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2 months agoIm new just was diagnosed with very rare non non-Hotchkin lymphoma mantel cell . No symptoms I’m in shock don’t no if anyone had that type of lymphoma been doing so many tests bone marrow tomorrow morning another biopsy did pet scan showing multiple lymph node with lymphoma. I’m so desperate did not tell anyone about it just couple people not sure what to say or think .
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2 months agoReceiving a cancer diagnosis can be incredibly overwhelming, especially when it involves a rare type like mantle cell lymphoma, and feeling shocked is a completely natural response. This community has many members who have walked similar paths and understand the flood of emotions and uncertainty that comes with a new diagnosis - sharing here when you're ready can provide valuable support and insights from others who truly understand what you're going through.
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2 months agoThank you
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2 months agoSending you prayers and best wishes
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2 months agoI have Mantel Cell Lymphoma also. It is in my bone marrow. It’s been 4 years since my diagnosis. Has not spread beyond 2 lymph nodes in the past 4 years. Good luck with your treatment and may God bless you.
Community Member
2 months agoI also have Mantel cell lymphoma, it is in my bones also. Diagnosed 2 years ago and in the wait till symptoms progress before chemo. Hang in there, lead your best life, only positive vibes sent your way.
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2 months agoI was confirmed with Mantel Cell in july 2020. Went through mild chemo (Bend and Ritux) and three years of maintinance ritux. MRD negative and enjoyimg life. Everyone is different but there is hope witth all the new treatments over the last decade. It is a shock. My only advice, i was so worried about the physical (which was pretty uneventful) and forgot about the mental part. That was by far the most difficult. I did not get over the 1-2 year life expectany when i googled six years ago. The data was old but i had no idea how old the relative data was. The best to you and your family. Its an ordeal to go through.
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a month agoSending you healing energy and light to give you the strength you need to fight this! ❤️
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12 days agoI have MCL as well. Diagnosed in March thru the 2nd cycle. Minimal side effects. Feeling good. You can get thru this.
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12 days agoJust a side note on the bone marrow test. They do that to determine if it’s stage 3 or 4. When I discussed this w my oncologist the decision was to not do the test because the treatment is the same and the test is invasive and painful.
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