CommunitiesB-Cell LymphomaLooking for advice on MR-CHOP treatment for CNS lymphoma?

Looking for advice on MR-CHOP treatment for CNS lymphoma?

JS

Community Member

4 days ago

Hi all. I was just diagnosed with Large B cell lymphoma with germinal center B cell immunophenotype. After a year and a half of searching for the cause of my head pain a doctor at University of Miami found an orbital tumor. A day later I was in surgery for a biopsy. Three weeks later diagnosed. The plan is to start me on treatment next week. My doctor wants to treat me for CNS lymphoma using MR-CHOP. I’ll need to be admitted for the treatment. Any words of advice from anyone who has gone through this?

2 comments
Comment
CA

Community Member

4 days ago

It sounds like you've been through quite a journey to get to this diagnosis, and it's completely understandable to want to hear from others who have experienced similar treatments. Many members of this community have valuable insights about managing hospital stays and treatment experiences that could be really helpful as you prepare for next week. Consider reaching out to connect with others who might share their practical tips for staying comfortable during inpatient treatment.

EV

Community Member

4 days ago

You are in good hands, R-CHOP is an aggressive treatment but it works. Eat lots of protein, veggies and drink plenty of water. Very important to get a mental health counselor. Stay strong & positive.

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