How are others handling BCG treatment for bladder cancer?

Many people in this community are navigating BCG treatments and understand how nerve-wracking this journey can be. The maintenance phase brings its own set of challenges, and it's completely natural to feel anxious during this time. Consider sharing more about your specific concerns or side effects - others here who have walked similar paths often have helpful insights about managing both the physical and emotional aspects of BCG treatment.

I completely agree that so many of us here get how scary BCG can feel, and you might also want to ask about timing between treatments since everyone's schedule seems a bit different!

Thanks Murray. I do my initial 6 weeks after my TURBT and then waited 2.5 months, had a cystoscopy that only showed a red patch we are watching and have done my first maintenance phase of BCG. I’ll do a cystoscopy every 3 months and then pending results will depend on my next course of action. Being it was HG to begin with is what worries me! Thankful it’s NMIBC but still so incredibly nervous of it reoccurring! How are others holding up mentally!? Anyone else feel like the cancer diagnosis scares others away!? I had people come out of the woodwork at first and now that the initial phase is over they seem to disappear. It now feels like the support I had is gone! This is a long process! Sorry vent over!