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Soft Tissue Sarcoma

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Can Synovial Sarcoma Develop in the Ovaries?

RC

Community Member

16 hours ago

synovial sarcoma of ovaries.

1 comment
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Has anyone dealt with retroperitoneal soft tissue sarcoma?

DS

Community Member

11 days ago

Anyone have a retro peritoneal soft tissue sarcoma

1 comment
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What is dedifferentiated liposarcoma?

DS

Community Member

12 days ago

Anyone diagnosed with dedeferentiated lipo sarcoma

1 comment
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What's it like getting monthly chemo treatments for 3 years?

DC

Community Member

2 months ago

Curious about other patient experiences with chemo therapy once a month for 3 years

3 comments
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How do you feel when your oncology team is pleased with treatment results?

DC

Community Member

2 months ago

My oncology team is pleased with the results of the 3 years of treatments. As am I.

1 comment
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Why am I in constant pain during cancer treatment?

EM

Community Member

3 months ago

My oncologist can’t understand why I’m in so much pain 80% of the time had me go back to my rheumatologist found out I also have rheumatoid arthritis and fibromyalgia. Can’t get into pain management until May 6 I just want to be out of pain and have some normal in my life. Radiation starts May 4

1 comment
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What treatment options should I consider for widespread leiomyosarcoma at 44?

KL

Community Member

3 months ago

I was recently diagnosed with high grad widespread non uterine Leiomyosarcoma. I started thinking had a pituitary tumor that they were unable to safely remove and pathology came back as LMS PET scan came back showing primary tumor was in thigh but I also have in other thigh, stomach, lungs, thyroid, back, several other soft tissue areas plus still brain tumor of course. Trying to figure out what I want to do treatment wise as my doctors have pretty much said I am palliative care at this point. I am 44 years old and this has been such a struggle to try to decide how aggressive/sick I want to be.

3 comments
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How do you cope with severe pain while waiting for sarcoma diagnosis?

EM

Community Member

3 months ago

Was diagnosed with sarcoma a tumor was found in my abdomen in March waiting on a second pathology report to try to determine what type the waiting game is long and the left side pain is unbearable

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6 comments
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Anyone else tried Doxil and Yondelis for leiomyosarcoma? Scared of side effects

EM

Community Member

3 months ago

Hello I am looking for others that have leiomyosarcoma. I just completed 3 months of immunotherapy. It did not work and things grew larger. The doctor wants me to start chemo with the drugs Doxil first, and then yondelis. I am scared to death to be vomiting with nausea. He has told me I will get very sick with yondelis. Anyone who has dealt with these meds please let me know how it was. Thanks Eleanor

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6 comments
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Has anyone else been diagnosed with desmoplastic small round tumor?

HJ

Community Member

4 months ago

Hello all, Anyone been diagnosed with Desmoplastic small round tumor? I'm told it mostly affects men but it made an exception for me.

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