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Vulvar Cancer

Join others facing Vulvar Cancer

205 members

How do I prepare for vulvar cancer surgery?

SB

Community Member

16 days ago

Hi everyone I'm currently diagnosed with vulvar cancer and have surgery on August 12th....had one surgery already.....

1 comment
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How long does radiation burn pain last when going to the bathroom?

KP

Community Member

2 months ago

Well I'm all done with both radiation and chemo. Now waiting for the current damage to my skin to stop happening and then start the healing. I just want the painful burning when I go to the bathroom (both) to stop. It's getting to where I don't want to go...

2 comments
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What treatment options are there for stage 1 vulvar cancer after surgery?

CF

Community Member

4 months ago

I am 55 and was just diagnosed with vulvar cancer after two surgeries for dysplasia. I meet with oncologist this week. Looks like stage 1 invasive. The last surgery was a WLE and margins are clear for cancer but not for precancerous cells. Does anyone know what treatment might look like? I went through breast cancer 8 years ago.

2 comments
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How to sleep comfortably with radiation blisters during cancer treatment?

KP

Community Member

4 months ago

I am going through radiation and chemo treatment for vulvar cancer. I have a butt load of blisters across my butt. I'm so uncomfortable trying to get to sleep. Need some advice

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6 comments
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How do you cope with vulvar cancer diagnosis after years of chronic illness?

BG

Community Member

5 months ago

I was just diagnosed with Vulvar Cancer after battling over 40 years with LS and Crohn's. Now Im facing a partial Vulvar removal. I already had sections of bowel removed for a bowel blockage back in my 20s. I am 59 and feeling so scared. The biopsy was traumatic enough. Wish I had been under for that. Im reading others situations and feeling great empathy. Big hugs to all you warriors.

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5 comments
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What to expect starting chemo again after radiation didn't work?

SL

Community Member

5 months ago

Hi everyone im stacey I was diagnosed with 4a stage squamous cell carcinoma vulvar cancer April 22nd. Ive gone through radiation and chemotherapy . Last day was aug 8 th.it really did nothing for me. Then I went to moffitt cancer center in Tampa for second opinion Now im starting chemo again .I got a port put in . Ill loose my hair with this one. If anyone needs help with hotel stays American cancer society helps pay your room costs.

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6 comments
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How long does recovery take after vulvar cancer surgery?

VH

Community Member

2 months ago

I recently had surgery for Vulvar Cancer. I am still in recovery mode.

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11 comments
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How can I cope with a radical vulvarectomy for melanoma?

LO

Community Member

8 months ago

I was dx with melanoma vulvar cancer a few months ago. Went through 2 immunotherapy rounds and on my mri of pelvis nothing has changed. It hasn’t gotten worse but hasn’t gotten better. I am now meeting with an oncology surgeon to have a radical vulvarectomy. Have any of you had similar experience and how did you not feel like a freak post surgery?

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10 comments
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Living with Extra Mammary Paget's Disease

MB

Community Member

8 months ago

I have had Extra Mammary Paget’s Disease for 10 or more years. I’ve had many surgeries, and have another in the bear future.

1 comment
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