T-Cell Lymphoma

How do I manage mycosis fungoides without blood involvement?

I have large B cell lymphoma (ctcl) and Mycosis fungoides. Current My ctcl count is low 235 they treat only when it's 2500 to 3000. Holding study. But MY MF is very hard to deal with. NO blood involvement so that good.

How do you cope with sudden paralysis from lymphoma spinal compression?

Newly diagnosed T-cell Lymphoma NOS. I have spinal cord compression as a result of the tumor mass at T-3 through T-6. A significant compression at T-4,2.2cm where there is some effacement and signal noise. I had back pain that was progressively getting worse. Then went from walking to not walking over the course of 2 days. I was clueless about what was going on. Pretty frightening situation to be thrust into without an injury to associate your immobility with. I’ve had one round of chemotherapy and multiple treatment options are being discussed

How to cope when husband has aggressive T cell lymphoma during treatment?

My husband has T cell lymphoma. His type is aggressive and rare. He has had radiation which helped the first lesion. But by the time he had finished radiation more lesions had started as round red spots. His first chemo is right now. His PET scan was clear and his bone marrow was clear. Our prayers are for a good outcome.

Are there other people diagnosed with BIA ALCL?

Looking for others that have been diagnosed with BIA ALCL?

What should I expect with MEITL lymphoma treatment and stem cell transplant?

Just diagnosed with MEITL lymphoma. I have been seen at Fred Hutchinson to confirm dx and treatment. I have been told I need chemo and stem cell transplant. Anyone have info to share?

Does AITL lymphoma cause itching all over without a rash?

Hello my C-fellows. I have AITL Angioimmunoblastic T-cell lymphoma. The port goes in on January 6, 2026. The only symptom I have is itching all over my body. No rash. Anyone here experiencing the same? Any recommendations? Wishing you all much love, peace and understanding 🙏

Anyone else diagnosed with ALCL ALK negative? Starting at Mayo Clinic

Just diagnosed with ALCL, ALK negative. Will be at the Mayo Clinic in Jacksonville on Tuesday for my first appointment. Anyone have the same diagnosis?

"Anyone diagnosed with NK/T-cell lymphoma, nasal type?"

Does anyone else here have extranodal NK/T-cell lymphoma, nasal type?