Can Synovial Sarcoma Develop in the Ovaries?
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16 hours agosynovial sarcoma of ovaries.
Has anyone dealt with retroperitoneal soft tissue sarcoma?
Community Member
11 days agoAnyone have a retro peritoneal soft tissue sarcoma
What is dedifferentiated liposarcoma?
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12 days agoAnyone diagnosed with dedeferentiated lipo sarcoma
What's it like getting monthly chemo treatments for 3 years?
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2 months agoCurious about other patient experiences with chemo therapy once a month for 3 years
How do you feel when your oncology team is pleased with treatment results?
Community Member
2 months agoMy oncology team is pleased with the results of the 3 years of treatments. As am I.
Why am I in constant pain during cancer treatment?
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3 months agoMy oncologist can’t understand why I’m in so much pain 80% of the time had me go back to my rheumatologist found out I also have rheumatoid arthritis and fibromyalgia. Can’t get into pain management until May 6 I just want to be out of pain and have some normal in my life. Radiation starts May 4
What treatment options should I consider for widespread leiomyosarcoma at 44?
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3 months agoI was recently diagnosed with high grad widespread non uterine Leiomyosarcoma. I started thinking had a pituitary tumor that they were unable to safely remove and pathology came back as LMS PET scan came back showing primary tumor was in thigh but I also have in other thigh, stomach, lungs, thyroid, back, several other soft tissue areas plus still brain tumor of course. Trying to figure out what I want to do treatment wise as my doctors have pretty much said I am palliative care at this point. I am 44 years old and this has been such a struggle to try to decide how aggressive/sick I want to be.
How do you cope with severe pain while waiting for sarcoma diagnosis?
Community Member
3 months agoWas diagnosed with sarcoma a tumor was found in my abdomen in March waiting on a second pathology report to try to determine what type the waiting game is long and the left side pain is unbearable
Anyone else tried Doxil and Yondelis for leiomyosarcoma? Scared of side effects
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3 months agoHello I am looking for others that have leiomyosarcoma. I just completed 3 months of immunotherapy. It did not work and things grew larger. The doctor wants me to start chemo with the drugs Doxil first, and then yondelis. I am scared to death to be vomiting with nausea. He has told me I will get very sick with yondelis. Anyone who has dealt with these meds please let me know how it was. Thanks Eleanor
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