Join others facing Chronic Lymphocytic Leukemia
308 membersHow do I understand my CLL blood test results?
Community Member
9 days agoLearn how to interpret your CLL blood test results, from lymphocyte counts to genetic markers. Empower your health journey by understanding your lab values today. https://outcomes4me.com/cancer-topic/in-treatment-for-chronic-lymphocytic-leukemia/beyond-the-high-white-count-how-to-read-your-cll-blood-tests/

Outcomes4Me
Beyond the high white count: how to read your CLL blood tests
Learn how to interpret your CLL blood test results, from lymphocyte counts to genetic markers. Empower your health journey by understanding your lab values today.
What should I know about genetic testing after a CLL relapse?
Community Member
10 days agoFacing a CLL relapse? Learn why a new genetic roadmap is essential for your next treatment plan, including MRD testing, mutation analysis, and overcoming resistance. https://outcomes4me.com/cancer-topic/chronic-lymphocytic-leukemia-progression-and-recurrence/why-your-cll-relapse-requires-a-new-genetic-roadmap-not-just-a-new-treatment/

Outcomes4Me
Why your CLL relapse requires a new genetic roadmap, not just a new treatment
Facing a CLL relapse? Learn why a new genetic roadmap is essential for your next treatment plan, including MRD testing, mutation analysis, and overcoming resistance.
What CLL updates from ASCO 2026 should patients know about?
Community Member
2 months agoView a short summary of important updates in chronic lymphocytic leukemia presented at the 2026 ASCO Annual Meeting. https://outcomes4me.com/cancer-topic/in-treatment-for-chronic-lymphocytic-leukemia/cll-updates-patients-should-be-paying-attention-to-at-asco-2026/

Outcomes4Me
CLL updates patients should be paying attention to at ASCO 2026
View a short summary of important updates in chronic lymphocytic leukemia presented at the 2026 ASCO Annual Meeting.
What's the difference between relapsed and refractory CLL treatment?
Community Member
3 months agoLearn the difference between relapsed and refractory chronic lymphocytic leukemia and how your treatment options evolve for better care. https://outcomes4me.com/cancer-topic/chronic-lymphocytic-leukemia-progression-and-recurrence/relapsed-vs-refractory-cll-understanding-why-your-treatment-path-is-changing/

Outcomes4Me
Relapsed vs. refractory CLL: Understanding why your treatment path is changing
Learn the difference between relapsed and refractory chronic lymphocytic leukemia and how your treatment options evolve for better care.
Is pirtobrutinib the right targeted therapy for my CLL?
Community Member
4 months agoIs this new targeted therapy right for you with chronic lymphocytic leukemia? See the latest research behind this treatment option. Read more: https://outcomes4me.com/cancer-topic/in-treatment-for-chronic-lymphocytic-leukemia/what-to-know-about-pirtobrutinib-for-cll-new-research-brings-hope/

Outcomes4Me
What to know about pirtobrutinib for CLL: New research brings hope
Is this new targeted therapy right for you with chronic lymphocytic leukemia? See the latest research behind this treatment option.
Is early satiety and weight loss normal during stage 0 wait and watch?
Community Member
5 months agoHello! I was dx last June. I’m on wait and watch. Yes I get fatigued. My blood work says I’m alittle anemic. I’ve had early satiety for months. It feels like it’s getting worse and I’m dropping more weight. My question,”Is this normal in stage0 wait n watch ?” And “Can I have tips on diet for this? I’m a type 2 diabetic so carb and sugar have to be low.” PH
What's it like taking Venclexta for CLL? Looking for real experiences
Community Member
6 months agoI was diagnosed with chronic lymphocytic leukemia in 2018. My doctor recently talked to me about Venclexta (venetoclax), which works by blocking a protein that helps cancer cells survive. They explained it could be part of my treatment plan to help control the CLL. My doctor mentioned I'd need regular blood tests for monitoring and that common side effects can include nausea, diarrhea, and increased infection risk. I'd love to connect with others who have CLL and hear about your experiences. • If you've taken Venclexta, what was your day-to-day experience like? • What tips or insights do you wish you had known earlier in your CLL journey?
How bad are Burkensa side effects and do they get better after a month?
Community Member
7 months agoI will start taking Burkensa in a couple weeks. How tough are the side affects and do they become less after the initial month?
Is shortness of breath a symptom of CLL?
Community Member
6 months agoHello again, is shortness of breath in of the symptoms of CLL? Asking for a friend… lol
How do you manage fatigue and learn to pace yourself with CLL?
Community Member
6 months agoGood morning, I just found out 2 weeks ago that I have CLL and I am in the watch and wait stage, I think I had it about 9 months before I was tested because I stayed in bed longer and the fatigue is getting worse. I make myself get out of bed but I have to learn how to pace myself, does anyone out there have any tips on getting over the fatigue and trying to pace myself?
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