Chronic Lymphocytic Leukemia

How are you coping with starting cancer treatment after watch and wait?

I have been on watch and wait for almost two years. I just found out about a month ago that I have to start treatment because my numbers started increasing very quickly and the cancer is doing something to my spleen. I had my port put in two weeks ago (the friday before Christmas) and I started my treatment last week. I had two infusions last week and one this past Monday. I am really hoping and praying that the treatments go well and that I don't have side effects. I am trying to hold strong to my faith and God during this time.

How to cope with CLL diagnosis and TP53 mutation anxiety?

I was diagnosed in Oct. I have been back and forth between denial and anxiety. I still am not sure if so much. So many test and procedures. On my abdominal scan, they saw ovarian cysts and a large mass in my pelvis wall. On Nov. 14 i had a hysterectomy removing ovaries and tubes along with the mass. Everything was benign so that was a relief. I had a mammogram today and will get the results next week. To add a big curve ball to the CLL, I have TP53 mutation which is poor prognosis and high risk. Not sure how I can take. I'm currently on WW, but I really feel that is to check out other things and take care of the surgery and recovery. Next comes the treatment and the cost. Need thoughts from others and how to deal.

Why am I waiting for treatment when cancer symptoms are so severe?

I just been diagnosed in sept, I am sleeping 12 -14 straight, and still don't want out of the bed, I force myself out. I have drenching night sweats. My skin is not stop itching and and feels like it covered in jalpenos, so I do have alot of symptoms, I dont understand why the wait when your having those symptoms

How long have you had your cancer diagnosis?

How long have you had it ?

What side effects should I expect when starting cancer treatment?

When you start Treatments what are the side effects ?

When do blood test results indicate it's time to start cancer treatment?

At what stage does you blood work have to get before you start treatment ?

How do I cope with dreading cancer treatment side effects?

I just dread having to start treatments.. so many side effects..

Should I get a flu shot with CLL leukemia?

I have CLL... Should I get the flu shot this year...

What helps with severe fatigue when you feel too tired to function?

Has anyone found anything that really makes a noticeable difference in the fatigue. All my health issues cause fatigue. I just feel like crap in general all the time and I'm too tired to do anything about it! I used to take Adderall and it seemed like i felt better then. I may talk to the dr about getting back on it. Maybe that would help. It's not much of a life when you don't feel like getting out of the bed, ever!

How do you cope with severe fatigue from multiple chronic illnesses?

I have lupus, fibromyalgia, gastroparesis, and degenerative joint disease as well as the CLL. The fatigue is extremely bad. Everything I have causes fatigue. I know that my immune system is very much compromised, and anything could happen. I also have a lot of depression. None of my illnesses can be cured, and that in itself is very depressing. I always manage to snap out of it pretty quickly though. I am one of those "never give up" people, and I know that God has always had my back. I know He always will have! I will be praying for all of you. If you are a praying person, please keep me in your prayers.