CommunitiesRenal Cell (Kidney) Cancer Clinical Trials

Renal Cell (Kidney) Cancer Clinical Trials

Share experiences and tips for navigating renal cell (kidney) cancer clinical trial participation.

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How do I start immunotherapy for metastatic kidney cancer?

JF

Community Member

2 days ago

2 1/2 years ago I had a radical nephrectomy to remove a kidney with a 5cm tumor. At the time there were no other signs of cancer and I was free of it until about a year ago when it showed up in my right lung. Over the last year we watched the cancer move to my thyroid, adrenal glands and finally to a lymph node. The new tumors have been small and have seen only minor growth but after it was found in my lymph nodes in May it was time to start treatment. Today I spent 8 hours at the infusion center to begin my clinical trial. The extensive time was required due to the extra lab work and EKGs required for the trial. The trial is the ARC20 trial and specific information can be found online if anyone is looking for a possible trial for treatment. I will try to update my progress as I navigate the treatment and hope that my experiences may help someone else.

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Has anyone had success with Cabozantinib for stage 4 kidney cancer?

SF

Community Member

8 days ago

I have stage 4 RCC. Been on Nivolumab and Ipilimumab for three months and got rescanned. Nodules in my lungs seemed to stop growing but the nodules on both adrenal glands grew a tad bigger so as some lymph nodes. Dr. consulted the Tumor board and decided to change my treatment to Cabozantinib. Has anyone had success with this medication? I’m a bit taken aback at the moment. Just nervous over round 2 coming up. Just hoping for a good outcome.

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