Chronic Lymphocytic Leukemia

What CLL updates from ASCO 2026 should patients know about?

View a short summary of important updates in chronic lymphocytic leukemia presented at the 2026 ASCO Annual Meeting. https://outcomes4me.com/cancer-topic/in-treatment-for-chronic-lymphocytic-leukemia/cll-updates-patients-should-be-paying-attention-to-at-asco-2026/

What's the difference between relapsed and refractory CLL treatment?

Learn the difference between relapsed and refractory chronic lymphocytic leukemia and how your treatment options evolve for better care. https://outcomes4me.com/cancer-topic/chronic-lymphocytic-leukemia-progression-and-recurrence/relapsed-vs-refractory-cll-understanding-why-your-treatment-path-is-changing/

Is pirtobrutinib the right targeted therapy for my CLL?

Is this new targeted therapy right for you with chronic lymphocytic leukemia? See the latest research behind this treatment option. Read more: https://outcomes4me.com/cancer-topic/in-treatment-for-chronic-lymphocytic-leukemia/what-to-know-about-pirtobrutinib-for-cll-new-research-brings-hope/

Is early satiety and weight loss normal during stage 0 wait and watch?

Hello! I was dx last June. I’m on wait and watch. Yes I get fatigued. My blood work says I’m alittle anemic. I’ve had early satiety for months. It feels like it’s getting worse and I’m dropping more weight. My question,”Is this normal in stage0 wait n watch ?” And “Can I have tips on diet for this? I’m a type 2 diabetic so carb and sugar have to be low.” PH

What's it like taking Venclexta for CLL? Looking for real experiences

I was diagnosed with chronic lymphocytic leukemia in 2018. My doctor recently talked to me about Venclexta (venetoclax), which works by blocking a protein that helps cancer cells survive. They explained it could be part of my treatment plan to help control the CLL. My doctor mentioned I'd need regular blood tests for monitoring and that common side effects can include nausea, diarrhea, and increased infection risk. I'd love to connect with others who have CLL and hear about your experiences. • If you've taken Venclexta, what was your day-to-day experience like? • What tips or insights do you wish you had known earlier in your CLL journey?

How bad are Burkensa side effects and do they get better after a month?

I will start taking Burkensa in a couple weeks. How tough are the side affects and do they become less after the initial month?

Is shortness of breath a symptom of CLL?

Hello again, is shortness of breath in of the symptoms of CLL? Asking for a friend… lol

How do you manage fatigue and learn to pace yourself with CLL?

Good morning, I just found out 2 weeks ago that I have CLL and I am in the watch and wait stage, I think I had it about 9 months before I was tested because I stayed in bed longer and the fatigue is getting worse. I make myself get out of bed but I have to learn how to pace myself, does anyone out there have any tips on getting over the fatigue and trying to pace myself?

How are you coping with starting cancer treatment after watch and wait?

I have been on watch and wait for almost two years. I just found out about a month ago that I have to start treatment because my numbers started increasing very quickly and the cancer is doing something to my spleen. I had my port put in two weeks ago (the friday before Christmas) and I started my treatment last week. I had two infusions last week and one this past Monday. I am really hoping and praying that the treatments go well and that I don't have side effects. I am trying to hold strong to my faith and God during this time.

How to cope with CLL diagnosis and TP53 mutation anxiety?

I was diagnosed in Oct. I have been back and forth between denial and anxiety. I still am not sure if so much. So many test and procedures. On my abdominal scan, they saw ovarian cysts and a large mass in my pelvis wall. On Nov. 14 i had a hysterectomy removing ovaries and tubes along with the mass. Everything was benign so that was a relief. I had a mammogram today and will get the results next week. To add a big curve ball to the CLL, I have TP53 mutation which is poor prognosis and high risk. Not sure how I can take. I'm currently on WW, but I really feel that is to check out other things and take care of the surgery and recovery. Next comes the treatment and the cost. Need thoughts from others and how to deal.