CommunitiesB-Cell LymphomaHow can I cope with Non-Hodgkin's Lymphoma returning after 18 years?

How can I cope with Non-Hodgkin's Lymphoma returning after 18 years?

JC

Community Member

3 months ago

My name is Jacqueline, I was diagnosed at age 57 with stage four grade 3a follicular Non Hodgkin's Lymphoma. I had 6 rounds of a chemotherapy called R-Chop followed by two years of Rituxan maintenance. I was in complete remission for over 18 years. I am now 75. In July I found out the beast had returned. I now have one area just under the skin on my upper left glute. It has been determined that it is now grade 3B (still not too sure as it is hard to diagnose if it's not in a lymph node). I will begin treatment with four rounds of Rituxan and pray that resolves the problem. If not, I will have to go through chemotherapy again which at my age I don't look forward too. I am totally grateful for my 18 years of remission...this illness is a roller coaster ride that none of us bought a ticket for. The ups and downs are sometimes difficult, but so is life in general, so try and enjoy the ride while we can. God Bless you all.

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accepted answer

Accepted Answer

Thank you for sharing your journey and the perspective that comes from facing this challenge twice. Coping with a recurrence after such a long remission can bring up complex emotions, and connecting with others who understand this experience through support groups or communities like this one can provide valuable emotional support. Your positive outlook about cherishing the good years and finding ways to navigate uncertainty is something many in this community will find encouraging as they face their own ups and downs with lymphoma.

3+ patients found this helpful

JV

Community Member

3 months ago

I'm 78 & recently went through 6 rounds of chemo. I'm in remission now. You can do this. Hopefully you have a support team around you to help.

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JC

Community Member

3 months ago

Thank you Jim, I do have a large support group. Best of luck to you may you remain in remission 💚

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DR

Community Member

3 months ago

Hi Jacqueline I am 54 and in July I was diagnosed with the same thing..I did not even know I had fell down the steps and hit the concrete hard they did a head to toe cat scan and that is when they seen the mass on my abdomen area it is 8 centimeters maybe close to 9 now I start chemo in 3 weeks or less I’m so scared all I do is cry! I’m just afraid I know we all have to die eventually but I don’t want to dies yet or from this I want to be here for my kids and grandchildren 🙏

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JC

Community Member

3 months ago

You will live to see your grandchildren grow up. I am currently going through Rituxan infusions. I am much more tired this time than I was before, but I was almost 20 years younger too😁 The chemo will kick the heck out of your lymphoma and soon enough you'll spend your days enjoying your life and the lymphoma will be just another bump in the road that you went through. Best of luck to you. 💚 And may God bless you

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PA

Community Member

3 months ago

Hello, I was diagnosed earlier this year with stage 3 FL. Completed 6 rounds of BR chemo earlier today and will start on maintenance Rixutan in 2 months. Chemo was a beast but if I can do it and survive you can too. I'm hoping to hear the good news of remission in a few weeks. Happy to chat with all, especially folks with FL and to learn others stories and tips to manage and succeed through this journey that no one wants to be on. Patricia, 65

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JC

Community Member

3 months ago

Thanks Patricia, I will be receiving my 2nd round of Rituxan today. The tumor has already shrunk significantly. I will keep everyone updated on my progress. Thank you for your words of encouragement. God bless you

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SS

Community Member

2 months ago

I have CLL and this is my third time it’s come back. I am 52 years old and I don’t know what they’re gonna do next. Is there any suggestions or anybody I can talk to sometimes I feel lonely and just need to connect.

CA

Community Member

2 months ago

Thank you for sharing your journey and the perspective that comes from facing this challenge twice. Coping with a recurrence after such a long remission can bring up complex emotions, and connecting with others who understand this experience through support groups or communities like this one can provide valuable emotional support. Your positive outlook about cherishing the good years and finding ways to navigate uncertainty is something many in this community will find encouraging as they face their own ups and downs with lymphoma.

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