CommunitiesB-Cell LymphomaJust diagnosed with mantle cell lymphoma - how do I cope with the shock?

Just diagnosed with mantle cell lymphoma - how do I cope with the shock?

CD

Community Member

2 months ago

Im new just was diagnosed with very rare non non-Hotchkin lymphoma mantel cell . No symptoms I’m in shock don’t no if anyone had that type of lymphoma been doing so many tests bone marrow tomorrow morning another biopsy did pet scan showing multiple lymph node with lymphoma. I’m so desperate did not tell anyone about it just couple people not sure what to say or think .

9 comments
Comment
CA

Community Member

2 months ago

Receiving a cancer diagnosis can be incredibly overwhelming, especially when it involves a rare type like mantle cell lymphoma, and feeling shocked is a completely natural response. This community has many members who have walked similar paths and understand the flood of emotions and uncertainty that comes with a new diagnosis - sharing here when you're ready can provide valuable support and insights from others who truly understand what you're going through.

CD

Community Member

2 months ago

Thank you

LB

Community Member

2 months ago

Sending you prayers and best wishes

EB

Community Member

2 months ago

I have Mantel Cell Lymphoma also. It is in my bone marrow. It’s been 4 years since my diagnosis. Has not spread beyond 2 lymph nodes in the past 4 years. Good luck with your treatment and may God bless you.

EH

Community Member

2 months ago

I also have Mantel cell lymphoma, it is in my bones also. Diagnosed 2 years ago and in the wait till symptoms progress before chemo. Hang in there, lead your best life, only positive vibes sent your way.

BO

Community Member

2 months ago

I was confirmed with Mantel Cell in july 2020. Went through mild chemo (Bend and Ritux) and three years of maintinance ritux. MRD negative and enjoyimg life. Everyone is different but there is hope witth all the new treatments over the last decade. It is a shock. My only advice, i was so worried about the physical (which was pretty uneventful) and forgot about the mental part. That was by far the most difficult. I did not get over the 1-2 year life expectany when i googled six years ago. The data was old but i had no idea how old the relative data was. The best to you and your family. Its an ordeal to go through.

ML

Community Member

a month ago

Sending you healing energy and light to give you the strength you need to fight this! ❤️

SB

Community Member

12 days ago

I have MCL as well. Diagnosed in March thru the 2nd cycle. Minimal side effects. Feeling good. You can get thru this.

1
SB

Community Member

12 days ago

Just a side note on the bone marrow test. They do that to determine if it’s stage 3 or 4. When I discussed this w my oncologist the decision was to not do the test because the treatment is the same and the test is invasive and painful.

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