option, which would mean careful monitoring with regular check-ups instead of immediate treatment. I'd love to hear from others who have been in a similar situation with cancer recurrence after radiation. • What diagnostic tests did you have, and how did that process go for you? • If you chose watchful waiting, what was that experience like and how did you make that decision? In
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