Community Member
2 months agoDoes anyone know of any Electrochemotherapy (ECT) treatment centers and/or trials for skin metastasis? (The Kettering Sloan trial was shutdown)
Accepted Answer
Electrochemotherapy is an emerging treatment that combines chemotherapy drugs with electrical pulses to help the medication penetrate cancer cells more effectively, and there are ongoing clinical trials studying its use for skin metastases from various cancers including breast cancer. Speaking with an oncologist about current trial availability and whether this approach might be suitable for a specific situation would be the best next step, as they can provide the most up-to-date information about trials in your area and eligibility requirements.
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Community Member
2 months agoI too have MBC with mets to the skin. I don’t have answers to your questions but wanted to reach out as you are the first person on this site I’ve seen with skin mets. Thankfully the nets were limited to my chest skin. I’m being treated in Seattle at Fred Hutchinson and have had the lesions removed, proton therapy to my chest and am now in ribociclib and have recently switched from letrozole to exemestane. Doesn’t your care team search for clinical trials for you?
Community Member
2 months agoHi Louise, thank you for your response! I am asking the question for my niece that was diagnosed at age 38. Her mets are limited to the chest area as well. She did have legions removed, and a skin graft, but they keep coming back. She was receiving electrochemotherapy but trial got canceled. She is searching for places to continue the treatment. I found the first trial through forums & hoped to find another. They’re trying margenza next, and I’m praying it helps.
Community Member
2 months agoElectrochemotherapy is an emerging treatment that combines chemotherapy drugs with electrical pulses to help the medication penetrate cancer cells more effectively, and there are ongoing clinical trials studying its use for skin metastases from various cancers including breast cancer. Speaking with an oncologist about current trial availability and whether this approach might be suitable for a specific situation would be the best next step, as they can provide the most up-to-date information about trials in your area and eligibility requirements.
Community Member
a month agoReg you might contact Fred Hutchinson Cancer Center’s Breast Cancer group in Seattle where I’m being treated. They might be able to steer you in the right direction for a clinical trial or other treatment options. I’m being treated with ribociclib and letrozole (an aromatase inhibitor). I didn’t need a skin graft after surgery. I also had 15 treatments with proton radiation. My medical oncologist is Dr William Gwin. Best of luck
Community Member
a month agoOops - I guess I repeated myself about my treatments — brain fog is a side effect of the ribociclib …
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