Soft Tissue Sarcoma

Has anyone else been diagnosed with desmoplastic small round tumor?

Hello all, Anyone been diagnosed with Desmoplastic small round tumor? I'm told it mostly affects men but it made an exception for me.

Has anyone had hypofractionated radiation for sarcoma instead of standard treatment?

I had a soft tissue sarcoma mass surgically removed from my leg. The skin grafts are now being done. After 4 weeks I begin radiation. My question is has anyone been given "hypofractionated" radiation vs. the standard radiation treatment? From what I have been able to research the hypofractionated method substantially reduces the number and time of treatments.

Has anyone tried Ifosfamide and Etoposide chemo for soft tissue sarcoma?

Anybody with soft cell Sarcoma have experience with this chemo regiment: Ifosfamide 10 g/m² and Etoposide 400 mg/m² in divided doses over 5 days

How do you find hope when sarcoma returns after treatment?

I have been in a sarcoma battle since last March. Myofixial sarcoma high grade. Tumor removed last fall after 25 radiation sessions. Located in left wrist. Had clean scans up since surgery. However a new tumor was found by yours truly about 3 weeks ago, marble size on same arm at the midpoint and removed this last Friday. The journey is tough. Clinging to my faith. Radiation to once again be employed. Looking for brighter days with my wife and three teenage children.

How do I fight leiomyosarcoma recurrence with natural methods?

Leiomyosarcoma survivor here. Stay positive and have Faith! I was diagnosed over 20 years ago with a mid size tumor on my interior hip muscle. They removed it, cleared the margins, and started me on adjuvant chemo with Gemcytabine + Docetaxol. Cured and healthy for 13 glorious years, raising my children. Then it had came back to my lungs. This totally surprised my oncologist who scanned me every six months! Later it spread to my liver, pancreas and spine. I’ve had many surgeries to remove tumors. More chemo with the same drugs as before. Radiation to spine 5 times. Most recently I have had cryoablation with few complications and good outcomes. My new oncologist wants to put me on Doxyrubicin next. But I am weary of the toxic chemicals and am determined to fight this cancer metabolically: Inflammation, immune support with diet & exercise, reducing stress too. I’m exploring other holistic options as well. Through my journey I have learned to research and advocate for myself. No one else will, even loving family members. My advice: be grateful for every single day, every person in your life and stay positive and pray. New Cancer treatments are being developed right now. Buy books, follow forums, find support groups. There is HOPE!

Has anyone tried cryoablation for leiomyosarcoma? Need experiences

I also have been fighting Leiomyosarcoma for 5 + years. It started in my upper right thigh. Had 25 sessions of radiation followed by surgery at Mayo Hospital in Jacksonville, FL. The tumor had wrapped itself around my femoral artery i had 0 margin after surgery. Then it began to spread into my back, close to liver and into my spine and my lung and on the left side of my chest above my lungs I am now talking to Moffitt cancer center in Tampa FL. Yesterday my family I had a zoom call with the cryo radiation Dr's. They presented to us the Cryoablation process. Has anyone had any experiences with this process. The use gasses to freeze the tumor. I have to do some digging to see if my insurance will pay for this procedure. I have questioned them on my tumors on my back also. I am in severe pain, they are pushing against my sciatica. They are going to look into it. Dr. Klein is the dr we spoke to. Any information would be helpful. I am currently on chemo every 3 weeks

How to successfully apply for Social Security Disability with stage IV cancer?

I was diagnosed with the Ultra rare Stage IV Alveolar Soft Part Sarcoma, ASPS. Thus far, treatment with Keytruda appears to be offering durable results with minimal side effects that are manageable. I am looking for anyone who may have pointers for me, if you have has “successfully” navigated the Social Security Disability application process surrounding a stage IV cancer diagnosis.

Has anyone else been diagnosed with metastatic ASPS sarcoma?

I was diagnosed November 2024 with an Ultra rare form of Metastatic Alveolar Soft Part Sarcoma, (ASPS). At the time of biopsy 12/14 the disease had spread from my left buttock to my Iliac crest, both lungs, and later my brain and right forearm. I underwent High dose, targeted Radiation on the brain, targeted Radiation of the hip and was also placed on Immunotherapy, via Keytruda. I am currently still under the care of an amazing Oncology Team at TN Oncology, and still fighting strong with mild side effects and showing durable health. I would love to know if anyone out there is facing my same challenge.

Is lung spread common after leg sarcoma surgery?

I had sarcoma in my leg which was removed by surgery. My surgeon is concerned about my lungs now. I'm scared 😳

Is pinpoint radiation safe for inoperable soft tissue sarcoma?

Has anyone ever had soft tissue sarcoma that can't be surgicaly removed. Or is pinpoint target radiation very safe