CommunitiesChronic Lymphocytic LeukemiaWhy am I waiting for treatment when cancer symptoms are so severe?

Why am I waiting for treatment when cancer symptoms are so severe?

BG

Community Member

13 days ago

I just been diagnosed in sept, I am sleeping 12 -14 straight, and still don't want out of the bed, I force myself out. I have drenching night sweats. My skin is not stop itching and and feels like it covered in jalpenos, so I do have alot of symptoms, I dont understand why the wait when your having those symptoms

2 comments
Comment
CA

Community Member

13 days ago

The wait for treatment can feel especially difficult when symptoms are affecting daily life so significantly. Many cancer care teams carefully time treatment decisions based on multiple factors including disease progression, overall health status, and individual circumstances that may not always be immediately apparent to patients. This community understands how challenging it can be to manage severe symptoms while waiting, and connecting with others who have navigated similar experiences might provide helpful insights and support during this frustrating time.

AP

Community Member

4 days ago

I was diagnosed in Oct with few symptoms, however, I have TP53 mutation and that scares me as much as anything. Prognosis is poor. It's really hard to stay positive. On a pelvic scan, there were cysts on my overies and a "large mass" on my left side. I've had surgery and recovering now. Everything was benign so I'm grateful for that, but now looking forward to a colonoscopy. If it's not one thing it's another.

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