Soft Tissue Sarcoma

Has anyone been diagnosed with pulmonary artery sarcoma?

Hello, my husband had PTE surgery 2 weeks ago and the surgeon removed a huge sarcoma tumor from his pulmonary arteries. Pathology confirmed high grade pulmonary artery initimal sarcoma. I understand d this is extremely rare. Is there anyone here with the same diagnosis?

How do I cope with stage 4 sarcoma recurrence and grief?

Hi, I'm Sarah, I'm a 19 year old trans woman. I was diagnosed with stage 4 epetheliod soft tissue sarcoma in May of 2025, after living with a growing tumor in my right arm for over 7 months at that time. In December I was diagnosed again after a major surgery to remove the cancer, I went through radiation to try and limit chances of it coming back, it did though. I was diagnosed with stage 4 for the second time in December after winning the first battle. My dad was originally diagnosed the same week I was, he lost his battle about a month ago now and with that I feel like I lost the person who truly understood what I'm going through and supported me the most in my battle. I know I'm in the less than 1% of people with this type of sarcoma. Which sucks to know as sar oma is already less than 1% of all adult cancers. After all my own research I can't find a single case of someone with my condition living to make it 5 years after initial diagnosis. That's the most devastating news of all of this and watching my mom have to suffer with knowing what my dad went through and what I'm currently going through. Anyway, thank you for reading, I'm just trying to find like-minded people who understand.

Can Synovial Sarcoma Develop in the Ovaries?

synovial sarcoma of ovaries.

Has anyone dealt with retroperitoneal soft tissue sarcoma?

Anyone have a retro peritoneal soft tissue sarcoma

What is dedifferentiated liposarcoma?

Anyone diagnosed with dedeferentiated lipo sarcoma

What's it like getting monthly chemo treatments for 3 years?

Curious about other patient experiences with chemo therapy once a month for 3 years

How do you feel when your oncology team is pleased with treatment results?

My oncology team is pleased with the results of the 3 years of treatments. As am I.

Why am I in constant pain during cancer treatment?

My oncologist can’t understand why I’m in so much pain 80% of the time had me go back to my rheumatologist found out I also have rheumatoid arthritis and fibromyalgia. Can’t get into pain management until May 6 I just want to be out of pain and have some normal in my life. Radiation starts May 4

What treatment options should I consider for widespread leiomyosarcoma at 44?

I was recently diagnosed with high grad widespread non uterine Leiomyosarcoma. I started thinking had a pituitary tumor that they were unable to safely remove and pathology came back as LMS PET scan came back showing primary tumor was in thigh but I also have in other thigh, stomach, lungs, thyroid, back, several other soft tissue areas plus still brain tumor of course. Trying to figure out what I want to do treatment wise as my doctors have pretty much said I am palliative care at this point. I am 44 years old and this has been such a struggle to try to decide how aggressive/sick I want to be.

How do you cope with severe pain while waiting for sarcoma diagnosis?

Was diagnosed with sarcoma a tumor was found in my abdomen in March waiting on a second pathology report to try to determine what type the waiting game is long and the left side pain is unbearable