Has Anyone Survived Glioblastoma for More Than 2 Years?

I am past 4 years but was IDH positive. I still get MRI every 8 to 10 weeks

What does IDH mean or stand for ? Sorry .. new here

Best answer to that is to search online for IDH mutation in glioma or ask Oncologist

I was diagnosed with GBM grade 4, inoperable, IDH negative on Dec 13, 2022, I will hit 3 years this year with no growth in my tumor.

Awesome. Joanne I assume you were treated with chemo and radiation? And other procedures or treatments? Thank you. Jeff

That is so great Joanne!

Many patients and families find hope in knowing that while glioblastoma is aggressive, some people do survive beyond two years, and advances in treatment continue to improve outcomes. This community is filled with members who understand the journey and can share their experiences with longer-term survival stories that might provide encouragement during this challenging time.

I am 82 y/o, dx 2/9/24, inoperable, completed the SOC radiation & chemo. Stable. You never know. Be positive, open, and loving. I am looking forward to many more years but, also, will feel blessed with the life and love I have should that not be the case. Be positive. Forget survival rates. You’re an individual.

hi i’m Candy was dx with terminal glioblastoma june of 2022 and still fighting. had brai n surgery and then radiation and a year plus of chemo. used optune for over a year and november 2025 had a second brain surgery and in dec/jan had 15 more radiation . anyone here 5 years or more out????

Are you referring to IDH methylated positive or negative?