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Chronic Lymphocytic Leukemia

Join others facing Chronic Lymphocytic Leukemia

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How has Calquence worked for you in early CLL treatment?

MC

Community Member

15 days ago

I have chronic lymphocytic leukemia (CLL) and started taking Calquence (acalabrutinib) about a month ago. My doctor explained that this targeted therapy works by blocking proteins that help cancer cells grow and survive. I'm still recovering from pneumonia I had recently, and I've noticed some mild chest heaviness, though my care team thinks it's more likely related to my recovery than the medication. I'd love to connect with others who have similar experiences with CLL treatment. • If you've been on Calquence or similar targeted therapies, what has your experience been like in the first few months? • How do you manage monitoring side effects while adjusting to treatment?

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What's it like starting Calquence for CLL? First month experiences?

MC

Community Member

15 days ago

I have chronic lymphocytic leukemia (CLL) and started taking Calquence (acalabrutinib) about a month ago. My doctor explained that this targeted therapy works by blocking proteins that help cancer cells grow and survive. I'm still recovering from pneumonia I had recently, and I've noticed some mild chest heaviness, though my care team thinks it's more likely related to my recovery than the medication. I'd love to connect with others who have similar experiences with CLL treatment. • If you've been on Calquence or similar targeted therapies, what has your experience been like in the first few months? • How do you manage monitoring side effects while adjusting to treatment?

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Is early satiety and weight loss normal during stage 0 wait and watch?

PH

Community Member

6 months ago

Hello! I was dx last June. I’m on wait and watch. Yes I get fatigued. My blood work says I’m alittle anemic. I’ve had early satiety for months. It feels like it’s getting worse and I’m dropping more weight. My question,”Is this normal in stage0 wait n watch ?” And “Can I have tips on diet for this? I’m a type 2 diabetic so carb and sugar have to be low.” PH

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What's it like taking Venclexta for CLL? Looking for real experiences

RA

Community Member

7 months ago

I was diagnosed with chronic lymphocytic leukemia in 2018. My doctor recently talked to me about Venclexta (venetoclax), which works by blocking a protein that helps cancer cells survive. They explained it could be part of my treatment plan to help control the CLL. My doctor mentioned I'd need regular blood tests for monitoring and that common side effects can include nausea, diarrhea, and increased infection risk. I'd love to connect with others who have CLL and hear about your experiences. • If you've taken Venclexta, what was your day-to-day experience like? • What tips or insights do you wish you had known earlier in your CLL journey?

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How bad are Burkensa side effects and do they get better after a month?

AP

Community Member

8 months ago

I will start taking Burkensa in a couple weeks. How tough are the side affects and do they become less after the initial month?

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