How do others cope with grade 4 GBM during chemo and radiation?

Thank you for sharing your journey and staying connected with this supportive community during your treatment. Many people going through GBM treatment find that connecting with others who understand helps them navigate both the challenging days and the moments of hope - sharing experiences about managing side effects, finding small daily routines that help, and leaning on faith and loved ones can make a real difference. This community is here to support you through every step, and others facing similar paths will surely benefit from your openness and strength.

Hi Rebecca….. my wife was diagnosed with much the same thing and my heart breaks for you So far it’s been…..a journey. I don’t have any magical words or any great ideas , I don’t know of any trials…..it’s just her and I going through this challenge. I will offer you this …..STAY ENGAGED!!!! Keep reaching out to people. Find people to talk to or spend time with. Do anything you can do to avoid the fear and anxiety of your diagnosis. IT DOES NO GOOD!!!!! It won’t change anything and will only rob you of being you and living your life. You can reach out to me anytime to just talk if you’d like. I check these post every once in awhile……I need these talks myself. Thanks for sharing your story Rebecca…..you’ll be in my wife’s and my prayers.

Did you have seizures? Before the removal of the cancerous brain tumor, seizures were frequent. Since surgery only 1 seizure which may have been caused by a UTI.