CommunitiesChronic Lymphocytic Leukemia

Chronic Lymphocytic Leukemia

Join others facing Chronic Lymphocytic Leukemia

308 members
Be the first to comment
Comment
Be the first to comment
Comment
Be the first to comment
Comment
Be the first to comment
Comment
Be the first to comment
Comment

Is early satiety and weight loss normal during stage 0 wait and watch?

PH

Community Member

5 months ago

Hello! I was dx last June. I’m on wait and watch. Yes I get fatigued. My blood work says I’m alittle anemic. I’ve had early satiety for months. It feels like it’s getting worse and I’m dropping more weight. My question,”Is this normal in stage0 wait n watch ?” And “Can I have tips on diet for this? I’m a type 2 diabetic so carb and sugar have to be low.” PH

1 comment
Comment

What's it like taking Venclexta for CLL? Looking for real experiences

RA

Community Member

6 months ago

I was diagnosed with chronic lymphocytic leukemia in 2018. My doctor recently talked to me about Venclexta (venetoclax), which works by blocking a protein that helps cancer cells survive. They explained it could be part of my treatment plan to help control the CLL. My doctor mentioned I'd need regular blood tests for monitoring and that common side effects can include nausea, diarrhea, and increased infection risk. I'd love to connect with others who have CLL and hear about your experiences. • If you've taken Venclexta, what was your day-to-day experience like? • What tips or insights do you wish you had known earlier in your CLL journey?

1 comment
Comment

How bad are Burkensa side effects and do they get better after a month?

AP

Community Member

7 months ago

I will start taking Burkensa in a couple weeks. How tough are the side affects and do they become less after the initial month?

1 comment
Comment

Is shortness of breath a symptom of CLL?

AL

Community Member

6 months ago

Hello again, is shortness of breath in of the symptoms of CLL? Asking for a friend… lol

3 comments
Comment

How do you manage fatigue and learn to pace yourself with CLL?

AL

Community Member

6 months ago

Good morning, I just found out 2 weeks ago that I have CLL and I am in the watch and wait stage, I think I had it about 9 months before I was tested because I stayed in bed longer and the fatigue is getting worse. I make myself get out of bed but I have to learn how to pace myself, does anyone out there have any tips on getting over the fatigue and trying to pace myself?

4 comments
Comment

New to the community?

Create an account to connect with others navigating cancer.

Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.