Community Member
a month agoEveryone please read!! If you have side effects from treatment or drugs that aren't being addressed this is information that may help you. I recently had an appointment with palliative care because my anastrozole insomnia wasn't being addressed and actually being ignored by my oncology team. I thought palliative was only for severe cases or end of life that's NOT true! Within 10 minutes I had a script for trazadone for sleep! It's ridiculous that I've suffered this long and been ignored! They are literally there to help us when oncology is failing us! Here is a breakdown of what they do: Palliative care provides specialized medical support focused on relieving the physical symptoms, emotional stress, and treatment side effects of breast cancer. Unlike hospice care, it can begin at ANY stage of illness and works alongside active, curative treatments to improve quality of life for patients and their families. Physical Symptom Management Pain control: Relieves bone pain, surgical discomfort, or neuropathy caused by chemotherapy and medication Side effect reduction: Treats nausea, fatigue, vomiting, and sleep disturbances from active treatments. Complication care: Manages lymphedema, skin changes, or breathing difficulties. Emotional and Psychosocial Support Mental health: Offers counseling for anxiety, depression, and post-traumatic stress related to a cancer diagnosis. Body image guidance: Helps patients cope with changes in appearance, hair loss, and sexuality. ones and caregivers.Care Coordination and PlanningGoal setting: Assists in aligning medical treatment choices with personal values and lifestyle priorities.Advance care planning: Helps document medical preferences so that wishes remain respected.Team collaboration: Bridges communication between oncologists, primary doctors, and specialized therapists.
Community Member
a month agoThank you for sharing this valuable information about palliative care and how it can address treatment side effects that might not be fully managed by oncology teams. This highlights an important point that many patients don't realize - palliative care is available at any stage of treatment to help improve quality of life, not just for end-of-life situations. It's encouraging to hear how quickly effective solutions can be found when the right resources are accessed, and this information could really help others in the community who might be struggling with similar unaddressed side effects.
Community Member
a month agoThank you for sharing Melissa!
Community Member
a month agoI've only been in treatment for four years and I just recently found this out myself!?!
Community Member
a month agoVery good suggestion. I feel my cancer center neglects the mental/emotional side of cancer/chemo. They don’t ask about side effects though when I bring up specific side effects, they try to address.
Community Member
a month agoI've heard that so many times about the mental health!! I truly think the minute we are diagnosed we should be handed a referral to mental health! This is so ridiculously ignored!! Mary at least they are addressing your side effects that's a plus!! Many of us are just ignored! Especially if it's "just" hot flashes or "just" insomnia or "just" joint pain...I was having 35 hot flashes a day during chemo! I was losing my mind and losing a lot of sleep.... I couldn't take it anymore! Wasn't addressed until I threatened to stop chemo! IMO they shouldn't wait until we are that bad off or desperate! A simple RX for 100mg of gabapentin reduced the hot flashes enough I could finish chemo. A very simple fix
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