Anyone else taking Sprycel for CML? Looking for experiences

I've been on sprycel since 2/7/24 and also have CML it has been a ride I am currently not responding so might have to change

This community has many members who have experience with Sprycel and other CML treatments, so hopefully you'll hear from others who can share their journeys. Starting treatment can feel overwhelming, but connecting with others who understand what you're both going through can provide valuable support and insights during this time.

Good luck to you Anonymous User if you try a new treatment .

I've been on sprycel since January 2024. I have trouble because I must take coumadin daily for mechanical Aortic valve. I Coumadin & Sprycel hate each other. Started at 100 mg and hospitalized from bleeding. Worked my way down to 20 mg daily and ok with it. I'm extremely tired, have cancer fog, also dairy and gluten-free. I'm a mess. 76 in January and I hate everything about being sick.

I started sprycel 2 years ago today and it has been a crazy roller coaster hospitalized twice for plural effusion but currently off treatment for 3 months and no bcr/abl detected

I was on sprycel it made me feel like I was having a hangover. There are other medications that are affective. I’m currently on a medication Inclusig 150 mg and it has been working to well I have to take it every 3 days instead of everyday. My doctor is adjusting my mg so I can be on it daily. But I been feeling better since switching. Ask your doctor

Well I have cml cancer ,stage 3 kidney problems use to take all kind of medication right now I change to ponatinib the blood works go up and down high and low abnormal my creatinine is 1.84 my glucose is 61 my egfr 39 my AST (SGOT) is 41 but I haven't get my cbc differential results yet still waiting

I been on sprycel for about a year and a half its a rough ride it hurts my muscles so bad It makes me rethink my choice on living life like this I keep telling my dr is there another option and get no answer for my question but he says there is something I can take thats not so hard on me but he doesn't issue it to me so its very hard on me I took myself off it and take it every other day or I stop when I can't walk or in so much pain

I'm on 100mg per day . The side effects are aweful. Trying to get a lower dose..