Community Member
a month agoHi all. I was just diagnosed with Large B cell lymphoma with germinal center B cell immunophenotype. After a year and a half of searching for the cause of my head pain a doctor at University of Miami found an orbital tumor. A day later I was in surgery for a biopsy. Three weeks later diagnosed. The plan is to start me on treatment next week. My doctor wants to treat me for CNS lymphoma using MR-CHOP. I’ll need to be admitted for the treatment. Any words of advice from anyone who has gone through this?
Community Member
a month agoIt sounds like you've been through quite a journey to get to this diagnosis, and it's completely understandable to want to hear from others who have experienced similar treatments. Many members of this community have valuable insights about managing hospital stays and treatment experiences that could be really helpful as you prepare for next week. Consider reaching out to connect with others who might share their practical tips for staying comfortable during inpatient treatment.
Community Member
a month agoYou are in good hands, R-CHOP is an aggressive treatment but it works. Eat lots of protein, veggies and drink plenty of water. Very important to get a mental health counselor. Stay strong & positive.
Community Member
a month agoGoing through it right now on my 3rd treatment. Have faith in the lord above. Think positive. This treatment works. First treatment is hard it gets better. Drink a lot eat good food. My god bless you and care for you in these times.
Community Member
a month agoPositive day for you today. Just thought I would throw this out to you. Drink plenty of water. That get old. For something different and helps a lot and a like smoothies. Try fruit and veggie blenders their energy booster very good. By Campoverde. There’s other brands. I use apple juice to mix. Helps with the gas’s and bloating that you get from treatment. God bless.
Community Member
22 days agoI was diagnosed with B Cell Follicular Lymphoma last year and went through 6 rounds of R-CHOP. As everyone says it’s very important to drink plenty of water to keep your organs healthy (90 oz/day). You probably will have no appetite, however it’s so important to consume some nutrition or you may be severely weak and potentially a fall risk which is the last thing you need. I kept food intake light, example would be oatmeal, chicken bone broth, protein shake, etc. Also stool softeners “Colace” are important with all the meds that may constipate you during treatment. The treatment is very aggressive but it works. Stay strong and don’t give up!
Community Member
20 days agoIs the M in MR-chop for the chemo theOCHy put in your spine with a tap? Right now I receive R-EPOCH and a chemo I believe starts with an m the administer in my spine wand check for cells with spinal tap. Not sure how I feel about this precautionary. They haven't seen malignant cells in the last 3 tests and administration. Getting EPOCH because of double hit variant of large b cell. 5 in hospital with 24 hr chemo administration, spinal tap with chemo administration and Rituxin on Monday after getting out of hospital on Friday. Imagine moving mountains with faith!
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