Seeking Others with IDC and Neuroendocrine Features

Me! Triple negative. High grade neuroendocrine favoring small cell. I completed 5 months of chemo and had complete resolution of tumor. Will have lumpectomy soon and some radiation I believe

Hi Anna, I was diagnosed with neuroendocrine breast cancer September of 2023. I had lumpectomy (no lymp nodes involved), radiation and am on anestrozole for 5 years. My oncotype test was 16. I am er/pr positive, her2 negative, stage 1a.

Welcome to this supportive community! Finding others with the same rare subtype can provide valuable insights and connection during this journey. While each treatment plan is uniquely tailored by oncologists based on individual factors, connecting with others who have similar diagnoses often helps members better understand their experience and feel less alone. Hopefully other community members with neuroendocrine features will see this post and share their experiences with you.