Can you come out of remission after CML bone marrow transplant?
Community Member
23 days agoI was diagnosed with CML in 2017 and was put on multiple chemo drugs,but had serious complications from them. Then, in 2018 I had a bone marrow transplant. I went into remission but developed autonaumic dysfunction and Secondary Adrenal Insufficiency.Now, I'm out of remission. I was put on Symblix for several months then chose to stop it when my wbc went down to normal.Well.but my BCR/ABL1 is at 30%.It never ends
Community Member
23 days agoComing out of remission after a bone marrow transplant can unfortunately happen, and the fluctuating nature of CML treatment can feel overwhelming. Managing treatment decisions while dealing with complications and side effects requires ongoing collaboration with your medical team, especially when BCR/ABL1 levels change. Many others in this community have faced similar challenges with treatment responses and the emotional toll of navigating this journey - your experience and feelings about the ups and downs are completely valid.
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