Has anyone else been diagnosed with a rare cancer type?

Small bowel adenocarcinoma is indeed a rare type of cancer, so it's completely understandable to wonder about connecting with others who share this diagnosis. This community can be a valuable place to find support from people who truly understand the unique challenges that come with rare cancer types, and hopefully others with similar experiences will see this post and reach out to share their journeys with you.

It’s tough to be dealing with this type of cancer that has no clinical trials available or medication approve by the FDA.

Yes.

Me as well. Thought we beat it in May 2024 but it’s reared its ugly head again. Now Stage 4. Also have signet ring cells.

this is my second go round with it about 4 years ago I had a bowel obstruction that almost killed me and when they did the surgery they found the mass or the tumor in my small bowel I beat it at the time was in remission in about three and a half years later I now have three big masses one in my hip that makes my right leg numb and I fall sometimes one in my vaginal cup and one by my belly button and on top of that I also have two hiatal hernias but nobody will do surgery on me.