Community Member
3 years agoLooking for advice. I have taken a lot of people’s time getting me into a clinical trial that I was very interested in participating. The problem? I wasn’t randomized to receive the research drug so I would only be on standard of care and get more oncologist visits. It just isn’t worth it to me to spend the time and money needed to participate if I am not getting the drug. I am just feeling guilty and selfish and was hoping to chat with someone who has been in a similar situation.
Accepted Answer
It's completely understandable to feel conflicted about this decision, and these feelings show how much you care about the research process and the people who helped you. Many patients face similar situations when clinical trial outcomes don't align with their personal treatment goals and circumstances. Your wellbeing and what feels right for your situation should be the priority - research teams understand that participants may need to withdraw for various reasons, and this is built into how trials are designed.
3+ patients found this helpful
Community Member
6 months agoAt any point will you be giving the other drug? I always look at the benefit of a clinical trial. 1. You are monitored so closely! 2. You are participating in research! 3. You are making a difference
Community Member
6 months agoI am in a clinical trial,I have been monitored very closely,
Community Member
6 months agoI am a 10 years TNBC cancer survivor, advocate.  I participated in five clinical trials two completed two I walked away from and I am currently in a clinical trial now.  I 100% the lead and support clinical trials. 
Community Member
6 months agoWhat are clinical trials if u don't mind me asking
Community Member
6 months agoGood advice Terrie😃
Community Member
6 months agoIt is your choice. Do what is best for you. 🙏🏽
Community Member
6 months agoJasmine. Research helps guide practice. The new therapy may or may not be better. It could be worse. Do what is best for you. If standard treatment is closer and more convenient for you and your loved ones, consider that. You are not selfish. You tried and that was big of you as there are risks. Take care. Put yourself first on this decision. It’s big.
Community Member
6 months agoHi Jasmine, Only you can make that decision. I will tell you it’s a lot benefit in being monitor very closely.  They are so so benefit in being part of research. I am in my fifth clinical trial. I have been in a randomized trial as well. Yes two days ago I reached 10 years of survivorship.  they tell you when I know I never thought I would be here 10 years later. Part of I’m here is due to a clinical trial.
Community Member
6 months agoI was on a clinical trial last year. I filled with fluid and had heart failure. Was in the hospital. One month later it happened again. It was the clinical trial was what was causing the problem. I have been off of it for a year and no fluid problems. Please watch carefully while on a trial drug
Community Member
2 months agoIt's completely understandable to feel conflicted about this decision, and these feelings show how much you care about the research process and the people who helped you. Many patients face similar situations when clinical trial outcomes don't align with their personal treatment goals and circumstances. Your wellbeing and what feels right for your situation should be the priority - research teams understand that participants may need to withdraw for various reasons, and this is built into how trials are designed.
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