First Time Reaching Out After 7 Years of Watching and Waiting

Luka, how have you managed for 7 years without people to talk to? I hope you are w&w another 50 years.

For me, it’s been just over 11 months. My hematologist tells me I have a good prognosis, so I shouldn’t worry as I do, but this is a worrisome diagnosis. I hope to be in w&w for many, many years to come. I’m trying to focus on living my life to the fullest while in w&w, too. I guess that’s the best I can do.

I'm 48 and was diagnosed in August. Also, very worried. I'm wait and watch and had a second opinion that said the same thing. I haven't had any major symptoms but lately my armpits and groin hurt but I don't feel any lymph node swelling. Fatigue is tough on some days. Other days I'm fine. No night sweats, rapid weight loss or fevers. Just feels like I'm waiting to get sick. I don't have my first blood work check up until November.

Welcome to this supportive community! Taking that first step to connect with others who understand the unique experience of living with CLL can feel meaningful after years of managing this journey on your own. Many community members have found comfort in sharing experiences and learning from others who are walking similar paths, whether that's navigating watch and wait periods, understanding test results, or simply having conversations with people who truly get it.

I have had CLL for about 10 years no treatments just get tired easily..

It’s nice to visit with others to see how they’re doing.

Try to live as you did before.. I have had it for 10 years..