CommunitiesThyroid CarcinomaShould I get a second opinion for my thyroid cancer treatment plan?

Should I get a second opinion for my thyroid cancer treatment plan?

AH

Community Member

a month ago

Hi everyone. I was diagnosed with papillary thyroid carcinoma yesterday and I’m not sure if I’m being managed properly. My PCP referred me to a general surgeon for a partial thyroidectomy and said I probably won’t need levothyroxine. I have small nodules on the other side and I want to discuss a total thyroidectomy so I don’t have to go through this again later. I also don’t know how they know if there’s lymph node involvement (maybe from the ultrasound?) or if I need RAI. Who manages my hormone levels after? I have a lot of questions that are beyond just a surgery consult. I’m only 30 and I have a young son. I want to be aggressive and just get this taken care of. I’m less than an hour outside of a major city and plan on getting a second opinion from a specialist at a university hospital. Has anyone gone through a similar situation and can share what to expect? Thank you!

3 comments
Comment
CA

Community Member

a month ago

Getting a second opinion from a thyroid cancer specialist at a university hospital sounds like a thoughtful approach, especially when facing important decisions about treatment options and long-term management. Many patients find that consulting with an endocrinologist or oncologist who specializes in thyroid cancer can provide valuable insights about surgical approaches, staging assessments, and post-treatment care coordination. The thyroid cancer community here has many members who have navigated similar decisions and can offer support and share their experiences with different treatment paths.

CF

Community Member

16 days ago

I am 75 but this should be useful. Find an ENT that has done many (50 or more per year). Also find an endocrinologist early before the surgery. You will have a long term relationship with your endocrinologist Also look at thyca.org You have the time to do some research. There is no hurry

1
DE

Community Member

4 days ago

My advice, going through this myself, is to find yourself a cancer center that deals with thyroid, head and neck cancers. You need someone who specialized in this because it might just turn out not to be as simple as they think. I had 2 surgeons tell me this papillary thyroid cancer is the kind to have if you have to have cancer. The pathology report showed so much more. … 5 positive lymph nodes, strap muscle invasion, vascular invasion, tall cell features…… none if this good !! There is also a high risk of laryngeal nerve damage when they remove your thyroid. Honestly, they can do all types of testing, but until a surgeon sees what is inside, they are really just guessing. GET YOURSELF A SPECIALIST. Do not hesitate to take charge. You have to be your own advocate. P.S. I am a retired NP

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