Chronic Lymphocytic Leukemia

What's it like taking Venclexta for CLL? Looking for real experiences

I was diagnosed with chronic lymphocytic leukemia in 2018. My doctor recently talked to me about Venclexta (venetoclax), which works by blocking a protein that helps cancer cells survive. They explained it could be part of my treatment plan to help control the CLL. My doctor mentioned I'd need regular blood tests for monitoring and that common side effects can include nausea, diarrhea, and increased infection risk. I'd love to connect with others who have CLL and hear about your experiences. • If you've taken Venclexta, what was your day-to-day experience like? • What tips or insights do you wish you had known earlier in your CLL journey?

How bad are Burkensa side effects and do they get better after a month?

I will start taking Burkensa in a couple weeks. How tough are the side affects and do they become less after the initial month?

Is shortness of breath a symptom of CLL?

Hello again, is shortness of breath in of the symptoms of CLL? Asking for a friend… lol

How do you manage fatigue and learn to pace yourself with CLL?

Good morning, I just found out 2 weeks ago that I have CLL and I am in the watch and wait stage, I think I had it about 9 months before I was tested because I stayed in bed longer and the fatigue is getting worse. I make myself get out of bed but I have to learn how to pace myself, does anyone out there have any tips on getting over the fatigue and trying to pace myself?

How are you coping with starting cancer treatment after watch and wait?

I have been on watch and wait for almost two years. I just found out about a month ago that I have to start treatment because my numbers started increasing very quickly and the cancer is doing something to my spleen. I had my port put in two weeks ago (the friday before Christmas) and I started my treatment last week. I had two infusions last week and one this past Monday. I am really hoping and praying that the treatments go well and that I don't have side effects. I am trying to hold strong to my faith and God during this time.

How to cope with CLL diagnosis and TP53 mutation anxiety?

I was diagnosed in Oct. I have been back and forth between denial and anxiety. I still am not sure if so much. So many test and procedures. On my abdominal scan, they saw ovarian cysts and a large mass in my pelvis wall. On Nov. 14 i had a hysterectomy removing ovaries and tubes along with the mass. Everything was benign so that was a relief. I had a mammogram today and will get the results next week. To add a big curve ball to the CLL, I have TP53 mutation which is poor prognosis and high risk. Not sure how I can take. I'm currently on WW, but I really feel that is to check out other things and take care of the surgery and recovery. Next comes the treatment and the cost. Need thoughts from others and how to deal.

Why am I waiting for treatment when cancer symptoms are so severe?

I just been diagnosed in sept, I am sleeping 12 -14 straight, and still don't want out of the bed, I force myself out. I have drenching night sweats. My skin is not stop itching and and feels like it covered in jalpenos, so I do have alot of symptoms, I dont understand why the wait when your having those symptoms

How long have you had your cancer diagnosis?

How long have you had it ?

What side effects should I expect when starting cancer treatment?

When you start Treatments what are the side effects ?

When do blood test results indicate it's time to start cancer treatment?

At what stage does you blood work have to get before you start treatment ?